[SAshParticipant]

Dear Vicky

So sorry to hear your devastating news. My husband, Keith, was diagnosed with Myeloma just after Colin. I only posted on the forum once and you very kindly responded. I didn’t post again because every time we seemed to have this beat it came back again. I lost my beloved husband in October 2013 just 18 months from diagnosis. My thoughts are with you Vicky. Sue x

[SAshParticipant]

Thanks Steph.

We are at the hospital today, so I will ask.

Sue

[SAshParticipant]

Thanks Vicki

I followed your journey through Colin's SCT into remission hopefully for many years.

I have read through my post again and it sounds woeful but it was good to get it all down. We have been really positive all the way through these treatments and have bounced back after every setback but the last one knocked us both for six. We are almost back to totally positive again (albeit Keith from his recliner chair when he wakes up) Does Revlimid make everyone sleepy? Keith is taking this at 12 noon because that is when the hospital gave it to him. Thalidomide, which also made him sleepy, was taken at night. He slurs his words sometimes because he is really sleepy. Hospital just said it should be taken at the same time each day. Does anyone know the best time of day Revlimid should be taken?

Sue

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