Myeloma Forum | Willisboy | Activity https://forum.myeloma.org.uk/members/Willisboy/activity/ Activity feed for Willisboy. Tue, 21 Apr 2026 11:20:38 +0100 https://buddypress.org/?v=2.9.4 en-GB 30 hourly 2 fdc3150634c75b9b5042ca63ad2d5256 Willisboy replied to the topic it's back in the forum General https://www.myeloma.org.uk/forums/topic/its-back-3/#post-133199 Thu, 27 Apr 2017 19:48:46 +0100 David,

I wish you all the best for your treatment in the coming months.

My Myeloma is in relapse too (diagnosed 2013 sct same year) I start on the Myeloma XII trial tomorrow with a second sct after this.

Please keep us posted.

God bless

Graham

]]> 813c7efdc9dd7a725711d84a9cdcf70d Willisboy replied to the topic Finally saying hello. in the forum Newcomers http://www.myeloma.org.uk/forums/topic/finally-saying-hello/#post-119849 Sat, 06 Dec 2014 10:41:11 +0000 Noel,

Treatments are getting better all of the time.

My Myeloma was described as aggressive, I was diagnosed in March 2013. Received the SCT November 2013. Returned to work (part time) in June 2014 and will return to full hours in January.

Keep being positive and remember those still in remission after 21 years.

All the best

God bless you

Graham

]]> 7a7a842561ee34dc5e970b1a5de1bf1c Willisboy replied to the topic Getting better for now. in the forum Newcomers http://www.myeloma.org.uk/forums/topic/getting-better-for-now/#post-119848 Sat, 06 Dec 2014 10:37:25 +0000 John,

Enjoy your TV!

I am sure you will be around for many years to come. Thibk positive at all times.

I was diagnosed March 2013, SCT November 2013, returned to work (part time) June 2014 and will return to full time work in the New Year.
I am feeling fine.

All the best

God bless you

Graham

]]> cf26abb109e73de85560735794acbf85 Willisboy replied to the topic Preparing myself for my stem cell transplant in the forum Newcomers http://www.myeloma.org.uk/forums/topic/preparing-myself-for-my-stem-cell-transplant/page/2/#post-119847 Sat, 06 Dec 2014 10:32:38 +0000 Hello everyone,

Sorry I have not been around for a long time. How the time flies.
Over a year since my SCT and everything is going really well. I am in remission, the Doctor called it a plateau.

I returned to work albeit on a part time basis in June. I shall return to full time hours in January.
I see my Doctor again on Tuesday who I see every…[Read more]

]]> 4e5c10e983b59121afc998df68f59549 GrahamBurningham replied to the topic Mum considering refusing Myeloma treatment - what can I tell her? in the forum Newcomers http://www.myeloma.org.uk/forums/topic/mum-considering-refusing-myeloma-treatment-what-can-i-tell-her/#post-118067 Thu, 11 Sep 2014 12:44:01 +0100 Nick,

I too wish you all the best with persuading your Mother to start the treatment.
I was diagnosed with Myeloma at the age of 50 in March 2013. It did cause some bone damage and was described as aggressive as it was spreading. One Doctor told me that if I had been 65 then I probably would not have made it.

But treatment for Myeloma is…[Read more]

]]> 17c81eb139c4e5273b77982eb1ddc570 GrahamBurningham replied to the topic Relative newly diagnosed and we dont have a clue! in the forum Newcomers http://www.myeloma.org.uk/forums/topic/relative-newly-diagnosed-and-we-dont-have-a-clue/#post-116325 Mon, 30 Jun 2014 13:43:14 +0100 I have just returned to work after 16 months off with Myeloma. I am in remission.
I am 52 years old and I too plan to have many good years ahead of me.
My advice is to be positive, lead as healthy lifestyle as possible and come to sites such as this for advice.
As a previous post has said, be aware of some sites as their information is out of date…[Read more]

]]> 1cdceb26c6a96c8e200ff277c9ab8574 GrahamBurningham replied to the topic New member in the forum Newcomers http://www.myeloma.org.uk/forums/topic/new-member-2/page/3/#post-112345 Fri, 31 Jan 2014 13:53:20 +0000 Sarah,

I am very sorry to hear of your husband being diagnosed with MM, especially at such a young age.

