Hi Kevin
I have just started my final sixth cycle of CTD , the dex really hypes me up & gets rid of all arthritic bits for four days , then a bit lacking in energy for two days after , everyone is very different
I also look forward to coming off the poison pills & getting back to normal, if it only takes a few days that will be great
Hopefully…[Read more]

David
You have spurred me on , anything you can do etc, anyway you are just a little younger than me , every little helps
Just started four days of lovely steroids, so sod it into the garden, which I really enjoy, got hundreds of daffy & tulips to plant in place of my now frosted dahlias etc, this year has been the best ever for colour, luckily…[Read more]

Hi Tom
Three teeth less now as well , was quite fond of them , they nearly filled me with Zometa today , two weeks early, I fled
Sorry about your hair, with all the stress in my career , I should be as bald as the proverbial badger, not that I do stress or worry beads. I leave the worrying to you younger ones
When it has all fallen out I will…[Read more]

Hi again Emma & your Mum
It was described to me also as a rare disease, although I have a friend who has a friend with MM
But the average GP will only have two MM cases in his/ her whole career
I think I am a first with my GP, but he knew something was very wrong with my blood apart from being aneamic & sent me straight away for tests, when i…[Read more]

Hi Tom
At least you have more teeth than hair from the looks of your photo
I start Zometa in two weeks , after three old teeth out last Monday, I was saving them for my old age but they had to go
Start my 6 th CDT cycle this Weds
Fish & chips instead of steak & chips for a few days
Such is life
Peter

Hi Emma
As a mere male, older than your Mum, even older than Tom , but I have more hair, for the moment, welcome to our unwanted exclusive club !
I was diagnosed by chance in May this year, anaemic @ 10.5 .PP @ 46
Just about to start my 6 th cycle of CDT, after 4 cycles my PP is at 5, get results on the 5 th this week.SCT in Jan , I hope
We…[Read more]

Hi Tom
Did you have any side effects from your Zometa , I start mine on Mon am, but have booked meetings later in the day , unless it makes me feel off ?
Keep going upwards
Peter

Hi Louise
I am on the CDT treatment , steroids are great, not so good when you come down after four hyper days, do all my jobs on steroid days
Bet he loved the bone marrow sample , from hip ?
I also inject, sounds a bit dramatic, but dead easy & painless , pinch belly & stab ! Helps to be well padded !
My specialist gave me a coloured idiot…[Read more]

Hi David
This men's hair business is serious stuff
How far down does this hair loss go then ?
Still got good crop on top , beard, hairy arms & very hairy chest & back, not going further down than that lot !
Not got any gold to bury in the hair, not quite ready for a bra, need corset to cope with increasing weight as this lot makes me more…[Read more]

Hi Tom
When I was an apprentice we used to call the works manager who was as bald as a. Badger, chrome dome
I was once very ginger, with matching ginger beard & temper to go with it
Now I am more grey to white, small sign of old age, lost the temper bit as well
Maybe if it all falls out it will come back thick & ginger, one can only…[Read more]

Hi Tom
They should use your chrome dome to test all these miracle hair growth cures , then when it has come back , god knows what colour, dry , you can test all the magic chemicals to keep it as shown on adverts
Onwards & upwards could be your hair
Notice I cracked the pic, job
Kind regards
Peter

Hi Garry
My iPad. Missed numbers out or I did ! Finish 5th cycle on 17 th. Oct. then 6 th. & last cycle, after the 4 th. cycle my PP was down from 46 to 5, zero here we come , I hope !
Had three teeth out today in readiness for the Zometa treatment ,relatively painless. start in next 2/3 weeks
I have not as yet been offered or put forward for…[Read more]

Hi Louise
You Dad &I have some simaralities, I am 70, still working, now part time since the advent of MM
My family are being incredibly supportive, very stressful for my Wife, I have a Daughter of 47 & a On of 40, plus a mixed bag of 5 grand kids . Luckily I am a very laid back , non worrying type
I have had to cut out all the long distance…[Read more]

Hi Chris
I have read the Info sheet on biphosphonates, if on them forever I presume that' a pill can be taken rather than monthly hospital visits, I will take this up with my specialist next visit.
In the States two years seems to be max time.As long as I get another 20/30 years drawing my pension I am not too bothered!
I am being treated at…[Read more]

Hi again Chris
As a PS
How long did it take for the effects of The CTD to drain out of your system when you finished your final cycle
Peter

Hi Chris
I would be interested to see how you get on at Christies, fingers crossed for you !
You must be about my age ( 70 , but keep it to yourself ) but luckily still fit , with most of my faculties still intact ,working hard part time . So they have put me up for the SCT hopefully in Jan
Just started my 5th cycle of CTD, going well PP now at…[Read more]

Hi Nicola
I am only 3 years younger than your Dad, I was diagnosed MM inMay this year, now just started my 5th cycle of CTD,
Heading I hope for a SCT in Jan at Cristies Manchesrer
My Wife & I attended the Manchester info day last Sat, met lots of people & learnt a lot
If they have one near you go to it, take your Mum & Dad
I also get a lot of…[Read more]

As an older male still with all my own hair & a beard, silly question time !
Will I loose my hair when I have my SCT, from the posts it appears that this will go, not too bothered , it may grow back
What about the beard, that hides my weak chin, so says the wife, will the beard fall onto the bed sheets ?
Peter James

As an avid reader of the posts, I was luckily diagnosed by a chance from a routine unconnected blood test & my doc said , did you know you were anaemic , as if you would !plus he did not like other bits inthe sample, so quickly to Heamatologist who did all the tests but skated round the word cancer for some reason , he mentioned myeloma & I…[Read more]

Hi Scott
Second post from me in as many minutes
You need the Heamatologist ASAP
My Doc went over my blood test & straight away sent me to a Heamatologist . My PP level was at 46 pre treatment
He took what felt like several milk bottles full of blood & had me X rayed from scull to ankles
He analysed every facet of the blood & churned out…[Read more]