Hi Andy and of course the family and extended family of Our Dai.

Yes I spent a lot of Today thinking about Our Dai and the strength,wisdom and knowledge he passed onto to us all even when he wasn’t so well himself.

That and all you others that helped and are still helping is a great strength to us going through our treatment.

Our Dai will be up…[Read more]

Hi Angela
Well you ought to tell my young bride to listen to cos she dunt ha ha.
Well am sure you have seen my post telling you I am going back on treatment, but I have had a great four years and am well rested for the next road to remission am just taking a bit of a detour

Hi Tom,
So sorry to hear this, you are always so positive and I am sure your approach to this dreadful MM, will have you back in remission in no time xx 😉

Thinking of you, good luck

Love and best wishes

Karen
xx

Hi Eve:: well am sure he said pet scan?? but we will see lol, yes i know it should give me another two ish years and am happy with that as we never know what will come next (that cure sounds good though) I have a good sprint on Eve dont worry about that and when it gets too close I will turn round and hit it head on and trust me the Myeloma aint…[Read more]

Hi folks
Thanks for your support it really means a lot.
Carol I do feel blessed four good years was more than I expected and to be honest it’s not that much of a shock to us.

I am being treated in Scunthorpe General under Dr Jalihal and the Velcade would as he said in 1998 be his first choice but at that time they wouldn’t let him.
As for the…[Read more]

Hi Pauline and Marc

Well a warm welcome to the forum, pull up a chair and get comfy, great folk on here that can and will help you both get through this.

Yes I got a bit "Blown up" when I first had my first line of treatment CTD then SCT all in December 09, and as of now doing great and Drug free 😀
Stay well

Tom Onwards and upwards…

Charlie & Mary

Am pleased all is well, and I bet you loved looking after the Kids.
as for the Levels I know nowt about them am sorry to say.

Keep well

Love Tom Onwards and upwards x

Keep on keeping On and you stay well, am sure some folk have escaped it with little side effects lets hope you are one of those.

Tom Onwards and Upwards xxx

Hi Gill and Dave

Am pleased you mad your choice, and I hope you get many a year out of it.
Good Luck in your Road to Remission.

Tom Onwards and Upwards x

And a Thanks from me Alex, I always wondered what is the best way to help bones when they are dodgy as my Grandkids call them.

Tom Onwards and Upwards 😎

Thanks for the Link Tom will have a read Lata

From one Tom to another, Onwards and upwards

Hi Eve
Well for me I think NICE has got too tight a hold on the why's and wherefore of peoples treatment.

I don't know how many are on the NICE panel nor how much they get paid?? but that must be coming off the central funds, I say let our Dr's and Consultants say what treatment is best for us.

Tom Onwards and Upwards xx

Mandy it dunt matter what junk you eat it puts the weight on before you lose it.
Can I just remind you to use Mouthwash please use it every time you go into the bathroom, every time you have nothing to do and every time you get up to walk around the room, use it as if its going out of fashion and hopefully like me you will have little mouth…[Read more]

Hi Jo

Yes we can wait as we know its going to be ok 😀 just means we will have a weekend of celebrations 😛 and that can't be bad can it he he.

Hope your still doing well.

Love Tom xxx

Hey Mandy

Don't rush that poorly bit lol, it will be here before you know it. Hope you are eating as much as you can and some as soon you won't want to eat.
Hope your X ray is ok, stay well and strong.

Love Tom Onwards and Upwards xxx

Hi Gill and Dave

It isn't a walk in the park but its a doable, I had mine in Dec 09 and am now still in remission and doing great thanks to my SCT.
Would I do it again ? In a heartbeat.

Good Luck with it all.

Tom Onwards and Upwards xx

Hi Eve

I also am "Thick Skinned" but I like to say to folk "You wont bother me because I am Thick Skinned" and that Gap between the two words works wonders for me Ha ha. I know you have a soft centre 😀

And trust me the Vodka is Good for well me Lol

Love Tom xxx