PeterJames replied to the topic CTD Completed – thank heavens! in the forum General 12 years, 8 months ago
Hi Kevin
I have just started my final sixth cycle of CTD , the dex really hypes me up & gets rid of all arthritic bits for four days , then a bit lacking in energy for two days after , everyone is very different
I also look forward to coming off the poison pills & getting back to normal, if it only takes a few days that will be great
Hopefully…[Read more]
PeterJames replied to the topic My 39 year old Melvin's MM Journey……. in the forum Newcomers 12 years, 8 months ago
David
You have spurred me on , anything you can do etc, anyway you are just a little younger than me , every little helps
Just started four days of lovely steroids, so sod it into the garden, which I really enjoy, got hundreds of daffy & tulips to plant in place of my now frosted dahlias etc, this year has been the best ever for colour, luckily…[Read more]
PeterJames replied to the topic Mum just diagnosed on Friday in the forum Newcomers 12 years, 8 months ago
Hi Tom
Three teeth less now as well , was quite fond of them , they nearly filled me with Zometa today , two weeks early, I fled
Sorry about your hair, with all the stress in my career , I should be as bald as the proverbial badger, not that I do stress or worry beads. I leave the worrying to you younger ones
When it has all fallen out I will…[Read more]
PeterJames replied to the topic Mum just diagnosed on Friday in the forum Newcomers 12 years, 8 months ago
Hi again Emma & your Mum
It was described to me also as a rare disease, although I have a friend who has a friend with MM
But the average GP will only have two MM cases in his/ her whole career
I think I am a first with my GP, but he knew something was very wrong with my blood apart from being aneamic & sent me straight away for tests, when i…[Read more]
PeterJames replied to the topic teeth and gums in the forum Newcomers 12 years, 8 months ago
Hi Tom
At least you have more teeth than hair from the looks of your photo
I start Zometa in two weeks , after three old teeth out last Monday, I was saving them for my old age but they had to go
Start my 6 th CDT cycle this Weds
Fish & chips instead of steak & chips for a few days
Such is life
Peter
PeterJames replied to the topic Mum just diagnosed on Friday in the forum Newcomers 12 years, 8 months ago
Hi Emma
As a mere male, older than your Mum, even older than Tom , but I have more hair, for the moment, welcome to our unwanted exclusive club !
I was diagnosed by chance in May this year, anaemic @ 10.5 .PP @ 46
Just about to start my 6 th cycle of CDT, after 4 cycles my PP is at 5, get results on the 5 th this week.SCT in Jan , I hope
We…[Read more]
PeterJames replied to the topic Zometa – is this available on NHS in the forum Treatment 12 years, 9 months ago
Hi Tom
Did you have any side effects from your Zometa , I start mine on Mon am, but have booked meetings later in the day , unless it makes me feel off ?
Keep going upwards
Peter
PeterJames replied to the topic My dad in the forum Newcomers 12 years, 9 months ago
Hi Louise
I am on the CDT treatment , steroids are great, not so good when you come down after four hyper days, do all my jobs on steroid days
Bet he loved the bone marrow sample , from hip ?
I also inject, sounds a bit dramatic, but dead easy & painless , pinch belly & stab ! Helps to be well padded !
My specialist gave me a coloured idiot…[Read more]
PeterJames replied to the topic Hair in the forum General 12 years, 9 months ago
Hi David
This men's hair business is serious stuff
How far down does this hair loss go then ?
Still got good crop on top , beard, hairy arms & very hairy chest & back, not going further down than that lot !
