Myeloma Forum | ali7 | Activity https://forum.myeloma.org.uk/members/ali7/activity/ Activity feed for ali7. Thu, 23 Apr 2026 21:44:49 +0100 https://buddypress.org/?v=2.9.4 en-GB 30 hourly 2 e5121ff4c6f3ed9e5c1bb1e5f8df4c2d ali7 replied to the topic Heading for treatment in the forum Smouldering myeloma / MGUS https://www.myeloma.org.uk/forums/topic/heading-for-treatment/page/4/#post-123142 Mon, 20 Jul 2015 14:04:50 +0100 Thinking of you Mike.  My specialist is now not sure if its smouldering myeloma or lymphoplasmasitic lymphoma.  Para protein still at 23 but luckily no other symptoms

Hope all goes well

 

]]> aceb5ae85a836f37b3e44bb2d3ced2cf ali7 replied to the topic Is this really happening? in the forum Newcomers http://www.myeloma.org.uk/forums/topic/is-this-really-happening/#post-122219 Thu, 21 May 2015 08:37:11 +0100 Hi Tony,

Haven’t been on the website for a while but have a mixed diagnosis now as they can’t decide whether it is smouldering myeloma or another type of  blood cancer.  I have been seeing a counsellor and this has really helped me to get my head around the diagnosis and to start and plan things for the future.  I am lucky enough to have a re…[Read more]

]]> 46b130085e36112b43e3559418ac8069 ali7 replied to the topic Heading for treatment in the forum Smouldering myeloma / MGUS http://www.myeloma.org.uk/forums/topic/heading-for-treatment/page/2/#post-122128 Wed, 13 May 2015 17:09:43 +0100 great news that must be a relief.  Definitely go on holiday with a more peaceful mind enjoy your self.

ali

 

]]> f6ae13699ec7fa3d782f975499ec9e0e ali7 posted an update: Hi All, Having a real blip with the diagnosis. Keep looking […] https://forum.myeloma.org.uk/activity/p/38697/ Thu, 23 Apr 2015 05:20:02 +0100 Hi All,
Having a real blip with the diagnosis. Keep looking at the figures but am now more confused with reading others posts.
Key numbers given to me are as follows
paragprtein 23g/l; kappa light chain 7.1g light chain 1.37 ratio 0,05. awaiting assessment of light chain. My bone marro aspirate shows less than 10% plasma cells with some…[Read more]

]]> 0 d9ed31edded522c31f272f0fa6701216 ali7 replied to the topic Is this really happening? in the forum Newcomers http://www.myeloma.org.uk/forums/topic/is-this-really-happening/#post-121832 Fri, 17 Apr 2015 15:04:33 +0100 Thanks so much for you post Carol that really does help me to try and put it into perspective.  Let’s hope  there can be a cure in our lifetime.  Good luck a lovely part of the world.  May I ask a personal question? How were you at diagnosis as I am thinking about retirement or carrying on working.

REgards

Ali

]]> 7486ab8945c551b3ff833a6df2c34809 ali7 replied to the topic Is this really happening? in the forum Newcomers http://www.myeloma.org.uk/forums/topic/is-this-really-happening/#post-121822 Fri, 17 Apr 2015 01:17:47 +0100 Dear Tony,

I joined the forum today – I was diagnosed on March 20th with smouldering myeloma after 2 months of blood tests and the bone marrow and bone biopsy.  I too am feeling a whole gamete of emotions as you can probably tell from the time of this post.  I have carried on with my normal life as a teacher but have found returning from the E…[Read more]

]]> f11ae35f681337d458805b62a01c6a3e ali7 replied to the topic Heading for treatment in the forum Smouldering myeloma / MGUS http://www.myeloma.org.uk/forums/topic/heading-for-treatment/page/2/#post-121821 Fri, 17 Apr 2015 01:04:14 +0100 Hi Mike,

thanks for your post I will look forward to reading your retrospective and will keep in contact

Ali

]]> d51f639e62cac405c8abf1dddea69156 ali7 replied to the topic Heading for treatment in the forum Smouldering myeloma / MGUS http://www.myeloma.org.uk/forums/topic/heading-for-treatment/page/2/#post-121807 Thu, 16 Apr 2015 13:41:37 +0100 Hi Mike,

Was diagnosed with smouldering on March 20th and am still coming to terms with what this means.  You seem to have lots of knowledge on the subject and will have to admit that I am somewhat overwhelmed with all the figures.  Decided to join the forum today as am feeling uneasy having had a CT scan last week.  My paraprotein is cu…[Read more]

]]> c813ba61ff366329e5611935b33d6b6b ali7 became a registered member https://forum.myeloma.org.uk/activity/p/38601/ Thu, 16 Apr 2015 13:33:03 +0100 0