[StanstanParticipant]

Thanks Jean

What would we do without you all? It is so good to chat to everyone that understands.
Deep breath for another day of hospital visiting. :-0

Love Mary x

[StanstanParticipant]

This site is so cool isn't it? I have been feeling dreadful over the past couple of days. My daughter said to me, go on the Myeloma site, it is there to help and it does. Eve, you must be strong, I feel like a wreck at the moment but hopefully I can be like you, positive and suportive. You make me feel like there is hope at the end of the tunnel. I have a blood pressure monitor but can't get it to work. I shall read the booklet tomorrow. I really don't think we have been taking this illness as seriously as we should have. He seemed fine. Re-roofing the shed the night before he collapsed.

Vicki, I don't feel we are assertive enough, we just let things ride, maybe we should get a grip. The doctor has given me these pills but I don't want to take them, I am not into pills at all and he said, increase them to 5 a night. I am a wreck but not happy about that at all. I think I just need to scream, shout and cry.

Roll on remission!!!

Love Mary x

[StanstanParticipant]

Wonderful Michele

Wish we were at the same stage as you. Keep Well.
Shall let you know tomorrow.
Love Mary

[StanstanParticipant]

Hi Michele

He is still in hospital in the Medical Investigation Unit. Really fed up. He was fine until Friday morning. I don't know if they are in contact with Southampton, I have given them all the details but have not seen a doctor yet. When they were banging his chest, I was frightened they were going to break something. His chest is a bit sore now.

Hopefully we will find something out tomorrow, when the doctor comes round.
Are you OK? I am sure women handle this better than men.
Love Mary:-S

[StanstanParticipant]

Hi

I am Mary – Charlie's wife. Charlie was rushed into hospital in the Isle of Wight on Friday. He got up in the morning and collapsed. He collapsed again in A & E and they all rushed to resucitate him. It was frightening. He is a lot better now but as it is the weekend, we still have no idea why this happened. They have stopped all his medication. He is supposed to see the consultant at Southampton on Tuesday, don't think we will be going.
He should be a starting his 4th cycle. Will this delay his SCT? Has this happened to anyone else.

Totally fed up with Myeloma.

Love Mary 🙁

[StanstanParticipant]

Thanks so much Michelle. Feeling a bit down at the moment but you have made me feel more positive, just got to get through this and accept it. Looking forward to when the SCT is over and hopefully be normal again.

Dancing with Myeloma.

Charlie

[StanstanParticipant]

Hi Michelle

Thanks so much. Where is my inbox? Are the messages in with all the others.

Best Wishes
Charlie

[StanstanParticipant]

Hi Michelle

How long after SCT did you feel better? Was it dreadful?
So glad you are feeling so much better.

Charlie

[StanstanParticipant]

Hi Vicki & Colin

Let us know when the SCT dates are – that is the bit I am dreading, and recovery. Hope it goes well and maybe fun afterwards!!

Keep Dancing.
Charlie

[StanstanParticipant]

Hi Bill

It must me trauma for you and your family at 41. So young. Let's hope we can go through the trials well together. Is your wife/partner OK? I feel sometimes it is worse for them than us.

As Tom says – upwards and onwards and as Carol says – Dance!!!

Charlie

[StanstanParticipant]

Hi Jean

Thanks, natural yogurt sounds cool. Poor Frank, seems to have had it worse than me. Drives me mad but seems to have subsided now.

Onwards, upwards and Dance!!

Charlie

[StanstanParticipant]

Hi Carol

So glad your hair is growing, must be great. I shall try applying for DLA and see what happens. I love your dancing idea – Dancing with Myeloma – cool.

Onwards, upwards and dance.

Charlie

[StanstanParticipant]

Hi Vicki & Colin

Here is to the power of positive thinking. Hope it works.

Getting more used to it. It is great having you all to talk to.

Charlie

[StanstanParticipant]

Thanks Debs

It is great to hear from people who have already gone through it. I am doing well at the moment but it is early days. I asked the consultant and I am 21 para at the moment which talking to others with Myeloma is not that bad.
I suppose everyone finds it hard accepting it in the beginning.
I shall try to be more positive and get used to it.
As Tom says – Upwards and Onwards. Was the SCT dreadful?

Charlie

[StanstanParticipant]

Hi Vicky & Colin

Thanks so much. I am now on CDT, see how it goes. I shall really try to adopt your positive attitude, but it keeps evading me at the moment. I keep thinking – I don't want this – but there you go. what can you do – I shall try to be positive and not fail if I can stop hiccoughing.

Love Charlie

[Author]

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