ange replied to the topic Diagnosed this week in the forum Newcomers 12 years, 2 months ago
Hi Ted
Excellent news, glad all okay for you and hope the x-ray is alright too.
Best wishes
Andrea
ange replied to the topic Diagnosed this week in the forum Newcomers 12 years, 3 months ago
Hi Ted
That is encouraging to know, good luck with your appointment and thank you for the information.
All the best
Andrea
ange replied to the topic Diagnosed this week in the forum Newcomers 12 years, 3 months ago
Hi Mavis
Thank you for your message, it is a strange thing to get my head around but yes, hopefully I won't need treatment too soon.
Best wishes
Andrea
ange replied to the topic Diagnosed this week in the forum Newcomers 12 years, 3 months ago
Hi Ozzy
Nice to hear from someone in South Wales! Yes, I go to the Royal Gwent Hospital. Glad to hear you are doing so well! Thank you for your kind message.
Best wishes
Andrea
ange replied to the topic Diagnosed this week in the forum Newcomers 12 years, 3 months ago
Hi Jean
Thank you for your message, I can see that everyone here is so kind and helpful which is very reassuring. Wishing you and your husband all the best.
Love
Andrea
ange replied to the topic Diagnosed this week in the forum Newcomers 12 years, 3 months ago
Hi Kevin
Sorry to hear you were diagnosed too. Good luck with your treatment. For me it is a waiting game until I need treatment and I have no idea how long that will be! On the positive side I have some time to prepare and am thankful I was diagnosed so quickly.
All the best
Andrea
ange replied to the topic Diagnosed this week in the forum Newcomers 12 years, 3 months ago
Hi Tom
Thank you for your kind message, I am from Newport, South Wales and go to RGH so would be interested if anyone else is from this area.
Best wishes
Andrea
ange replied to the topic Diagnosed this week in the forum Newcomers 12 years, 3 months ago
Hi Eva
Thank you for your kind message. It is helpful to know that I can contact you and great to hear how well you are doing.
With best wishes
Ange
ange started the topic Diagnosed this week. in the forum Newcomers 12 years, 3 months ago
Hi, I am 51 years old and was diagnosed with asymptomatic myeloma this week after abnormal blood tests for an unrelated GP visit. My paraprotein level is 37.1 and my bone marrrow biopsy showed 12% plasma cells, skeletal survey was fine. I will be having 4 weekly blood tests and clinic appts and was told that I will be started on chemotherapy when…[Read more]
keznmel replied to the topic Myeloma in the forum Newcomers 12 years, 9 months ago
Hi Mavis…
Thank you…I will ask for one of those x x
keznmel replied to the topic Newcomer in the forum Carers 12 years, 9 months ago
Hi Zoe…
It's tough isn't it?! Melvin, my partner is only 38, so young! How is Dan? He sounds like he is having a tough time of it.
Melvin was diagnosed with a solitary plasmacytoma of the spine in December 2011 and had radiotherapy that helped. He is currently in hospital with multiple fractures..now on the ribs…and is being hit full…[Read more]
keznmel replied to the topic Scared…everything is happening! in the forum Newcomers 12 years, 9 months ago
Thank you everyone for your lovely kind thoughts and words of encouragement. It's such a tough time for us.
I hope this finds you all well. Please keep in touch x x x
keznmel replied to the topic Scared…everything is happening! in the forum Newcomers 12 years, 9 months ago
Thank you Bridget,
I hope you are feeling well. Yes, Melvin had radiotherapy for the plasmacytoma on the spine and is having infusions every 4 weeks….however, we are not sure what the next plan is now that he has multiple fractures. He is in hospital at the moment on Iv morphine and antibiotics and the Dr's are having a MDT meeting later…[Read more]
keznmel replied to the topic Scared…everything is happening! in the forum Newcomers 12 years, 9 months ago
Hi Mavis…Sorry for late reply.
Thank you for your message. I hope you are feeling well.
Melvin is also having bone strengthening infusions every 4 weeks…but he still has these new fractures. His levels seem to have spiked a little but not out of control. He is still in hospital on IV antibiotics and morphine but is having more movement…[Read more]
keznmel started the topic Scared…everything is happening!. in the forum Newcomers 12 years, 9 months ago
Hi there…
My name is Kerry and I'm 36 years old. My partner of 16 years, Melvin was diagnosed with Multiple Myeloma in December 2012. In December 2010 he had a plasmacytoma of the l4 vertabrae. He is currently in hospital with pathological fractures to the ribs and a blood clot on the lung and is in terrible pain. We are waiting to hear what…[Read more]