Hi Keith.
Hopefully it's just a blip and not a relapse. My last PP reading was 41! I've never been below 36 🙁 I too have the dreaded BMB Tuesday might see you at the day unit. Hopefully we'll both get some good news.

Take care.
Andy

Hiya everyone.
Went for my regular blood test on Friday and everything was ok again – oh except my potassium was low. So I've had to take some extra tablets to boost my potassium – I'm also eating bananas. I finish my second cycle of rev/dex on Saturday and have been given an appointment for my zometa infusion and a bone marrow test next…[Read more]

Hi Eve and Slim.
I hope everything goes well for you both this week and Sunday is the start of good times for you both. Keep us posted.

Best wishes
Andy x

Hi Dai.
You sound like you went through a similar experience as I did a couple of weeks ago – though my temperature topped out at 38.9 Glad your on the mend now.

Take care
Andy

Hi Vicki.
A warm welcome to the forum. I have MM myself diagnosed October last year. There's not much I can add that hasn't been said already. Just remember everyone's journey through MM is different. Treatments vary some get bad side effects some get very few side effect etc etc. but whichever way the journey takes Colin keep the us informed…[Read more]

Hi Gail.
Welcome to the forum. I was diagnosed with MM October 2011 – 3 days before my wedding so my wife has been a carer since we married. Not a nice start to married life! I think it can be easier for the suffer than the carer at times.
Feel free to ask ANY questions on here come along for a moan a shout a scream! You'll always find an ear…[Read more]

Hi Rosie.
Welcome at last to the forum. I was diagnosed October 2011 so you've been on the MM journey a lot longer than me. I haven't had a sct yet as the medics are struggling to get my paraproteins down. I have been told sct can be quite difficult for some but not having been through it myself I can't offer an opinion on whether going for a…[Read more]

Hi Teresa
My sleep patern is all over the place some nights I sleep right through and others it takes a bit to drift off. I'm back on my dex for the next 4 days so I'll be needing my iPhone fully charged.
On the beer front I prefer the double brewed beers though the triples are good too. My wife Steph enjoys the fruit beers though she's a red…[Read more]

Hi Helen
My hair "style" has been the same for a long time 🙁 My brother and I used to be called Phil and Grant when we went out together! Aka the Mitchell brothers 😉 I can't remember the last time I paid to have my hair styled. I started to lose it in my early 20's. I'll look around for a picture of me with hair. It'll take some uploading as…[Read more]

Hi Teresa.
I'm feeling good now thanks. Just got in from a night out with my wife, brother and sister inlaw. I had a few beers, probably the most I've drunk since I was diagnosed.
I'm not going to comment on hair colour or style since I don't have either lol and that was before chemotherapy took its toll on me.
My wife and I have a few days…[Read more]

Hi Carol.
I'm on DEX time 😉 and also on facebook. So I've spent some time sending out friend requests. I'm on as Andrew Godfrey – same photo I think. So if anyone gets a strange friend request it could be me 😉

Take care all
Andy x

Hi Lexi.
I have multiple myeloma and my paraprotein level was 41 at last test! I started at 50 in oct 2011 and my paraproteins have proved a challenge to my medical team and I. The main thing to remember is everyone has a different journey and reacts differently to treatment. The target for me is to get below 10 and have a stem cell transplant…[Read more]

Hi Tina.
A warm welcome to the world of DEX. I've had my 4th round of DEX for my 2nd cycle of rev/dex therapy. It's 3:30am and I'm wide awake! I know I'll be sleepy all afternoon but as Tom says its worth tfe side effects for the good it does. I get chubby rosey cheeks too.

Take care
Andy xx

Hi Teresa
CDT is usually the first line treatment of MM – well it was for me – and is cyclophosphamide, dexamethasone and thalidomide.
Hope your coping ok.

Love Andy xx

Dear Eve and Slim.
We are so sorry to hear of your sad loss. Our thoughts are with you and your family at this sad time.

Love and hugs.
Andy and Steph xx

Dear Teresa and Pete.
We are so sorry to hear your dreadful news. It knocked the wind from my sails. I don't know what to say other than you are all in our thoughts and we hope that you knowing that can in someway help. There's no need to reply but I do hope you get this message.

Lots of love and good wishes.
Andy and Steph XX

Hi Stephen.

Welcome to the forum.
The important thing to remember about mm and the fight against it is that everyone's journey is different. Drugs that work marvellously for one person fail to make an impression on another. I know I seem to be in the later group 🙁 Velcade didn't work for be and now I'm trying Revlimid and Dex with my…[Read more]