[ammeParticipant]

Again I can’t thank you enough for both Kevin and Cygnet for their observations. It makes me feel less isolated.

I am compiling a list of questions for my next visits and will report back. This won’t be before May so I am going to enjoy myself til then!

Amme

[ammeParticipant]

Kevin and David thank you for your responses. I have seen my GP and she agreed that a second opinion would help the decision making process.

I also spoke to a McMllan nurse his afternoon who had worked in an Haematology Transplant centre and was extremely helpful. She has given me a link to a site called Uptodate where there is very well presented info on all aspects of Myeloma. She also encouraged me to consider a 2nd STC and said there are other drugs that can help Stem Cell release from your bone marrow.

I have concerns that I may not get enough stem cells. I only produced enough for one transplant the first time. She also said if they didn’t harvest enough but I have responded to treatment then I could delay SCT.

Will have to wait and see but again thank you.

Amme

[ammeParticipant]

Dear Heather,

i had SCT on June 15th.

The ‘ice’ you need are freeze pops. They help to reduce damage to your mouth from the chemo. I rang my hospital for an indication of how many. I took in 60 but only used 35 in an hour and a half. It has certainly paid dividends. My mouth feels coated but not sore.

The other things I would take in are plent of underpants and large pads. Tena lady for night time. This is because if diarrhoea. Not at all pleasant but keeps you clean. You may not be as bad. Mine has been awful!  Sorry.

I also formed a couple of WhatsApp groups as am not on Facebook. I play silly games on my phone and words with friends. I don’t have a lot of visitors as it can be tiring.

[Author]

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