So sorry, it is a journey. I cannot understand why,mwhen you are diagnosed, you are not given a questionnaire. Lifestyle, occupation, diet so they can develop some sort of overall,perspective. All Charlie was asked, “Did you work in the petroleum industry?” That was it. There must be a common denominator and how can they find that out…[Read more]
2 out of the 3 we knew in a our village on the Island were Electrical Engineers, one was a Telecom Engineer. I worked with an electrical firm for a year!!!???
Totally confused. Another friend, was a postman. Maybe there is nothing to relate anything with. Maybe all questions should be asked. Diet, life style, job. Etc etc. x x
There has to be some common denominator. A friend of ours who investigated it in depth, while she was suffering from it, felt it was plastics and would have nothing with plastic at all. That is so difficult these days.
Don’t know, chemicals or areas. Wouldn’t it be wonderful to be able to work it out.
We were living in a village on the Isle of Wight when Charlie was diagnosed. We knew at least 4 people in the village with Myeloma and many more across the Island. When we moved back to Potters Bar in Hertfordshire, we registered at the doctors, he had 2 students from Cambridge with him at our consultation, he said to them, I will only see…[Read more]
Great to be back on the site. Wow
My hair took quite a few weeks to grow back, when it did, I was curly.
I have always had straight hair. Now, at the back of my head especially, it just curls.
My son said, “Do something with your hair, it is awful”. I went for a hair cut!!!
Onwards and Upwards as Tom says.
@Tom hi Tom
How is everything? We have been unable to get on the site for months as the signal is so bad where we have moved to. How was your Stem Cell? How is everyone, totally lost ouch.
Well it has been a long time for you,
SCT well that lasted four years, came back December last year been having chemo since February this year first it was was Velcade and Dex nthat failed on cycle four just done cycle five and they have added chyclomoside to tat start that tomorrow morning, apart from that I feel good apart from…[Read more]
Stanstan started the topic My Computer is Driving me Mad. Does anyone know anything about Addenbrookes in the forum Off topic 8 years, 3 months ago
My computer will not let me get in to reply to the messages from this site. It is so irritating.
Anyway Tom and Steve, sorry. I am fine at the moment on Revlamid. Touch Wood.
I have just had a phone call because we have moved, they are transferring me from Southampton to Addenbrookes. Does anyone else go there? Is it good? Isn’t it…[Read more]
Had my SCT in August last year. Partial remission, like you on Revlamid and staying at 14 ish.
Just had my childhood injections. Where did you go on holiday? Was it all OK while you were away?
We have not been on the site for so long as we sold our house on the Isle of Wight and are now staying with friends until we move. We have found a house in Bedfordshire and southampton hospital have given us a choice of Addenbrookes, Northampton and Kettering or Buckinghamshire. Does anyone know about any of these?
Charlie had stem…[Read more]
Not been on for a while, thanks for all your help and hope everyone is OK.
We have been away looking after our grandchildren. Stem Cell still planned for early July. Paraproteins were 13.2 at the end of April now they are non detectable. What does this mean? Has anyone else gone down like that?
Doing fine on Velcade so…[Read more]
Trying to relax. The doctor gave me pills but I am not taking them.
Can't wait for cleaning etc. Charlie's Neutrophils are 2.4 at the moment and paras are 13.4 – Nightmare. I shall practice cleaning before he goes in hospital in July. I am trying to arrange a separate room downstairs he can stay in. Upwards & Onwards!!!
Love Us x