[VickiParticipant]

Hi Dai and Tom,

Wouldn't that be great if that were the case :-). If I have a magic wand I'd wave this mm goodbye for all of us….sufferers and supporters :-).

What strikes me is that when I read about mm before Colin's diagnosis it was supposed to be an 'older' persons condition. People seem to be younger and younger :-(. Still on a positive note someone needs to hurry up and find this cure, lots of living to do 🙂

In the meantime where's that bottle of vodka 🙂

Vicki and Colin x

[VickiParticipant]

Hi sky blue

So sorry to hear of your news and your grans recent news. I truly believe this mm is genetic. I read and article about 18 months ago that talked about mm being potentially genetic. It's a truly horrible condition….I heard an interview on radio two today. Lord saatchi I think it was. He was quite downbeat about the progress for treating cancer. However we all need to truly believe there's a cure there.

I'm with Tom….keep an eye on it.

Best wishes

Vicki and Colin xx

[VickiParticipant]

Dan

That's wonderful news? Is that derriford in Plymouth? If so we are told that's one of the largest oncology centres in the southwest with a good reputation. You and your dad seem to be doing great. We hope you are feeling ok dan…..I was shattered when colin was going through his treatment and transplant so you must be tired too with exams etc. I know everyone says it but make some time for yourself too 🙂

So pleased for you and your dad

Vicki and Colin xx

[VickiParticipant]

Hi jacqui and jeff

Just wanted to wish you all both all the best for your sct….it will soon be over 🙂

Vicki and Colin xx

[VickiParticipant]

Hi Helen

Can't give you advice on the treatment…..but glad you had a great holiday, and that you are gripping yourself and getting ready for this next course! Re work it can only be your decision, but if you feel you want to go to work, you are well enough to go to work and you can fit around your treatment then why not. Do you do part time? Maybe that would be the right balance. At least going to work can give an additional welcome distraction from this condition? 🙂

Not been on site recently ipad went wrong and too lazy too turn the main computer on 🙂

Vicki and Colin xx

[VickiParticipant]

Hi Sarah and Henry

Yep same as babs, we got counselling for Colin through the hospital and the stem cell nurse. Both of them were great….it really helped Colin and still. Does. Best route as they get what's going on x

Vicki and Colin x

[VickiParticipant]

Hi Dai

That's so of great isn't it :-). ? hope things go well for you with the treatment and even equally good you can see the grandchildren, do visits etc. great 🙂 why they didn't give you those gcsfs before I don't know eh?

Helen, how did you get that black eye? Glad you had a great time in Cornwall. Good luck with the treatment …..not a nice thought but let's see that mm disappear 🙂

Vicki and Colin xx

[VickiParticipant]

Hi Ali,

Hope your mum is ok….has she been on the cruise yet? Lost track!. Colin and I read early on the issues of revlimid and the secondary cancers…..it was a concern but during maintenance treatment we were just glad it seemed to be doing the trick!. However when it got to maintenance treatment Colin had other ideas about taking it as maintenance. He felt that the quality of life would be reduced as it used to knock him right down….so he elected not to and the consultant agreed. In terms of the trial team they were ok, and Colin still gives the samples required as part of the trials just not taking the maintenance drug!

Can't really say if that the right or wrong decision but it was the right one for Colin:-)

Best of luck and hope you and mum are all ok 🙂

Vicki and Colin x

[VickiParticipant]

Hi there,

So hope that you are able to progress this with the nhs. Colin's story of diagnosis was much more different and efficient. He went for a blood test on a Monday, phone call Thursday, follow up test flowing Monday, 24 hr urine test in the same week. A leaflet from the Gp following Colin's insistence suggested mm and then2 weeks on he saw a consultant. So within about a month end to end he was diagnosed. The Gp was excellent! I think the advantage though was that Colin's Gp had some experience of working with cancers and this type. We were'lucky' and thankful.

Sadly it's not always the same….best of luck 🙂

Vicki and Colin x

[VickiParticipant]

Hello Nicky

So sorry to hear of your loss. Mm is a very unpredictable condition and your brother so young. Our thoughts are with you.

Vicki and Colin x

[VickiParticipant]

Hey Tom,

Thanks, glad you are still feeling good. You are a great support to all of us. Colin been good again today….did gardening! :-). Me running about after him fussing…..no change there! We did enjoy the sun and we did have some wine :-), after the yard arm.

Hope you and young bride Elaine had great weekend too 🙂

Vicki and Colin xxx

[VickiParticipant]

Oh dear

I have thought about Keith every day since Ellen's post…..we are both so sorry, condolences to sue. This illness is a b.

Cyber hugs to all

Vicki and Colin x

[VickiParticipant]

Hi Sarah Jane,

Try not to worry this is what happened to Colin too. First harvest failed miserably, second one even worse! Third go he had to have plerixafor injections as well as gcsfs! He just got the 2 million! It is distressing as we didn't know it could fail until the first one bombed 🙁

By the way the same thing happened with Colin's hair , we thought he'd got away with it and then he phoned me at work to say it was coming out in clumps! He had some snazzy hats. Glad to hear your. Little girl is ok with it…..it must be hard for you to explain. However I reckons kids are more resilient than we adults.

Best of luck with the next harvest

Vicki and Colin x

[VickiParticipant]

Hi Dai

Well a bit of a rocky road…..but the gcsfs at last are a welcome boost and let's hope rockets those neutrophils. Your new consultant sounds very proactive, so lets hope she can come up with a cast iron plan. I can't understand why they don't just let you have another go at revlimid. You were hampered last time due to the c diff so I think you haven't had a fair crack of the whip….

Glad you are feeling good too 🙂

Colin seems to have turned that corner…..fingers crossed. 🙂 he has lots more energy and not sleeping anywhere near as much. We've been out 3 times this bank holiday weekend and he is still full of beans. I feel so happy and at the same time emotional…normal things for most people but great leaps for us 🙂 enjoy the sunshine Janet and Dai x

Vicki and Colin x

[VickiParticipant]

Hi there,
Sorry to hear about your mum….I wonder if its to do with platelets? The medical teams are great and checking out what the cause is and we hope she will be on the straight and narrow soon 🙂

Vicki and colin x

[Author]

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