Hi Vicky
So glad to see you have Colin home at last. Take each day as it comes I am sure you will both get through the ups and downs.
He has certainly been through the worst now.

take care

Jacquie & Geoff x

Thanks for your reply Ali my partner is on cycle 5 now but he finds it really hard fighting this. Just hope we can progress soon. Hope your mum is doing well,

regards

Jacquie

Hi we went to the Birmingham one the other week found it really helpful and interesting and on the plus side met other fellow suffers. My partner has the Myeloma I would recommend to anyone who gets a chance to go.

Hi Lizzy

Its my partner Geoff that has the MM he too had the same allergic reaction to the Allopurinal he was in a right state rash all over he was taken to hospital and kept in 4 days he is on the Revlimid too and has stayed on this he started with a level of 109 now after 3 months of Rev he was down to 13 so it does the job! Just going back…[Read more]

Hi Vicki
Good to hear things are going to plan for a change. Check in every day to see if you have updated as Geoff is keen to see how things are going. Stay strong and healthy take some rest whilst you can.
love Jacquie x

Hi Vicki

Great to read that Colin is now on the ward. No doubt today he will have his stem cells infused. The time will soon pass and he will be home again so keep cheerful. We've just come back from 2 weeks in Cyprus which just goes to prove that there is life after HDT&SCT !

Please give my best wishes to Colin and keep well…[Read more]

Just to wish you good luck and hope Colin's SCT goes to plan will be checking in on his progress x

Truly wonderful news. I've been reading your thread and worrying about your joint ordeal. You've had an incredibly difficult time but your determination is an inspiration to us all. If I understand you correctly, like me, you found the staff at Southmead to be amazing.

Colin will indeed be exhausted from his efforts and I add my hope that he…[Read more]

Fantastic news so pleased it all worked out in the end. Next step SCT time to relax a bit now. will be keeping check on your posts. best wishes Jacquie

Hi Vicki and Colin
Thats great news, Hope tomorrow brings many many more! at this rate it will be all done by Christmas. Keep strong thinking of you both.

Hi Mike

my partner was diagnosed with MM in July he is on the Myeloma X1 trial and he got the RCD his paraprotein levels are responding well. I notice you are from the West Midlands do you know that Myeloma UK are holding an info day on the 20 October 2012 at the Hilton hotel near NEC? you should meet others with same condiition and hear…[Read more]

Hi Vicki

Just wanted to say hope all goes well tomorrow will be thinking of you both. 🙂

thats great news hope all goes well. We were in clinic this week and Dr Chown told us they are changing the clinic to a Trials Clinic on Wednesday afternoons from next month. Sounds a great idea as other MM sufferers on the trials will all be at same clinic. Geoff's Para Protein level is on way down nicely so hope to get to SCT soon.

sorry to hear things havent been going very well with Colins STC hope everything works out x

Hello Amanda

Like your husband, I'm also on the Myeloma XI trial. I've just completed High Dose Therapy and Stem Cell Transplant and was discharged on 18th July. I must now wait until day 100 to see how well I've responded to treatment and whether I'm to be randomised for maintenance therapy.

As Eve has said, each patient's response to…[Read more]

Hi Tina

Like you I'm on the Myeloma XI trial and was discharged from hospital on 18th July following High Dose Therapy and Stem Cell Transplant.

It would seem that you are being admitted for Cyclopriming. This is a fairly large dose of Cyclophosphamide which will give your stem cells a kick start. It is common for this to be administered…[Read more]

Hi Michelle

Thanks for your response, Geoff had the rash from head to toe! it was so horrible, I am glad it will get easier I think once Geoff accepts the diagnosis it will get easier still.

I also know Dorset a lovely part of the country have an Aunty in Swanage.

Hope all is well with you x

Thank you for your reply hope everything goes well with Colin's SCT. Will keep in touch (if you dont mind as its nce to know someone local going through the same). Geoff attends the EJU as well and is only just started his second cycle. I still cannot believe all this it turns your life around.

Thank you Jo he is on Dex