Yes, it is one of my questions for my next appointment.

Since asking this question it would seem the two measurements (bone Marrow Myeloma activity and Paraprotien activity in the blood stream) are independent however I do not know. I always thought that one reflected the other but it would appear not so!

kindest regards
David

I did ask about this at my last appointment. My Consultants words to me were "You can now mix with the human race, just avoid people with colds etc if you can and be fussy about hygiene – otherwise enjoy life". And, yes, colds and bugs in general are more dangerous to an MM sufferer as you would expect them to be.

for a bit of fun (must get myself a life sometime!) I googled it and it came up with this:-

[i]Falsely attributed to Gaius Petronius Arbiter. Quote is from Charlton Ogburn, Jr. (1911-1998), in Harper's Magazine, "Merrill's Marauders: The truth about an incredible adventure" (Jan 1957)[/i]:-S

Gaius Petronius Arbiter did exist and he was a…[Read more]

Thanks to everybody that replied.

If you read all the posts and from the information I have from other local sufferers it just reinforces the individual nature of this decease. I have yet to find two people who are similar never mind the same. I thought there might be a pattern of PP measurement after an SCT , but far from it! Ahh well…[Read more]

Hi John,

I understand, and everybody is different and each hospital has their own way of doing things, that the normal process is that you have CDT (chemo) to reduce the number of Myeloma cells in your body, generally measured by Paraprotien but not always. Once they are down to a level acceptable to your Consultant he/she then puts you in…[Read more]

whoa there. No, you are in remission I just got confused, sorry:-D

Hi Gill,
I was very interested in your Bone Marrow being myeloma clear when your Paraprotien level was 4. I thought PP was a measure of the myeloma cells in your blood and hence bone marrow. Have a got something wrong here, which would not be unusual for me!

kindest regards

David

Hi Keith, do you know why it has gone or has it just gone of its own volition?

kindest regards

David

the very best of luck what ever it is Kay.

Kindest regards

David

You know Sarah this site can make me so sad sometimes, not depressed sad just sad that some people can be so cruel or others can have such rotten luck that nothing seems to go right for them. And, it makes me realise that although I have a terminal cancer which will, if the No 4 bus does not get me first, be responsible for my death I have been…[Read more]

Hi Laura, Welcome(?) to our group. As has been said you are in the right place.

You probably have been researching on the web to find out more about Myeloma, a lot of it is quite scary and out of date. You have bags of good information on this site and they will send you a free information pack that will give you all the details about…[Read more]

Hi Kay, welcome to our little band, sorry you had to join us:-/

I think the Consultants have seen it all before and therefore tend to assume things will take the "normal" (if you can use such a word when talking about Myeloma) route.

I am not a denial person but I can fully understand why some do take that attitude. ParaProtien is the…[Read more]

Well done Tom, and Ron for that matter.
When you say you have "lost" posts do you mean you cannot remember which section you put them in or you post and they just disappear? I have yet to lose, into the ether, a post and I post quite frequently.

I have just received my report from my last visit to my consultant. It is real great when you…[Read more]

I have had PN in both feet following Thalidomide (CDT) treatment, which finished around Feb 2010. I call it sponge foot because that is what it feels like. It does not bother me and I can live with it at the moment. I have been informed, by one of the many consultatants I have seen since diagnosis in July 2009, that it MAY go away but not to…[Read more]

Having had a dose of Shingles, that delayed my SCT, just before Christmas I can assure you I do not want another one. I take the anti-viral tablet and like all men I am not a tablet fan:-/

kindest regards

David

NO, NO Sarah, conkers are used to keep spiders away. My wife religiously collects them every year, drills a little hole in then, and then puts them in corners all around the house. I have got to be honest it does seem to work.

Since coming home from SCT my legs at night have felt "funny" like there is no blood circulating below the knees,…[Read more]

Very interesting, I can trace my family back to 1645, but, I would suspect, that the last 4 generations are the only ones that the cause of death can be really confirmed. Nobody died of cancer as far as I can ascertain, having said that, I am the first [u]male[/u] Marriott to live past 55 for the last 3 generations so perhaps they did not live…[Read more]