alanjamesbyrne started the topic 3 months after treatment in the forum Treatment 9 years, 10 months ago
hi all I had my treatment in the beginning of March at Southampton general ,chemotherapy,and stem cell replacement ,( my own stem cells ) after a 3 week stay in hospital ,which I must say was difficult but staff were excellent,still on numerous drugs taste buds nearly back to normal ,still get tired ,appetite is getting a lot better ,oncology this…[Read more]
alanjamesbyrne replied to the topic Help Needed for Market Research Study in the forum General 10 years ago
Not to sure what to expect now ,I’ve had chemo and stem cell replacement ,3 weeks in hospital ,and I’ve been home 5 days ,I get very tired ,I’m not really eating ,just don’t have an appetite ,taste buds are shot ,and I drink like a fish ,lol went back to hospital yesterday,for blood test and every thing is moving along nicely ,got oncoligy next…[Read more]
alanjamesbyrne replied to the topic Day 5 of treatment chemo and stem cell replacement done in the forum Treatment 10 years ago
Sorry I missed one very important bit the staff on C6L at Southampton genral hospital have been fantastic ,and nothing was or is to much trouble ,I could not have asked for better treatment or care ,thank you one and all
alanjamesbyrne replied to the topic Day 5 of treatment chemo and stem cell replacement done in the forum Treatment 10 years ago
Well through the worst now hopefully. Will be allowed home tomorrow ,can’t wait ,after nearly 3 weeks so fingers crossed when the Drs do there rounds ,it’s been a long hard struggle at times ,but don’t regret anything of it ,it’s fantastic what they can do ,and very greatfull for the chance ,to prolong my life ,I could not have done it without the…[Read more]
alanjamesbyrne replied to the topic Day 5 of treatment chemo and stem cell replacement done in the forum Treatment 10 years, 1 month ago
Thanks Matt ,the boredom bit is the worse ,but doesn’t seem like I’ve been here a week tomorrow ,so fingers crossed that every thing stays or progresses and only a week to go ,I think it seems harder as it’s the weekend ,not much football to watch today ,to break the monotony ,onwards and upwards
alanjamesbyrne started the topic Day 5 of treatment chemo and stem cell replacement done in the forum Treatment 10 years, 1 month ago
Morning every body day 5 for me and doing fine ,I had the DR round yesterday and he said they are looking to kick me out a week Sunday ,yessssss,so only a 2 week stay instead of 4 ,,that’s if nothing crops up so fingers crossed on that one ,I realise that this treatment effects every body differently ,and so far I’ve sort of breezed it ,little…[Read more]
alanjamesbyrne started the topic Stem cell harvest complete in the forum Treatment 10 years, 1 month ago
finally managed to get enough stem cells after 3 goes,back to oncoligest tomorrow to see when we start stem cell replacement ,starting to get a little worried now ,not looking forward to the high dose of chemo
alanjamesbyrne replied to the topic getting ready for stem cell harvest in the forum General 10 years, 1 month ago
Thanks Ron ,I’ve been on chemo tablets 2 types for 4 months now ,just had the medium dose chemo by drip with no ill effects with any of it ,apart from my taste buds ,which drives me mad,I do know that the next one is the biggie and effects every body differently ,hoping that I get an easy run with that one as well ,with no ill effects ,I also had…[Read more]
alanjamesbyrne started the topic getting ready for stem cell harvest in the forum General 10 years, 1 month ago
Hi all ,had the the medium dose of chemo yesterday in preparation for stem cell harvest, feeling ok at the moment ,loads of drugs and start a course of injections today ,stem cell harvest next Monday ,/ tues/weds depending on how much we get ,they said my yield is likely to be low as ive had radiotherapy,so might night get it in one go ,following…[Read more]
alanjamesbyrne replied to the topic POST STEM CELL TRANSPLANT in the forum Treatment 10 years, 1 month ago
