Hi Anne & Pete
I have been home five weeks this Fri
Had SCT on 17th Jan the year & rapidly descended into that uncomfortable place for 10/12 days
Soon got mouth ulcers & blistered lips , but escaped the worst by using saline mouth wash & drank loads of tea, I'm not a tea drinker just couldn't look at coffee, also went off solid food from day…[Read more]

Hi Tom
I am on Facebook , courtesy of middle granddaughter , don't really use it, but if she is round tomorrow we will crank it up & put a pic on
My proper name is peter Stevenson , but that name was taken when I signed up on this site , James being my middle name
Watch my Facebook space !
Don't bother being good , that's boring , just off…[Read more]

Hi Chris & anyone else up & about !
Just has a report from my Christie specialist
My last pp Assessment said i was in a " good remission " which is not a complete remission
The last blood test will reveal if I have achieved the magic three words
This test is known as an electrophoresis
Checked web & this seems to be something to do with DNA…[Read more]

Hi Chris
For some reason your post chops off what your pp was after 2 months !
Peter

Hi Tom
You have to remember that on our side of the hill we are very sneaky
15 stone ok , unless you are 4-6" tall !
The wine & chocs were taken several hours apart !
Going to rub grow more into beard to encourage growth
Very cold on top without much hair this weather
Outside today @ -3 c plus windchill I think spring is a long way…[Read more]

Hi Dai
I only escaped from Christie five weeks ago so memories are still very clear
You are right re the NR contract
Pre SCT , after all the tests , the consultant went over all the pros & cons, passed me the first of several consent forms to sign
The small print at the bottom said we can also kill you as we'll as cure you
I said if he killed…[Read more]

Hi Tom
My progress maintained, last weekend tandoori mixed grill, ate the lot
This weekend wine & chocolate , major progress , although sense of taste & dry mouth still not back to normal
Although I put on lots of weight , got to 112 kg, but did not lose anything like I expected , back on diet
Had a peek at your Facebook , you look quite thin…[Read more]

Hi Chris
Did you attend Christie as private or NHS patient ?
I would have thought Christie should have done a blood test after approx five weeks to see where your pp was at
What was it pre SCT , did they say you were in remission or good partial remission ?
Your last posting misses off what your pp is now
We have avoided smaller crowded…[Read more]

Hi Chris
Now five weeks since my escape from Christie
Virtually back to normal apart from slight cough & still some loss off taste , specialist says this will take a few more weeks to come back
So I have resumed my domestic duties & back working part time, off to York next week for two day conference which will be nice
Reading other posts I…[Read more]

Hi Vicki & Colin
Super human , thanks , I like that , told wife , she collapsed in hysterical laughter !
I'm not super fast , more slow & steady , tortoise & hare job
Consultant calls me a tough old boot , wife just calls me, actually would never have got this far without her pushing me on
Reading lots of other posts I realise I have been…[Read more]

Hi Jean & Frank
I had my SCT on 16 th Jan this year
The dose of maphalan, I called the killer chemo , should wipe out your cells in less than 24 hours , ready for the SCT
I was not in a very happy place for about 10 days , then they announced I was at point zero ie ,neutropenic
Soon got mouth ulcers & blistered lip , but they gave me saline…[Read more]

Hi Helen , Garry & Louise
Can't help re the cat only to say many years ago my sister had a cat with leukaemia , so they can get human type diseases
Re Garry's SCT I had mine done on 16th jan this year, in hospital 16 days
The first ten days were not much fun
Went off solid food & coffee from day one
With mouth ulcers & a very dry mouth I…[Read more]

Hi Vicki & Colin
Fri was one month since I escaped from the Christie , at least I wasn't bed blocking, more bed messing !
Must admit I got a flying start , within two days of my neuts making a welcome return they were up to 3.8
On first review after one week all bloods / bone marrow were nearly back to normal , fully ok after two weeks
Ten…[Read more]

Hi Ann
I had my SCT on 17th Jan , then spent a not very happy 10 days, went off solid food , lived on soup , ice cream & yogurt
I found drinking tea was a great help for my mouth, was a total non tea drinker !
Also developed a bad dry cough & very stiff neck from being propped up on the lovely soft hospital bed
Started to loose hair , then…[Read more]

Hi Vicky & Colin
Very well done re the really good news
The three little words we would all give our eye teeth to hear
I hope you have no more bad news for many years
All the very best
Peter

Hi Chris
Forgot to ask you or anyone else who can help
I still have a fairly dry mouth , little or no sense of taste so eating solid food not easy
Small amounts possible , my wife tempting me with all sorts with varying degrees of success
How long did your taste / appetite take to return
I used to have a more than healthy appetite , would…[Read more]

Hi Chris
Had my second review yesterday, now two weeks post demob
Bloods all back to normal , further test in two weeks to check where I am remission wise
Slowly getting back on solid food , mouth ok , but little or no sense of taste,
They are trying to cure my nasty dry hacking cough , which I have now had for some weeks
Hair loss was…[Read more]

Hi Tom
Did my 16 days at the Christie nothing but the highest praise for all the nurses & my specialist
Been home two weeks , bloods all back to normal , I have adopted your position , if specialist happy so am I !
In two weeks blood test to check where I am remission wise
Wife force feeding me to get me back on solid foods , although I have…[Read more]

Hi Maureen
I had six three week cycles on CTD
The thalidomide dose was 200 mg every day
Twice in each three week cycle I had 40 mg of dex
This was really good , turned me into Rambo with attitude ,also got rid of all my spinal pains , they are nothing to do with the MM
After the four days on dex I had twenty four hours on a real physical…[Read more]

Hi Carryanne
I was diagnosed MM end May last year , went onto CDT , six x three week cycles , had little or no problems ,loved the steroids , got rid of all my spinal pains , became Rambo with attitude , then on a downer for 24 hours after each four days of steroids
We have two children , now middle aged & five grand kids , the two eldest we…[Read more]