Hi Phil
We asked the consultant the other day and Charlie is 2.4. Is that good?
Glad you have the new lead much easier than ipad. Wish we were in remission – fingers crossed.
Love Us x;-)

Hi Tom

Did you just keep the animals away? I am the most undomesticated person, I shall have to practice.

A whole new way of life!!!

Love Charlie & Mary 😛

Nightmare David.

How long does it take until your immune system is back to normal?

Love Charlie & Mary

Hi Everyone

Thanks so much for your replies. Makes me feel that I have to change my whole way of life and continuously clean. Don't know what to do about the dogs. Has anyone else got animals? They are so germy!!!
I suppose we just have to get on with it and cope.

Is it best that Charlie has a room alone after Stem Cell? If so, I must…[Read more]

Hi Tony

When will you know? Is it wonderful not being on any medication?
Really hope it goes well.

Love Us x x:-)

Hi David

I am the most undomesticated person ever. I have to practice – I think!!!
It is so tempting just to see the grandchildren regardless but we must change our whole way of thinking. It is going to be so hard. We do not know how everyone copes.
We wish we had never heard of Myeloma.
Deap breath.
Love charlie & Mary>:-(

Nightmare! What do I do in my present situation? One of the dogs has a stomach bug and is being sick and ****** everywhere?

How long does it take until you are fit again? Should Charlie be totally isolated?
How does everyone cope?

Love Us x:-S

Hi Phil
We don't even know what neutrophils are. What are they supposed to be?
Do you feel OK now? How long has it been? Hope you have become used to the ipod.

Love Us x:-D

Hi David
So I must now become domesticated. When is it OK to be normal again? Or is it?
I feel, I must get my act together and prepare.
thanks so much.
Love Mary x :-S

Nightmare Tom. What do I do when the dogs come in filthy?
How long do you have to do all this for? Is it best to have a separate room for Charlie away from everything?
Can't wait until it is all over.
Upwards and Onwards!! 😀

Hi Vicki & Colin and Everyone

I go tomorrow to be randomised on the trials. Stem Cell or Velcade.
I just wanted to know, what are you like when you come out of hospital? Will I be able to walk up the stairs? How do you feel? Does the rcovery take ages?

Love charlie & Mary

Hi Emma
2013 is Ok at the moment – fingers crossed. Went to the hospital last Tuesday and was given another cycle of CDT but with extra Clexane injections. They are going to see in 3 weeks my para protein levels and consider Stem Cell Transplant.
Is your Mum OK now? Somehow it is less worrying when she is in hospital, you know there is…[Read more]

Hi Susan

I am OK at the moment, back on all my drugs to get the paras down ready for stem cell. Not looking forward to it. Where are you on the trials?
It is all so confusing, would love it to be all over and remission – fingers crossed.

As Tom says Upwards & Onwards.
Love Charlie 😀

Hi Emma

I have been on Clexane injections from the beginning because I had previously had PE's. They have now upped the dose.
Don't fancy going back on thalidomide. We are still thinking about our options. It is all so difficult.
It is good that your Mum is in hospital as it takes so much worry away knowing they are looking after…[Read more]

Hi Emma
I had my consultation yesterday to decide on the next course. They have given me three options. To come off the trials and go on Velcade at my local hospital. To go back on Thalidomide at a lower dose as that was bringing my para proteins down for a couple of cycles or Velcade twice a week in Southampton or I could be randomised…[Read more]

Hi Dai

I have been trying to reply to you but this new computer is so confusing.
I was fine until they put the Thalidomide up from 100 to 150. I took this for two days and then collapsed one morning – rushed to the hospital, collapsed again, resucitated, then kept in hospital. Taken off Thalidomide, which they said caused it and my doctor in…[Read more]

Hi Dai

I cannot get back onto our discussion with this new computer. I had a PE and DVT in 2001 after an operation on my leg following a motorbike accident. I told the hospital this so they wre aware. I was then put on Clexane 40mg along with CDT. This was fine for a few months. then they decided to up the Thalidomide from 100 to 150 mg.…[Read more]

Hi Emma

So sorry I have taken so long to reply, been having trouble with the computer.
So sorry to hear about your poor Mum, it must be dreadful for you and her.
It sounds really similar, I just went funny and collapsed. They have taken me off Thalidomide completely, in fact, I am off everything until January but am having a bone marrow…[Read more]