SharonGrainger

  • Hi all
    well its looking more likely that I will be joining you all soon on this velcade experience as i now have had 2 different consultants suggest i may need systemic treatment after my radiotherapy :-S .
    It is interesting to hear about having it subcutaneous as this could reduce the need to go into hospital quite so much, as I've managed to…[Read more]

  • Hi Bridget
    well I'm sure I'm going to that hot place that bad people go to!!!!!lol! I wouldn't wish what I'm going through at the moment on anybody else!
    I have to have another 5 sessions of radiotherapy and i have no idea how long they are planning on keeping me on bed rest for, i am hoping only until i have finished the radiotherapy!
    Hope…[Read more]

  • Hi all

    Well we all seem to be having radiotherapy at the moment!
    As some of you may know I had radiotherapy last month on a plasmacytoma on my lower spine. Things seemed to be going ok apart from the numbness in my leg. Until 2 weeks ago when I started having pain in the chest region of my back.
    My consultant suggested a PET scan to try…[Read more]

  • SharonG replied to the topic Bone marrow biopsy in the forum General 13 years, 1 month ago

    Hi Sandie

    I had my last biopsy at the hospital where they did by sct not my local hospital and they did offer me some sedation which as I'd never been offered it at my local hospital and had coped fine, so I thought I wouldn't need it!! I will next time! Also at my local hospital a nurse always helps the Dr and is there for you too, it was just…[Read more]

  • SharonG replied to the topic Bone marrow biopsy in the forum General 13 years, 2 months ago

    Hi Sandie

    How brave of your Mum to under go such an evasive procedure at 85, I have to say if I'd reached that age I think a few choice swear words would have told them where to go!!!!!
    It is good to hear that the Dr's did listen to you and were sensitive to your Mum's needs at least. Like Bridget I have had varying experiences of BMB's, with…[Read more]

  • SharonG replied to the topic Radiotherapy in the forum Treatment 13 years, 2 months ago

    Hi Bridget

    Thank you for mentioning DLA, but I do already get it! My GP was very good after my allo, I've just had the renewal form and had hoped not to renew it before all this! Oh well, I feel more justified for renewing it now.
    I love your shoe story, I also have a passion for shoes! I am expected to wear some heels when I am bridesmaid…[Read more]

  • SharonG replied to the topic Radiotherapy in the forum Treatment 13 years, 2 months ago

    Hi Bridget

    Unfortunately I am still not able to drive! Its a nightmare! I am having to rely on my parents and husband to ferry me about. Either that or I have taken to walking everywhere I can, but that means my swollen leg is not getting better!!!! I can't drive unless the numbness goes or I buy an automatic car!! As I bought an new car…[Read more]

  • SharonG replied to the topic Radiotherapy in the forum Treatment 13 years, 2 months ago

    Hi Bridget

    Glad to hear that you have finished your radiotherapy. I hope it starts to help with the pain soon.
    I have started to reduce my morphine down now, but still have no improvement in the numbness in my leg 🙁 I am really hoping its not permanent.
    Good luck with the revlimid and hope the dex isn't too bad!

    Love Sharon x

  • SharonG replied to the topic I'M HOME in the forum Treatment 13 years, 2 months ago

    I'm afraid the trips to the hospital at the beginning are a nightmare! It does get better, but at the beginning you still feel like you are spending more time at the hospital than at home and I had a few admissions at the beginning for GvHD!

    It does get better Shirley though, by last October I was on holiday with my family and you would not…[Read more]

  • SharonG replied to the topic Radiotherapy in the forum Treatment 13 years, 2 months ago

    Hi Bridget
    I think ultimately I am glad I stopped in, it would have put so much pressure on my family taking me to each appointment (Its an hour each way!). And then getting home and my 7 year old may understand Mom is poorly- but only to a certain degree! I also needed my pain sorting out as I was in incredible pain when I was admitted, I…[Read more]

  • SharonG replied to the topic Radiotherapy in the forum Treatment 13 years, 2 months ago

    Hi Bridget
    I am pleased to hear that you are starting your radiotherapy. I also had 5 sessions and not over the weekend (even though I was still in hospital!). Please don't worry about it compared to most of the other treatments it seems a breeze! I am just waiting for it to kick in yet- I think thats the hard part!
    Love Sharon x

  • SharonG replied to the topic I'M HOME in the forum Treatment 13 years, 2 months ago

    Shirley thats fantastic news, I'm so glad you are doing well.

    Watch out for the dreaded GvHD though as I ended back in hoospital with it a week after my initial discharge! (Sorry I don't want to put a downer on things for you, but be aware!) I developed a rash on my neck and a high temperature.

    Keep up the good work
    Love Sharon x

    PS…[Read more]

  • SharonG replied to the topic Relapse official in the forum General 13 years, 2 months ago

    Hi Bridget
    The radiotherapy hasn't been too bad at all! I had to go back under the ct scanner to be measured and now sport some lovely free tattooes so they know they are zapping me in the right place. I am only having 5 sessions for this tumour and i am only under the radiotherapy machine for a couple of minutes while they actually do it now.…[Read more]

  • SharonG replied to the topic Relapse official in the forum General 13 years, 2 months ago

    Hi Kieth
    Sorry to hear about your relapse, I am in the same boat myself having just had the tumour at the bottom of my spine confirmed as a plasmacytoma and evidence of speckles of small plasmacytomas up my spine :'-( like you I am gutted. I am in hospital having radiotherapy at the moment and am waiting to see whether my consultant thinks I…[Read more]

  • Good for you Min, I really hope you get it! My husband and I are coming to the realization that I will probably not get back to work, but at 40 things are a bit different for me! At least the insurance paid off the mortgage which has been a weight off our minds!
    Love Sharon

  • Will be thinking of you tomorrow Roz and your family. I hope the day goes as you would want it to for Michael.
    Sending you hugs

    love Sharon x

  • SharonG replied to the topic update on allo sct in the forum Treatment 13 years, 2 months ago

    Lol sorry gill, like shirley I was quite proud of my dark (would have been very curly if I didn't straighten them!) locks, hence the pre-transplant photo. Fortunately for me they have grown back lovely and its time I found a new photo of me! I have always said I will resort to dyeing it if it starts to go grey! Hopefully at 40 I have got a few…[Read more]

  • SharonG replied to the topic update on allo sct in the forum Treatment 13 years, 2 months ago

    Hi Shirley
    so glad to hear that you are doing well! As I am sure you will remember how quick your hair grows back once it starts and may be it will grow back different this time, I just remember praying it didn't grow back grey!
    Wishing you luck and all the best for the new year!
    Love Sharon x

  • SharonG replied to the topic Pain that moves about in the forum General 13 years, 3 months ago

    Hi Keith

    It sounds just like the pain I had when I was diagnosed. One day it would be the left side of my chest, the next day the right side! It puzzled all the doctors until somebody did my paraprotien levels!

    Sorry, as it does sound like it could be on its way back again. Take the sedation if they offer you some for the bmb!

    Love Sharon x

  • Dear Roz

    I am so sorry to hear your news, but I agree with the others in that Michael is now at peace and that you will always have treasured memories of him. Try to think of him how he was before this dreadful illness took hold.

    Love Sharon x

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