alexisw replied to the topic Advice Please! in the forum Newcomers 13 years, 6 months ago
Hello Nadine. Like everyone here sorry you've had to join but as I have found very quickly you feel you are amongst some supportive friends who understand! No one chats much in our clinic waiting room that's for sure. John my husband was diagnosed in 2007 when he hit his 60th. He was very fit and was lined up for a SCT. He was convinced it would…[Read more]
alexisw replied to the topic Joys of Revlimid Part II in the forum Side-effects 13 years, 6 months ago
Thanks to all of you. It's been really helpful for us both to hear of all your experiences. John read your comment about goldfish Carol and he knew exactly you meant although not quite so intense. He's had memory loss too but we can't entirely blame the treatment for that as he had a quad bypass 8 years ago and that definitely definitely made an…[Read more]
alexisw replied to the topic New to forum but no stranger to MM in the forum Newcomers 13 years, 6 months ago
Thanks Eve and Tom. I told John I'd 'signed up' and he said he'd be a bit too shy to post anything but was really touched (& surprised) to see some messages appear so quickly. Will investigate 'Who the heck are you' later!
Alexis
alexisw replied to the topic New to Forum in the forum Newcomers 13 years, 6 months ago
Hello there. So sorry to hear of your diagnosis. I have some idea of how you're feeling as I can still recall the shock when John was diagnosed. We'd never heard of Myeloma and even the consultant was shocked as he thought my husband had something else.
Like you I'm new to posting on the Forum but from the rapid raft of responses you've had I…[Read more]
alexisw started the topic Joys of Revlimid Part II. in the forum Side-effects 13 years, 6 months ago
As a newbie I'm probably out of line but the Joys of Revlimid string was so long I thought I'd start a Part II. Apologies if I have stepped out of line!
I had done a trawl through the posts and couldn't see any reference to people experiencing side effects that were akin to severe jet lag.
John (my husband) is just coming to the end of…[Read more]
alexisw started the topic New to forum but no stranger to MM. in the forum Newcomers 13 years, 6 months ago
Hello everyone.
I have been reading your inspring and poignant stories off and on for the past four years – ever since my husband John was diagnosed just about the time of his 60th birthday. I've never actually 'signed up' as I have always been a bit too busy as I had a job (albeit one where I worked from home).
In the early days I was on…[Read more]