Hi Angela and graham I am very pleased for you and graham have a great birthday and holiday ,can’t wait until I can have a holiday again ,getting fed up with being prodded and poked about ,I’m lucky that I don’t have much hair anyway ,and have shaved my head for a few years now ,start chemo priming tomorrow and the injections and other drugs…[Read more]
alanjamesbyrne replied to the topic POST STEM CELL TRANSPLANT in the forum Treatment 10 years, 1 month ago
I had a few words with the oncoligest today ,when I saw him last week he said I would have the big dose of chemo next Monday ,and then stem cell harvest a week later ,and then two weeks later stem cell replacement,I thought it does not sound right,my sister agreed with me that was what he said ,turns outi have a medium dose of chemo Monday ,and…[Read more]
alanjamesbyrne replied to the topic Treatment and chemo in the forum General 10 years, 2 months ago
Thank you Stanley ,much appreciated
alanjamesbyrne started the topic Treatment and chemo in the forum General 10 years, 2 months ago
hi all ,due to start stem cell next week ,can any body tell me why ,I am having chemo and then the stem cell harvest on a day visit to hospital ,I thought when I had chemo they would keep me in as your immune system is non existent,seems strange that I have the chemo and then go back after a week for stem cell harvest ,and then wait another week…[Read more]
alanjamesbyrne replied to the topic POST STEM CELL TRANSPLANT in the forum Treatment 10 years, 2 months ago
Hi and thank you Nicky ,I wish you well on your treatment,and hope you have a speedy recovery,I am still a bit scared ,it’s all about the unknown ,I’ve been fine with all of it so far apart from bone marrow biopsy ,which bleeding hurts,and the other bit I hate is my taste buds ,which go to pieces when I am on chemo ,everything I eat or drink…[Read more]
alanjamesbyrne replied to the topic POST STEM CELL TRANSPLANT in the forum Treatment 10 years, 2 months ago
Hi all back from oncoligest today ,I have to have calcium drip tomorrow,then on Thursday I have to have a longline insertion fitted to my chest . Ready for stem cell harvest ,next Monday I have the chemo which will be on a day visit,and I start the GCSF injections on tues ,back again on 16 th for stem cell harvest,,then a small break till the 24th…[Read more]
alanjamesbyrne replied to the topic Stem cell harvest and replacement in the forum General 10 years, 2 months ago
Wife is fine ,I didn’t jump down her throat that much, lol just been talking to the hospital about a general anasetyic they said they could not do it as my blood was to thin after chemo,but would give me gas and a sedative,to help ,what a load of rubbish ,my blood would be the same if I have a local ,or a general ,I just think it’s to much…[Read more]
alanjamesbyrne replied to the topic Stem cell harvest and replacement in the forum General 10 years, 2 months ago
Sorry Keith ,one other thing I hate is my taste buds everything I eat and drink is terrible ,been back on chemo for a week after 2 weeks off ,and taste buds are crap again ,I’m lucky I live half a mile from the hospital so nice and easy for the wife ,Alan
alanjamesbyrne replied to the topic Stem cell harvest and replacement in the forum General 10 years, 2 months ago
Hi Keith ,and thankyou you have help put my mind at rest ,I’m not worried about the injections ,it’s the pain from the bone marrow biopsy,got an idea this one won’t be the last ,next time I will ask for sedation ,I’ve been positive all the way through ,but just lately dobut has crept in ,I know it’s the fear of the unknown ,the other thing I hate…[Read more]
alanjamesbyrne started the topic Stem cell harvest and replacement in the forum General 10 years, 3 months ago
hi all ,sorry if this is in the wrong place ,I’m due to start tests for stem cell harvest 20/1/15 ,and my pet hate bone marrow biopsy on the 28/1 ,hate that one oncoligy 3/2 to discuss results of tests and the next plan of attack,,I know I have to have a big dose of chemo, and a 3 week stay in hospital isolation ,not looking forward to it,but…[Read more]
alanjamesbyrne replied to the topic POST STEM CELL TRANSPLANT in the forum Treatment 10 years, 3 months ago
Thank you LEGAL ,happy new year