[TharewoodParticipant]

I have used Insurancewith.com many times and only paid £100 when went on a cruise round the Med. The website is very easy to use. It will ask if you’ve had any recent treatment eg Stem Cell transplant or if your waiting for any surgery etc. Good luck and stay posted I’ve I am almost 6 years in and know two people who are 15yrs into treatment. Have a good holiday x

[TharewoodParticipant]

Hi Carol

I kept my hair all through 6 rounds of chemo, I still had a good head of hair after SCT however on day 15 after stem cells went back in it came out in big chunks. I had the rest shaved off on day 15 post SCT. It isn’t growing very fast although I am only now 38 days post op, however there is a tiny stubble on top of my head which looks fairly black which is weird as I was a red head. I too worry about it not coming back however at the moment I’m just concentrating on getting my strength back as I really miss going to work. Also my other side effect that’s getting on my nerves is the constant feeling of nausea. I’ll keep my fingers crossed that this goes quickly & hopefully my hair will start to grow soon. I really don’t want to wear a wig when I go out but find I get more stares when I’ve got my head scarfs on – hey ho I’m just glad to be alive. Take care

Tracey x

[TharewoodParticipant]

Hi Jane

Good to hear your story, I am in the process of getting my stem cells harvested this week and was beginning to wonder if I was doing the right thing. I am 49 and all I want to do is have some normality in my life and be strong for my husband and three children. My daughter got married in May 2013 and it was one of the happiest times of my life although we knew we had the dreaded M hanging over us. Thank you for telling your story as it’s just the boost I needed, stay strong & stay positive. I hope you have a fabulous time at your sons wedding and I’m sure you will look gorgeous x

[TharewoodParticipant]

Dear all

Thank you for your feedback, it’s really helpful to finally speak to people who know what you are actually going through. I forgot about putting my age but I am 49yrs young. I have taken up some hobbies that I haven’t done in many years just to try and keep my mind off things & because there is only so much TV that you can watch. Once again thanks for your input, Stay Strong, Stay Positive xx

[TharewoodParticipant]

I was newly diagnosed in June 2013, I work in NHS and it was really hard telling my colleagues. When I was diagnosed the first thing I wanted to know was how long I had left and the Consultant told me worse case scenario was 4-4 1/2 years. When I spoke to the Clinical Lead where I work I was very surprised that her aunt had been living with myeloma for the past 15 years and a family friend told me they were living with it for over 9 years which gave me more hope. I am like you looking forward to Christmas and spending quality time with my family. It’s shocking how something like this make you realise that time is so very precious and intend to grab it with both hands and enjoy. I wish us all a very good Christmas and a healthier new year.

[Author]

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