I had my SCT on Oct 10th.
Came home on 31st Oct feeling 'rough'.My appetite was zero although I was and still am drinking loads. At this point I was being sick a lot and had the 'runs' very badly.

Now 7 weeks on, I think I have turned a corner. Still not eating much, cereals and porridge are my favourite. But I have found the Weight…[Read more]

Since my SCT last month, I have suffered from bad breath. I brush my teeth twice a day and use a mouth wash.

Anyone any ideas? It must be a side/after effect of the chemo drug used just before the transplant.

Take care everyone
Love
Tina

Hi.ALL,

Been home for abount 3 weeks. Stil not feeling well, Not eating, but drinking plenty of whole milk Coffee,
Can manager cerereal and a banana with ice cream.
Consulant said I had a bad time, and it will take me a long time to receover.

I am feling quite down about all this and find my self in tears. I also get to go bed and sleep…[Read more]

W'll after over 6 Months. Its finally over. had sct on 10th October.

NOT feeling so chipper after 2 days at home.

Any any advice for those of us with baby stem cells, no appitite, and still feeling so sick.

Feel very vuleranable.

Any any addvice

TinaP

Hi all,

I'm due in to have SCT on 8th Oct (Monday)

What should I take in with me?
Bought pyjamas, liquid soap,

Anything else? Do I stay in pyjamas most of the time. It seems a bit silly to dress if I'm not leaming my room for 2/3 weeks.

My mind is all over the place as you can imagine.

Thanks

Tina x

Hi All,

Just to let you know.I go into hospital on Monday 8th October for my SCT.

It's been a long road since April when I started on CDT. But here we are!!!

I feel nervous and excited all at the same time.

Oh and I have 2 lovely wigs to keep my head warm

Love to you all

Tina

Hi all,

It took two attempts to get enough stem cells. But after the second try on Tueaday I have enough for 2 transplants.

The next stage is 5 small blasts of radiotherapy next week, starting on Monday.

I have been told to expect to feel tired and nauseaus.
Is there any other side effect I should be prepared for.
The radiotherapy is on…[Read more]

Went to hospital today for blood tests and was told my line would be put in
on Thursday 6th.

Back on Friday for Cyclo…(can't spell) and will stay in till Sunday.

After that, its all a bit of a blur at the moment. Such a lot to take in.

I've to have radiotherapy on my spine at some time too.

Any advice would be most…[Read more]

Hi all,

Did anyone else suffer from loss of appetite after finishing CDT.

I have been off it now for 6 weeks and the thought of a cooked meal makes me feel sick. I am now on slow release morphone night and morning for severe back pain.

Sorry for the moan. I do feel low sometimes with the constant pain in my back.

Take care all of you

Tina

Hi,
I am off to Dorset for 10 days, before they start on the next stage of preparation for SCT.

Hickman Line being fitted on 6th Septmeber, then I'm not sure of the timescales after that.

So I am going to have a break, and try not to think about it too much.

Watch this space…..

Love to you all

Tina

Hi all,
I have been off CDT for 4 weeks. Some of my strength has returned, and I think the puffyness round my face and tummy is going,

But I still don't feel right. I have felt tearful on a few occasions, and
very tired. I could sleep for England the way I feel.

I thought that when I came off the chemo I would start to feel fine.

I…[Read more]

Hi all,

I have been off CDT for almost a week now, but sometimes when I get out of bed, or move my head suddenly, I go dizzy. This morning, I was pulling the curtain, and ended up half on the floor and half on the bed,

Is this normal!!

Thanks

Love
Tina