Hi

It is quite normal to stop treatment for an infection as the immune system cannot fight the infection whilst on treatment.

Hope this helps.

Maureen

Sarah

The friends and family who attended Mark’s thanks giving service is a testament that he was well liked and a good person who will be sorely missed but always remembered.

It is so sad you had so little time with Mark but you will meet again.

I hope life is kind to you and you find the strength through your faith to get through…[Read more]

Hi Helen

Ian is also on high dose steroids with revlimid, he only started this treatment on Monday and so far so good. A bit short tempered but I take myself off for a walk.

we also went to Cornwall for a week’s holiday at the end of July. We were in a small place called Hayle just outside St. Ives. We had beautiful weather and I loved it.…[Read more]

Sorry to hear you now have .skin cancer. Does revlimid cause secondary cancers?

Maureen x

Hi Andrea

Best of luck with remaining CTD and SCT? Hope you get many years of remission

Maureen x

Sarah

I cried when I read your latest post and hope I will be as brave when our time comes. I hope you find the strength from your faith and friends and family.

I will be thinking of you not only on Tuesday and in the future.

My thoughts and prayers are with you.

Love Maureen x

so sorry to hear Eva has passed on. I spoke to her on the phone and she was very informative and friendly. so sad we did not meet up.

My thoughts are with her husband and sons.

Maureen

Sarah

I am shocked by Mark’s sudden death. He had come through so much to get a SCT and I prayed he would get through this.

I too believe that you will be reunited in heaven. Stay strong and remember all the good times.

Keep in touch.

Love Maureen x

Hi Vicki

Ian’s FLC rose from 52 to 640 before treatment was started.

Hope Colin has a few months yet before treatment. Why no second SCT?

Love Maureen x

Hi Andy

We were looking to add cyclophosphamide to the velcade and dex before Ian moved on to revlimid but consultant advised that it is used more down south than in Scotland and as Ian had a good response to CTD and revlimid is a sister of thalidomide but with fewer side effects his best chance would be to move onto revlimid. We are hoping that…[Read more]

Hi Joyce

My husband, Ian, has had 3 cycles of velcade and dex. He has FLC myeloma. The first cycle brought hisFLC from 840 to 580, unfortunately they have risen on cycle 2 and 3 and are 860. We requested if we could add cyclophosphamide and were rejected by our consultant. Now going for second opinion on Thursday to Western General in…[Read more]

Thanks for all your replies.

We just want to try and see if adding cyclophosphamide will work. Consultant advised that this combination isn’t used at our hospital. Think it is a postcode lottery what treatment you get which really unfair. Ian hadCTD which had to be stopped after 3 and a half cycles to let his bedsore heal. This brought his FLC…[Read more]

Congratulations. Hope you have a long remission

Hi Sarah

Glad to hear M is making progress and DTPACE has worked. Keep me updated on SCT.

Hubby on velcade and meeting with consultant on Monday. Fingers crossed FLC going down.

Just returning from a lovely holiday in Cornwall.

Never give up hope and keep praying.

Maureen x

Vicki

Ian is on his 3rd cycle of velcade and dex. After 1st cycle FLC went from 820 to 545 but rose to 660 after 2nd cycle. Consultant thought it might be a blip but would think about changing treatment if FLC continue to rise. I asked if he would add cyclophosphamide but said no as velcade wouldn’t be working. Not very happy so phoned…[Read more]

Hi Vicki

I hope Colion’s FLC go down next meeting with consultant, it may be because of infection. We are waiting to see if Ian’s will still be rising when we meet the consultant in 2 weeks time. Hopefully it was a blip in both cases.

Off to Cornwall next week Saturday for a week, can’t holiday abroad yet.

Thinking of you both.

Maureen