Hi David

Sorry for not wishing you all the best before now.
Reading your posts remind me so of Michael last year.
Keep smiling even though your mouth is probably sore.

Luv
Roz

A big thank you from me too:-)
Roz

Thanks Tom and Michelle,

Hopefully I'm going tomorrow lunch time!! It's been along time since I've seen him, the proper him that is, not the confused man I saw a week agao.
Yes Michelle it is Andrea, is she your mums nurse too?
Weather permitting last Thursdays meeting will be on this Thursday too.
Alot to take in this week.

Love to you…[Read more]

Thanks Tom

Think you know I needed that. I'm really truely loosing it now, I don't know I'll manage on my own any more.

Having spoke to Michael's nurse again yesterday, I can honestly say his arm is a no win situation. So thats that…

I'm begining to feel it now and it feels like forever since I saw him.

Thanks for…[Read more]

Thanks Sue

Michael's nurse will be there with us too.

Roz

Hi

Last week we got told Michael's Myeloma was improving but his arm is the main source for all his infections. Plus the side effects of all his drugs.
The antibiotic given via his hickman line straight through is different to the ones tablet form.
Michael suffers with all sorts of problems from the anti-biotics which I haven't mentioned and…[Read more]

Thanks Lynn and Georgina

How things stand I'm not thinking positive, both Michael and I know its either long term hospitalisation or home with the highest antibiotics for life.

Not much of a life left, and when his kidneys dry out there will be no fluids at home, and no bloods.

So how do I go with an open mind???????

Roz

Thanks All

Meeting is arranged for Thursday, Consultants rounds again. So may be some answers of his life will be discussed.

Not going till then due to weather and Michael falling asleep alot.

Tell you what I can
Roz

Hi Bridget

Yes all those things have been checked, it's either another infection, the one in his arm getting worse, his medication, or even his brain.

Once the meeting has been arranged it's hospitalisation full time so I believe, or home for not very long. They believe his arm is worse than the other specialist does plus its not mended…[Read more]

Thank you one and All

I am glad he has found a way to offload. Yes I know your right. Its just cos we are apart, he tells me he doesn't see anyone, but all along he does.
It would have been nice to know.
Yes I tell you lot in a fashion, and also a mate via phone. But Michael has got jealous of this, but still he kept the vicars present away…[Read more]

Thanks
I know your right and I'm glad he is talking to someone. I just wish he would talk to me. Even when he is bad he calms down when I go but he doesn't talk things out and then he says I don't talk but it does take two.

I hope this rambling period doesn't last long. Not going today so hope he'll be ok.
Going to phone his nurse tomorrow…[Read more]

Thanks All

When I went to see him last Thursday a lady vicar came in, told me she had been visiting Michael for ages. Apologised to him because she had even been to the other hospital when he went but never got to speak to him. She then left. Said she would see him when I wasn't there.
I never knew about here, she had never been there before…[Read more]

Hi Lynn

I'll talk now last night was too late and a glass too many wines!:-D

Sorry to hear about John and hope he starts to pick up real soon. You too should rest when possible. I don't sleep much but a lay down b4 I go aids my back abit, especially 6hr visists.

We found out the other day that most of Michaels infections all stem from…[Read more]

Hello Lynn

Sorry for not recognising you but I've been in a mess with Michael.

I doubt very much he will be home for christmas after what happened yesterday. Still got to have the meeting with his consultant.

I hope both you and John are ok, and he starts recovering well.

Talk to you more later

Luv Roz

Thank you

It's wine tonight. Darn't go to bed or rest even though another full day tomorrow. My mind is working overtime. So maybe a drink of wine will relax me.

I'll see him tomorrow and see how he his and hope and pray his ramblings have stopped.

Can I ask any of you, when your in hospital having treatment have you ever had the vicar,…[Read more]