tom replied to the topic Thrush?? in the forum Side-effects 13 years, 2 months ago
Lol I could have told you all That "Lucky Elaine" xx lol
tom replied to the topic SCT Colin in the forum Treatment 13 years, 2 months ago
Hi Penny
All the best with your SCT on Monday I have logged onto your Blog ((((I think )) good luck in the road to remission 😀 and ghope its as smooth as mine 😎
Love and Loads of (((((HUGS))))
Tom "Onwards and Upwards" xxxx
tom replied to the topic Thrush?? in the forum Side-effects 13 years, 2 months ago
Lol Jean Honest when I had the "Stand on your bloody Toes" feeling I stood on my toes its not a plesant feeling but if I drunk more water it soon cleared
Ps I dont do Footy Lol xx
Love one Thrush Free (so far) Tom "Onwards and Upwards" xxx
tom replied to the topic Wheatgrass in the forum General 13 years, 2 months ago
Hi Janet
Hows you doing see your in remission still 😀 and that good news, not heard from you for a month or two and am pleased you are OK 😎 Not heard anything about Wheatgrass but if its good take it I have started taking "Green Tea" and that is awfull Lol ye I drink it as it says its good for me ???? do I enjoy it???? not likely Lol will…[Read more]
tom replied to the topic Thrush?? in the forum Side-effects 13 years, 2 months ago
Hi Jean and Frank
Well thrush?? I dont know?, all I remember is when I was on CDT and sometime when having a wee I used to stand on my tip toe's and say oh oh oh bugger oh bugger (it dint stop the pain?? lol) but My Lead Nurse told me drink more (I took that to mean Red Wine/Vodka?) but it worked 😎 more water and less pain 😉
Good…[Read more]
Avis replied to the topic Charity Chosen in the forum Under 50s 13 years, 2 months ago
Thank you Eliz, I do take it easy…
tom replied to the topic Plasma cell leukeamia in the forum General 13 years, 2 months ago
Hi OnlyMe
I am sending Hugs and prayers at this difficult time your Mum and Family are going through, please stay strong and I pray your Mum stays calm and is pain free.
Love and Hugs to you all
Tom ((HUGS)) xxxx
tom replied to the topic Rev/Dex Has Started in the forum Treatment 13 years, 2 months ago
Hi Keith
Welcome back 😀 am sure like us all that has been away when we are back it soon becomes a distant memory Lol
Good Luck with the rev and dex and as for the injections :-/ I for one wouldn't look forward to that :-S but if it has to be done its done 😎
Good Luck with it M8
Tom "Onwards and Upwards"
tom replied to the topic Channel 4 documentary in the forum Side-effects 13 years, 2 months ago
Morning Eve well as you know our Charlie has his 5 mins of fame on face book every time I post a photo he is on it (vain little devil) lol xxx
tom replied to the topic Channel 4 Documentary in the forum Treatment 13 years, 2 months ago
And I also am one of those that could tell wotsitsface where to shove it Lol
Have a good day Folks am up and ready for work 🙂
Tom "Onwards and Upwards" xxx
Judd1 replied to the topic I am newly diagnosed with Myeloma in the forum Newcomers 13 years, 2 months ago
I just want to say a massive thank you to everyone who has responded to my thread, it's such a relief to know theirs other people who understand what I have gone through, and am currently going through. Thank you all for sharing your stories… some are so horrific, but all of your stories have given me hope and strength. It's so reassuring to…[Read more]
Judd1 replied to the topic New myeloma suffer – would like to meet other suffers in the forum Under 50s 13 years, 2 months ago
Hi Eve,
Thank you for getting back to me. I have posted in the under 50's section too. I hope your husbands treatment goes well.
Best Wishes
Judy
Judd1 replied to the topic Starting Padimac trial in the forum Treatment 13 years, 2 months ago
Hi Helen,
Thank you for getting back to me. I hope your treatment goes well for you.
Best Wishes
Judy
tom replied to the topic Channel 4 Documentary in the forum Treatment 13 years, 2 months ago
Thanks for that David think a few have been a tad upset with it here :::
http://www.myeloma.org.uk/index.php?cID=16917&ccm_paging_p=1&time=1340657058#msg16940
tom replied to the topic Channel 4 documentary in the forum Side-effects 13 years, 2 months ago
Lol Eve I forgot aint none of us in here able to do the TV Programe as we will all be here after the 12 month is up Lol.
And you are correct they should do one On Myeloma and why Nice take so long to release the drugs and why the drug Company's charge what they do 🙁
And am sure you are ready for more than your five mins of fame Lol…[Read more]
tom replied to the topic Channel 4 documentary in the forum Side-effects 13 years, 2 months ago
And for those smiles I and Eve are eternally Grateful.
But would it do some good to be aired? it would get Myeloma out in the open rather than just a few thousands that know about it.
Its just the Gaul of the words that got me IE "[u][b]life-limiting illness[/b][/u]" and Or "[u][b]and have a short time left to live[/b][/u]"
We with MM are…[Read more]
tom replied to the topic Channel 4 documentary in the forum Side-effects 13 years, 2 months ago
Lol Eve and do you know that is Correct I aing going nowhere this next 12 months apart from abroad on our holls Lol xxx
Love
Tom "Onwrds and Upwards" xxxx
tom replied to the topic I am newly diagnosed with Myeloma in the forum Newcomers 13 years, 2 months ago
Hi Judd
A warm welcome to you sorry you had to nip in, now lets hope they can nip your problem's in the bud and get you into remission soon.
Is the road Long? is tit a hard road?? I dont know you seem to have had it bloomin hard already 🙁 Its not a walk in the park but I had my SCT in December 2009 and am now in remission.
Good Luck on…[Read more]
Judd1 started the topic Starting Padimac trial. in the forum Treatment 13 years, 2 months ago
I am a newly diagnosed myeloma suffer, and I will be starting a Padimac trial as my treatment plan followed by a stem cell transplant.
I am under University College Hospital, MacMillians Cancer Center, London.I would like to know about what I can expect during this treatment, side effects etc from anyone who has done the trial. The treatment…[Read more]
Judd1 started the topic New myeloma suffer – would like to meet other suffers. in the forum Under 50s 13 years, 2 months ago
I have just been diagnosed with Myeloma, I am 40 years old and feel quite isolated. Apart from coming to terms with my new diagnosis, and life changing events including the inability to walk unaided and having to be taken out via a wheelchair, chronic pain, fractures in my spine etc etc.
I am sure there must be other out there feeling the same…[Read more]