Not got any gold to bury in the hair, not quite ready for a bra, need corset to cope with increasing weight as this lot makes me more…[Read more]
PeterJames replied to the topic Hair in the forum General 12 years, 9 months ago
Hi Tom
When I was an apprentice we used to call the works manager who was as bald as a. Badger, chrome dome
I was once very ginger, with matching ginger beard & temper to go with it
Now I am more grey to white, small sign of old age, lost the temper bit as well
Maybe if it all falls out it will come back thick & ginger, one can only…[Read more]
PeterJames replied to the topic Hair in the forum General 12 years, 9 months ago
Hi Tom
They should use your chrome dome to test all these miracle hair growth cures , then when it has come back , god knows what colour, dry , you can test all the magic chemicals to keep it as shown on adverts
Onwards & upwards could be your hair
Notice I cracked the pic, job
Kind regards
Peter
PeterJames replied to the topic My dad in the forum Newcomers 12 years, 9 months ago
Hi Garry
My iPad. Missed numbers out or I did ! Finish 5th cycle on 17 th. Oct. then 6 th. & last cycle, after the 4 th. cycle my PP was down from 46 to 5, zero here we come , I hope !
Had three teeth out today in readiness for the Zometa treatment ,relatively painless. start in next 2/3 weeks
I have not as yet been offered or put forward for…[Read more]
PeterJames replied to the topic My dad in the forum Newcomers 12 years, 9 months ago
Hi Louise
You Dad &I have some simaralities, I am 70, still working, now part time since the advent of MM
My family are being incredibly supportive, very stressful for my Wife, I have a Daughter of 47 & a On of 40, plus a mixed bag of 5 grand kids . Luckily I am a very laid back , non worrying type
I have had to cut out all the long distance…[Read more]
PeterJames replied to the topic Someone to talk to in the forum Newcomers 12 years, 9 months ago
Hi Chris
I have read the Info sheet on biphosphonates, if on them forever I presume that' a pill can be taken rather than monthly hospital visits, I will take this up with my specialist next visit.
In the States two years seems to be max time.As long as I get another 20/30 years drawing my pension I am not too bothered!
I am being treated at…[Read more]
PeterJames replied to the topic Someone to talk to in the forum Newcomers 12 years, 9 months ago
Hi again Chris
As a PS
How long did it take for the effects of The CTD to drain out of your system when you finished your final cycle
Peter
PeterJames replied to the topic Someone to talk to in the forum Newcomers 12 years, 9 months ago
Hi Chris
I would be interested to see how you get on at Christies, fingers crossed for you !
You must be about my age ( 70 , but keep it to yourself ) but luckily still fit , with most of my faculties still intact ,working hard part time . So they have put me up for the SCT hopefully in Jan
Just started my 5th cycle of CTD, going well PP now at…[Read more]
PeterJames replied to the topic Exausted in the forum Treatment 12 years, 9 months ago
Hi Nicola
I am only 3 years younger than your Dad, I was diagnosed MM inMay this year, now just started my 5th cycle of CTD,
Heading I hope for a SCT in Jan at Cristies Manchesrer
My Wife & I attended the Manchester info day last Sat, met lots of people & learnt a lot
If they have one near you go to it, take your Mum & Dad
I also get a lot of…[Read more]
PeterJames replied to the topic Hair in the forum General 12 years, 9 months ago
As an older male still with all my own hair & a beard, silly question time !
Will I loose my hair when I have my SCT, from the posts it appears that this will go, not too bothered , it may grow back
What about the beard, that hides my weak chin, so says the wife, will the beard fall onto the bed sheets ?
Peter James
PeterJames replied to the topic Diagnosis with no visible symptoms? in the forum General 12 years, 9 months ago
As an avid reader of the posts, I was luckily diagnosed by a chance from a routine unconnected blood test & my doc said , did you know you were anaemic , as if you would !plus he did not like other bits inthe sample, so quickly to Heamatologist who did all the tests but skated round the word cancer for some reason , he mentioned myeloma & I…[Read more]
PeterJames replied to the topic Tests in the forum General 12 years, 10 months ago
Hi Scott
Second post from me in as many minutes
You need the Heamatologist ASAP
My Doc went over my blood test & straight away sent me to a Heamatologist . My PP level was at 46 pre treatment
He took what felt like several milk bottles full of blood & had me X rayed from scull to ankles
He analysed every facet of the blood & churned out…[Read more]