Hi Wendy thanks for the reply.
It sounds like you responded really well to your SCT and to hear that you managed to continue working during chemo and picked up again quickly after the transplant is inspiring.

Best of luck with your continued recovery.

My consultant said that even though organ end damage was very slight (organ being the spine), it's best to go in hard and early if you can. From what I can make up this is an ongoing discussion in MM – whether to use a lighter or more dramatic treatment in early diagnosis.

I guess I have to trust my specialist. Not looking forward to the…[Read more]

Hi Carroll I'm sory sorry to hear of your relapse.
I'm due to have two cycles of PAD in jan so any feedback on how that is going for you and any sides would be appreciated.

Lots of love

Tom

Helen thanks that's really useful.

I'll assess where I am post SCT in conjunction with my specialist.

Tom

Keith and Tom thanks for sharing your thoughts and experiences.

Keith just to clarify you have continued to have zometa continuously since your first SCT?
It does appear in the states as though this is a standard maintenance treatment there.

Thanks again

Tom

Thanks Tim I would definately be interested in hearing more about your SCT

Tom

Thanks Polly, I'll also check out Andrew Schorr Patient Power

Thanks Michele there does appear to be a discrepancy as some people have it limited to a year or two post treatment.

Thanks Michele, how often do you receive the Zometa? Also where are you based, I wonder if ongoing Zometa therapy is a post-code lottery?

Thanks for the reply Mavis, I wish you all the best in your continued remission.

Thanks Peter it's good to here you've had a good response.

I totally agree we should be open-minded about different ways to wrestle with the beast.

Thanks David, I'll check that out. Any personal anecdotes appreciated.

Hi Charlotte,

Please don't take my case history as something that's common for people with plasmacytoma, this disease develops differently for everyone.

I feel bad that I've unsettled you.

I'm sure you are fine but you are certainly not 'making a fuss'. You have had treatment for cancer not a few sniffles. I'm sure your consultant will…[Read more]

Thanks for posting, I've read around this subject before. I think we need a lot more research before we can be certain and it's always difficult commenting on these issues from a non-expert point of view.

Certainly for some sections of patients SCT is a very effective treatment, but hopefully in the future such will be the efficacy of the combo…[Read more]

Thanks Megan, sorry to hear your move to Devon didn't work out and hope you manage it sometime in future.

David thanks for your input.
Yes, it's daunting, I realise how vulnerable people are when going through these kinds of things.

I'm up for it though and I have a wonderful wife and family supporting me.

Helen that was great thanks for the detail. Very useful.

Great news you have saved SCT for another time and hopefully you'll never need it.
I think my bones are in pretty good shape but I'm a little bit nervous of the SCT.

I had Dex before. I hate it, it makes me really grumpy! And the lack of sleep, but I guess it's better than the…[Read more]

thank you, this is a great forum. I've learnt a lot even in just the past 24 hrs.

t.