[VickiParticipant]

Hello Tanya and dad,

So very sorry to hear of the difficulties you are doing through……is your dad able to look objectively at the situation? Is there a problem with alcohol? How would he react to someone coming to see him about it? The trouble is, he has to be the first one to admit it if there is a problem

Making it difficult for the health professionals and carers to help does not help his situation…..or yours! Mm is a very harsh condition and it takes no prisoners. You don't say why they have suspended the velcade….is it due to his bloods? Is there no way they can hospitalise him for a while to get his mental and physical situation under control?

Best of luck to you both 🙂

Vicki and colin

[VickiParticipant]

Jean and frank,

Just popping in to say thinking of you….hope frank is feeling a little better. Glad he's not a rugby fan….we are not happy with the latest England result!….sorry Dai 🙁

Vicki and colin

[VickiParticipant]

Hooray

So pleased to hear you are home Pete…..and a glass of lager! Well done you. You have done well, just relax and take time to get better slowly. It will soon come and you will be out on that golf course! At least you managed to stay at home….we were back in the same day first time round 😉 I've been rough all week, just starting to get a bit better. Not good though….I am sure part of its the stress of trying to be normal ha ha!

Biker chris…..hope you are feeling better :-). Just likes to keep us on our toes doesn't it.you take care,

All the best

Vicki and Colin xx

[VickiParticipant]

Well done Garry, you made it….what a result and beat toms days! 🙂 who is a show off then!

Remember to take your time, build up slowly and improvements will come. It has been a hard road but the real recovery begins at home 🙂

Vicki and Colin x

[VickiParticipant]

Hi there,

Good luck to your mum and her treatment. Colin had back ache and the diagnosis of mm two months later! Like everyone else it was a dreadful shock and a real roller coaster ride due tot the induction treatment and infections that followed. However Colin had a good response had he had a transplant in November 2012. Now well on the road to recovery. He had a fractured vertibrae in his back. Your mum will receive great support from the medical teams. Fingers crossed for you all

Vicki and Colin x

[VickiParticipant]

Hi there,

Welcome to the site, not a place of choice, but a comfort none the less. Congratulations on your complete remission, take each day as it comes. As Andy says they are all a blessing. Take it easy and build yourself up gradually

Vicki and Colin c

[VickiParticipant]

Hi jean and frank,

We feel for you, that time period of tummy trouble, sickness, pain etc is awful. I felt so helpless and Colin so wretched.it feels like it is never going to pass, but when the worst does pass it seemed to quite quickly in Colin's case. I also remember days when I had to help Colin dress, wash etc as he was just not up to it…..food was a no no for a good while. He still doesn't want jacket potato As that was the only thing that seemed on the menu when his blood went down, and they weren't very nice either (and the only filling was cheese!).

Frank will do well to sleep, that's healing and he's sleeping through some of the badness. Still not long now and your wait will be worth it. We gave up asking about the bloods.we thought we'd know soon enough and got impatient when they weren't coming up quick enough 🙂

Keep going and wise words from Dai as normal.

Keep enjoying the curries Peter x

Vicki and Colin x

[VickiParticipant]

Hi Ann and Peter

Well, is he home then. ? Hope you are both ok. This is where the true recovery begins, and Ann you finding out how tired you are too! I found that Colin began to eat slowly and surely, some ups and downs with the tummy troubles….even now! However the strength will start to retun if Pete is patient it's so exciting and boosting to see the improvements day by day….a glass of wine, a spicy curry, a hair cut….all little steps. So normal normally but not when you've been on the mm roller coaster.

Me been rough this week, some kind of vertigo, never had it before, horrible…keep us posted 🙂

Vicki and Colin x

[VickiParticipant]

Hey. Jacqui,

Well done, Geoff for his results and you for the support :-). Great, are you seeing Sian Middleton? Se is absolutely lovely and a great support. She probably thinks I M mad, so many questions! They are very supportive at the LINC and down at Bristol if you are having cells harvested there!

Keep up posted, Vicki and Colin x

[VickiParticipant]

Louisa

Hope your dad is continuing on the mend. It does take a long time for things to settle down and it seems like an age when they are in hospital! Colin hardly ate anything the whole time he was in hospital, was in a lot of pain, had said syringe driver and felt sick and tummy trouble! However once his bloods started on the up he did seem to improve. However it's only when you get home that real recovery can start….food here and there, small exercise routine, some ups and downs of not feeling well, feeling better and then down again…:-)

However this is all worth it and your dad will improve Day by day, Colin is now working 3 days a week in the office and some of days at Home….,still gets tired though. So best of luck to you.

Peter, you might be slow but you are making a sure recovery…..best of luck with the blood results. A positive attitude And mind is soooo important. Hope you enjoy your conference and best of luck with the blood results :-), worth celebrating you are doing well:-)

Vicki and Colin x

[VickiParticipant]

Hi George,

This has got to be a decision for your family, especially your dad alone……Colin took revlimid when he was having induction treatment and he was very successful on it. I would just say listen to what the consultants say and your dad has got to go on a gut feeling

Best of luck

Vicki and Colin x

[VickiParticipant]

Andy and steph,

Good to hear from you Andy, wondered what you had been up to. Glad it's not infection hospital visits! Those pps are pesky aren't they! Still so glad they have gone down again though! Hope you have a great time in the lakes, well as for Greece am certain that sunshine will make those pps come down still further! Colin is doing quite well, been to work 3 times this week and seems to be less tired. It's me that has been poorly this week……vertigo (labrynthitis) or something, going a bit now but it's horrible and never had it before…..inner ear problem so Colin has had to look after me 🙂

Take care and enjoy your hols 🙂

Vicki and Colin x

[VickiParticipant]

Hi Laura,

As jean said, read Colin's sct….I am Vicki of Vicki and Colin 🙂

We had never heard of mm before diagnosis, but boy do we now! There's no getting away from it, it's hard sometimes and scary and it really makes you feel angry, cheated etc….however, the induction treatment prepares you for sct. Colin had quite a few infections but as I have said before, the medical teams are very competent and swift at dealing with it. The sct wasn't easy as Colin failed to gather enough stem cells on two occasions, before the third just got him the 2 million required (2.1) to be exact 🙂

We battled through, the support during sct is great so I would say its well worth it, Colin is just past 3 months post sct and whilst its slow recovery it is getting there, being patient is the key. It's always an individual decision but any questions please ask 🙂

Vicki and Colin x

[VickiParticipant]

Dai,

Like the others have said….all bases crossed and keeping our fingers crossed for you. It's a difficult one as the others have said…..a fine balance between normal life and taking the sensible option. Hope you manage to avoid it and we see no posts from the WARD!

Ali, sorry to hear little lad been poorly, always best to keep bugs away…..Colin elected for no maintenance treatment but I'm still worried about bugs! Friends little grandchild had a bug and we only found out after…..there was a lot of finger crossing in our house too! How is your mum doing generally…..Colin had his first hair cut this week, never seem his hair so curly, said it was like a poodle, wrong thing to say ha ha 🙂

Vicki and Colin x

[VickiParticipant]

Phoebe,

What can I say, you guys are inspirational and you are both a great team

Vicki and Colin x

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