I was diagnosed last March at the age of 50, and that is considered young for MM.

My advice is to remain positive and plan for the future. I vowed to remain positive throughout mine, which I have apart from a few low periods.

Just…[Read more]

]]> d27ca4378824ad95d1c7740799469ee2 GrahamBurningham replied to the topic Preparing myself for my stem cell transplant in the forum Newcomers http://www.myeloma.org.uk/forums/topic/preparing-myself-for-my-stem-cell-transplant/page/2/#post-112198 Fri, 24 Jan 2014 16:48:22 +0000 Emma,

I am doing very well thank you.

I had a Autologous stem cell transplant, using my own stem cells.

This was the one I was told was the best for me so this was the way I went.

So far, at least, it has been successful.

In the early days the other was mentioned but my Doctor decided early on to take the Autologous way.

I know little of the…[Read more]

]]> de40023771d80ecccf93e50595dfa39d Willisboy posted a new activity comment https://forum.myeloma.org.uk/activity/p/393/#acomment-423 Sat, 04 Jan 2014 20:10:24 +0000 Izzie,

The name Willis is my middle name. It was a name that had been in the family for generations, I got it at my Granddads request to keep the name in the family.
I only had one daughter, so the name won’t carry on in the family unless my daughter has a son in the future (she is only 12 so that will be a long way off).

The sleeping and lack…[Read more]

In reply to - Willisboy replied to the topic Diagnosed April 2013 in the forum Newcomers Dear Izzie, Happy New Year! When I was diagnosed in March 2013, I too started positive! I have remained so for the most part but there […] ]]> d5a9870abf5c5f33d887ff17f8eb7da3 Willisboy replied to the topic Diagnosed April 2013 in the forum Newcomers http://www.myeloma.org.uk/forums/topic/diagnosed-april-2013/#post-111674 Fri, 03 Jan 2014 10:57:41 +0000 Dear Izzie,

Happy New Year!

When I was diagnosed in March 2013, I too started positive! I have remained so for the most part but there are times when my head would start to go down.
It gets harder as time goes by.

Just keep believing and working on it and you will always pick up again. I have been down that route myself.

Don’t bottle things…[Read more]

]]> 8eec30a2820e87c86aaede2aa8eebcae Willisboy posted a new activity comment https://forum.myeloma.org.uk/activity/p/366/#acomment-373 Tue, 31 Dec 2013 10:12:02 +0000 Lynne,

I wish you all the very best for your stem cell transplant.

My experience was that it wasn’t as bad as I feared it would be.

Remain positive! It brings remission all the closer.

Good luck and have a wonderful 2014 – you and your family.

God bless you

Graham

In reply to - Willisboy replied to the topic Preparing myself for my stem cell transplant in the forum Newcomers Thank you everyone! I am progressing okay. I still get little infections, I have had one for the last four days […] ]]> 4584cd7d9f831cb61483e87a963d3b20 Willisboy replied to the topic Ian out of hospital in the forum General http://www.myeloma.org.uk/forums/topic/ian-out-of-hospital/#post-111653 Mon, 30 Dec 2013 12:30:19 +0000 Maureen and Ian,

Hope you had a good Christmas and that the New Year will be good for the both of you.

Please keep us updated.

God bless you

Graham

]]> adefbbc864c19e0a534b1200c656eda3 Willisboy replied to the topic Preparing myself for my stem cell transplant in the forum Newcomers http://www.myeloma.org.uk/forums/topic/preparing-myself-for-my-stem-cell-transplant/#post-111651 Mon, 30 Dec 2013 12:26:06 +0000 Thank you everyone!

I am progressing okay. I still get little infections, I have had one for the last four days but am better today.

I stopped taking the Morphine Sulphate tablets (pain killers) but my back is starting to ache again so I may have to go back on those.

I next see my Doctor at the hospital on 7th January 2014.

Hope you are all…[Read more]

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