Dear All Michael is asleep at the moment so I thought I would give you an update. The last couple of weeks have been mixed, I havent managed to visit the hospice yet as we have been snowed in, but hopefully now the weather has changed i might get the chance.
As you all have said th mac nurse and the district nurse have been brilliant I cant thank…[Read more]

Hi All Sorry havent replied, what a week!Saw the GP Friday (needed a sick note for work been off with stress since Michaels prognosis) He refused saying i was now a carer and this could be long term? I looked at him and then he asked what the oncologist had said? I wanted to say he doesnt see one but I was to upset, although im 60 I have supported…[Read more]

Dear All Thank you so much for your replys, I would like to wrap you all up and have you posted to my address, sounds silly but would love to meet you all.
have made the decision to ring the Macmillan nurse on Monday. Gill the hospice sounds good. were the same as you we have nowhere to put a hospital bed or a hoist for the shower. At the moment…[Read more]

Hi Tina just read your post,how lucky is your brother living in Cornwall. Michael and I spent our last "normal" week away last June in Falmouth, we both loved it so much. I am so pleased you had a lovely time
Happy New Year
love
Suex

Good Luck on the Bendamustine Dai

Love
Suex

Hi Tina I dont know what I would do without this site you are the only people who understand what im going through. There are so many questions I want to ask but then I think do I want to know the answers. I feel myself start to panick when there is just the two of us especially at night. Who do I ring if anything happens 999, the district nurse,…[Read more]

Hi All Thank you for your replys, Christmas wasnt to bad i kept myself very busy so didnt have time to think, but New years Eve not so good. Went to bed about 10 o clock just lay awake then listened to all the fireworks going off thats when it hit me, Michael was sound asleep (mophine Induced) I just let the tears roll, time is passing so quickly…[Read more]

Dear Mary Thank you for your reply, it must have been so hard for you. I cant imagine what pain you are feeling, my heart goes out to you
Love
Suex

Dear Dai So sorry your in hospital again lets hope they clear the C diff altogether this time, and you start the Bendamustine with a clean slate

Take Care
Suex

Dear Keith What a few ,weve had a few of those with sepsis, terrifying
to say the least,.Take care of yourself

Thinking of you

Suex

Hi All thank you all for your replys, i feel so much better when ive been on the site. Tina and Eve if you read this post im having problems with my emails.
Michael had to have a blood transfusion yesterday the ambulance fetched him in his weelchair, as he struggles to walk now, but he seems quite well today very tired though.His pain ismostly in…[Read more]

Hi Eve Thank you for replying to my post, its 5pm here so i would think its about 4am there and hopefully you are both fast asleep.
ive never heard of a driver?
And your so right about making the first move with people, I spoke to my neighbour yesterday and she came round with some homemade scones today, which i might ad she has never done…[Read more]

Dear Tom you are such a lovely man,thank you for my hugs.
Tina and Gill you have both been through so much, it really does help when I read your posts.
Managed to get some fresh air today, even if it was just to fetch a news paper, but it did clear my head a little.
Regarding Michaels pain. his GP is now in control of that, well hes on mst and…[Read more]

Hi Charlie My husband has had 3 DVTs first caused by Thalidomide, he was given clexin (think thats the right spelling such a long time ago)injections, he then went onto warfrin, which he has taken through all the trials he has been on apart from the last one which was very new and they did not know how the warfrin would react to the drug so he…[Read more]

Hi Dai

Sorry to to hear you have had to stop Revlimid. I hope the Bendamustine
works well for you

Good Luck
Love
Suex

Hi Thank you all for your kind replys. Michael has been getting alot more pain recently, but he has coped really well. The worse thing is the panic attacks he cant let me out of his sight. He cannot walk very far but ive managed to take him out in the car, at first id take him to a coffee shop but his appetite has almost gone although he has a…[Read more]

Good luck Keith fingers crossed
Love
Sue