Perkymite replied to the topic Musings from Ward 9 in the forum Treatment 14 years ago
day 5 for my readers
Perkymite replied to the topic Bortezomib Consolidation Trial in the forum Treatment 14 years ago
Gill, why not have a chat with the MyelomaUK nurse. She may well have information about the trial and could perhaps give you some questions to ask before you 'phone your Consultant.
kindest regards
David
Perkymite replied to the topic Musings from Ward 9 in the forum Treatment 14 years ago
Day 4 for all my readers is above:-D
Perkymite replied to the topic I've got new dates for allo sct in the forum Treatment 14 years ago
Shirley, I use TalkTalk and found that I could use the Internet OK and this site etc… . But, my email programme would receive email but it would not let me SEND email. This is down to TalkTalk blocking you sending unless you use a TalkTalk line. I believe several other internet providers do the same. If you are technical person you could…[Read more]
Perkymite replied to the topic Interesting Week !! in the forum Treatment 14 years ago
Yes Bridget it is about as British as you can get. No American would put up with it – polite or not:-D
I had a similar experience yesterday. A nurse who has just returned from 2 weeks sickness was clearly not fit for work. There was a complete mix up on my pills. It was sorted by the next nurse on shift and no damage was done. However, it…[Read more]
Perkymite replied to the topic Musings from Ward 9 in the forum Treatment 14 years ago
Yes I will be following your treatment with great interest. The very best of luck.
kindest regards
David
Perkymite replied to the topic Migrated in the forum General 14 years ago
Welcome to the new site. Actually I find it is slow to load some times. Could be the connection through.
Kindest regards
David
Perkymite replied to the topic Bisphosphonate in the forum General 14 years ago
It is all to do with Ostenonecrosis of the jaw.
click on this link http://www.myeloma.org.uk/services/faqs/myeloma-symptoms-and-complications/
Kindest regards
David
p.s. Drinking plenty of water is very, very important. I dring 5 to 6 pints a day!
Perkymite replied to the topic Bisphosphonate in the forum General 14 years ago
Hi Norman, It does make you wonder a bit doesn?t it. We totally rely on the doctors and Nurses to get it right.
Sorry, I cannot help on bis infusion I take Loron which is the daily tablets. I have no side effects at all from them.
Kindest regards
David
Perkymite replied to the topic Is this of interest to anyone in the forum General 14 years ago
I will ask Denise, who has been working in ward 9 (heamatology), my present location for 22 years. Unfortunately she will not be back until next week.
kindest regards
David
Perkymite replied to the topic David's SCT in the forum General 14 years ago
thanks Guys, you can follow my progress under Treatments/Musings from ward 9.
Kindest regards
David
Perkymite replied to the topic I've got new dates for allo sct in the forum Treatment 14 years ago
Well, I wish you the very best of luck I hope to follow your progress. Will you have a laptop available or are we going to have to wait until you come out of the other end:-(
kindest regards
David
Perkymite replied to the topic Musings from Ward 9 in the forum Treatment 14 years ago
Hi Deb, You are right you can only use your Outgoing mail (SMTP) Server: smtp.talktalk.net when connected over a talktalk line. I need to alter my settings to the hospital BT hub. Now the problem is trying to find someone who knows the information I need:-(
kindest regards
David
Perkymite replied to the topic Musings from Ward 9 in the forum Treatment 14 years ago
Actually Min, I think they have put me in the Private ward by mistake!:-S Breakfast was served on a tray with matching china. No tea urn for me my own matching pot of tea and milk jug. One of the maintenance guys has just been in to take samples of the water from my shower etc… I just hope they are not going to bill me for all this. 😀 😀
Perkymite replied to the topic David's SCT in the forum General 14 years ago
My thanks to you all. I am going "to try" to give a dailey(?) blog by editing my post "Musings from ward 9". We shall see how I get on:-D
Kindest regards
David
Perkymite replied to the topic I need help to get over this in the forum General 14 years ago
What a terrible situation for you Roberta.
Some people just do not want to get involved fearful that it may impinge on their lives and they may find themselves committed to a difficult and demanding situation they cannot control and perhaps that is it.
I think you are right you somehow have to find the strength to move on. They appear not to…[Read more]
Perkymite replied to the topic Musings from Ward 9 in the forum Treatment 14 years ago
Hi Bridget, I forgot to mention the fridge 😉 .
Yes, the signal in the ward is poor but workable. I am on Talktalk at home but the hosptial is a BT hub.
I can send to the site but for some reason I cannot send emails. I can receive. I am using windows live mail. I think it might be something to do with firewalls, ether mine or the…[Read more]
Perkymite started the topic Musings from Ward 9. in the forum Treatment 14 years ago
Well, I am now in room 6 ward 9 at the Musgrove Park Hospital Taunton. It is an Isolation ward. I have everything I could want from TV, Internet connection (poor signal I might get a dongle), tea and toast making facility etc… The toilet/shower is on suite (toilet 3 yards away – does that count for the Olympics Dai or is it too…[Read more]
Perkymite replied to the topic Patrick From Chesterfield in the forum General 14 years ago
No, it is OK I would not want to intrude, thanks.
Kindest regards
David
Perkymite replied to the topic Knickinoos in the forum Off topic 14 years ago
Gaye I am just not going to go down this path – I could get banned from the site:-|
kindest regards
David