Hi Vicki & Colin

Here is to the power of positive thinking. Hope it works.

Getting more used to it. It is great having you all to talk to.

Charlie

Thanks Debs

It is great to hear from people who have already gone through it. I am doing well at the moment but it is early days. I asked the consultant and I am 21 para at the moment which talking to others with Myeloma is not that bad.
I suppose everyone finds it hard accepting it in the beginning.
I shall try to be more positive and get…[Read more]

Hi Vicky & Colin

Thanks so much. I am now on CDT, see how it goes. I shall really try to adopt your positive attitude, but it keeps evading me at the moment. I keep thinking – I don't want this – but there you go. what can you do – I shall try to be positive and not fail if I can stop hiccoughing.

Love Charlie

Hi Michele

I am on my second day now of CDT. so far so good except I can't stop hiccoughing. I expect I have a lot worse to come. On the trials they put me on CDT so I hope it works. We just lost a friend last week from MM and she was 43 had it for about 13 years which is very depressing. She had done a great deal of research and felt it was…[Read more]

Hi Eve

How sad, you have to cope with much more than I do. Only 16. We grumble but we can cope with the help from all of you.

It puts things into perspective when you realise that others have to deal with much more. It makes you stronger. Thanks Eve.

Love Charlie

Hi Eve

Trials, I think. Have to decide by tomorrow. Dreading it all.
Just want to go back to normal.

Everyone is so helpful but it is still so depressing. Let you know what happens with the consultant.
Thanks to all for helping.

Charlie

Hi Gill

Why could they not delay the treatment for a week? Is that usual practice?
I would like mine delayed so I can attend a friends wedding. Just wondered.

Thanks Charlie

Hi Helen

Really don't understand AA and Blue Badge but I suppose I shall have to get a grip. It has cheared me up that you were able to take holidays and be normal. I suppose I shall get used to it all.

Charlie

Hi Eve

Is King's a really good place to be treated? Why is claiming for anything so difficult? Really hope you get a good holiday. That would be wonderful for both of you.

Charlie

Hi Gill

How did you feel through treatment? Were you able to do anything? What is it like? When in remission are you just normal again? Did you know you had it smouldering for 17 years?
Where are you going on holiday? Hope you have a great time. I just feel at the moment that life will end as I know it, when I start treatment.

Do you…[Read more]

Thanks Helen.

At the moment, just wish I didn't have it. Spent yesterday in the hospital, another bone marrow biopsy & X-Rays. I have to decide by Tuesday, I suppose I shall go ahead with the trials. Just not looking forward to feeling ill all the time. I take it you cannot go away on holiday while you are on the trials.

It is just…[Read more]

Thanks Vicki & Colin

I shall have to take a deep breath and get on with it. How ill was Colin through the treatment? Could he lead a normal life or did he feel so ill all the time?

Just trying to prepare myself.

Thanks so musch for your help.
Charlie

Hi Tom

Glad you are fine now, thanks for giving me hope.

Best Wishes

Charlie

Hi Jo & Liz

Thanks so much, reading these answers makes me feel a little more positive. I suppose there is a period of shock everyone has to go through. I feel so fit. I have been gardening today. Noone has said what sort of excersise you can and can't do, just don't lift heavy weights or overdo it. Does anyone run with Myeloma? I used to…[Read more]

Sorry Eve

I forget to say – I am 64.

Thanks Charlie

Thanks so much Eve

I think it is all so confusing and such a shock that you can't take anything in and when you read all the side affects from the drugs on the trials, in order to make the decision, it becomes so depressing. I was healthy a few weeks ago. I think we just have to come to terms with the shock – it is so live changing.

I…[Read more]