Hi Vicki

Sorry to hear you have both been having a tough time. Myeloma is so unpredictable and we try to live our lives as normal as possible until a relapse.

Velcade didn’t work for Ian but he didn’t have cyclophosphamide with the dex. He has just finished cycle 3 of revlimid and dex. FLC are down to 329. He had a blip where they rose by 200…[Read more]

My husband was diagnosed 2 years ago at the age of 56. I cried all the time and could not function as he was kept in hospital with a lesion on his spine and then had spinal compression . He did not cope very well and is on an antidepressant , which does help. He also had a psychologist .

I take diazapan when I feel really anxious and can’t sleep…[Read more]

Thanks Megan

No results yet but spoke to a specialist myeloma nurse at The Beatson in Glasgow who was very nice and calmed me down. She thinks it is too early to change treatment yet and to be referred for a second opinion to Glasgow

Brilliant news Michele. My husband hopes to get remission and SCT. He is on his 3rd treatment revlimid and FLC have come down from 1200 to 530 after his 2nd cycle.

Andy went through CTD, velcade and DTPACE pace but didn’t get remission. He went onto revlimid for 2 and a half years and now on polimoid. Look at his posts.

My hubbys consultant would not put anyone through SCT who are not fit. Think carefully about treatment.

Good luck x

Thanks

Sarah how are you coping?

We’ll done Andy you have come a long way and manage to stay positive. Ian was diagnosed 2 years on 25 October.

Keep it up x

Hi Peter

Hope the new treatment works for you will

Maureen

Please phone the myeloma nurses on this site who can advise you on treatment. You could also ask for a second opinion.

Good luck

Maureen

Hope all goes well with the operation David and you get home soon.

Maureen

We don’t have the cancer drug fund in Scotland either and pomalidomide has been refused here. Hoping it will be passed as it will be Ian’s next treatment if revlimid fails.

Maureen

All signed Richard

Maureen

Worrying Richard, perhaps Scotland should go it alone and have access to nhs.

Maureen

Hi Helen

We stopped in Padstow on the way home and had lunch in Paul Ainsworth , superb. I also loved a little village called Marizion near St Michael’s Mount and Mousehole . Bought the Mousehole book for the grand children.

We are off to London on the22nd to spend a few days with my daughter.

Consultant thinks Ian’s FLC will show no sign of…[Read more]