tom replied to the topic Lightly chained to the Roller Coaster Ride in the forum General 11 years, 6 months ago
Hi Helen
Yes I agree Eve should be bottled 😀 but don't let me get her mixed up with my Vodka Lol.
Am pleased you would talk to me Helen but would you still next time we met lol. I always go on my own to Hospital as the young bride (Elaine) looks after our Grandson on those days :-D, and I let him pull any plasters off that I might be…[Read more]
tom replied to the topic Anxiety in the forum Side-effects 11 years, 6 months ago
Hi Mandy
Pleased your Doing good 😀 you ought to take some photo's of Liverpool while you are that High up it would be great to see them 🙂
Stay Well and keep strong.
Love Tom Onwards and Upwards xxx
tom replied to the topic Smelling the bluebells in the forum Off topic 11 years, 6 months ago
Hi Eve
Aww but for me I LOVE PHOTO'S and even Charlie the Dog gets fed up with Dad taking photo's ha ha, but I cant help it Love love Photo's.
Attached one of my Young Bride and I
Love Tom xx
tom replied to the topic I was at Hospital Today and consultant said in the forum Treatment 11 years, 6 months ago
Hi Jo
We have a hospital appointment in June for Elaine as its her 5 year check up and we are planning a week or so away prior to that and then come home all tanned to hear the word "Mrs Lappin you are Cancer free" we just cant wait 🙂
Love Tom Onwards and Upwards xxx
tom replied to the topic Lightly chained to the Roller Coaster Ride in the forum General 11 years, 6 months ago
Hi Buzzin Helen
Lol I know how you feel 🙂 but I really wanted people to talk to and still do (too much all my gaffers used to say Lol) but we have two side rooms at the place I used to go to for treatment, I was asked if I wanted one at the start of treatment but declined (I need company Ha ha).
But to be fair I got more info out of the…[Read more]
tom replied to the topic Smelling the bluebells in the forum Off topic 11 years, 6 months ago
Eve an Slim
Well done on the "Bluebell walk" and yes its correct we (all being well that is ?) make the most of all our days (and nights).
Shame you never took a Photo Eve as David's is great, David did you make the walking stick ?? looks good 🙂
Have a great week end this coming Bank holiday and if the young bride (Elaine) can keep me…[Read more]
tom replied to the topic I was at Hospital Today and consultant said in the forum Treatment 11 years, 6 months ago
Hi Vicki and Colin
Yes I am ready for "the cure" ???? yes I am drug free but it's the same as always when it comes the the bloods,the worry and am sure the stress, but hey ho it has to be done.
Stay well you all.
Tom Onwards and Upwards x
tom replied to the topic I was at Hospital Today and consultant said in the forum Treatment 11 years, 6 months ago
Dai I have said that Many a time 😀 that I haven't and never did have it it was all a mix up Ha ha.
But I also feel that I am doing so well (drug free) is because I had enough Stem Cells for two transplants BUT they put them into three bags and not two :-S , so Saffy the consultant gave me the three bags, twice as much as I needed ? so do you…[Read more]
tom replied to the topic SCT not worked -help in the forum Treatment 11 years, 6 months ago
Hi Christine and Chris
Well I honestly cant add to that excellent post of Our Dai's its spot on, no rush nice and steady, you both will have to learn to change with the MM, but always always fight it.
Love tom Onwards and Upwards xx
tom replied to the topic New in the forum Newcomers 11 years, 6 months ago
Hi Ann
Sorry in delay in reply :-0
I think my wait was because my Dr missed me and sent another patient when it should have been me (he got told off though 😛 )then I had to wait for a bed to be free at Hull, as you know it all worked and am still kicking though not as hard 😎
God Luck with all yours.
Love Tom Onwards and upwards xx
tom replied to the topic Here we go again in the forum Newcomers 11 years, 6 months ago
Hi Skyblue
I am sorry to read your Grandma has been told she has MM and I hope the treatment is kind to her.
I also think this MM stuff is passed on I have told my three sons if they have bone pain go to Dr and tell them about Me and Ask for Blood tests.
Good Luck to you and your Grandma.
Love Tom Onwards and upwards x
tom replied to the topic Lightly chained to the Roller Coaster Ride in the forum General 11 years, 6 months ago
Hi Helen
Yes its work but not hard work to be fair as I have been looked after like a long lost Son at my workplace.
As for driving yes I did and still do after my SCT in 2009 I had to go back to hospital every week for bloods and a check up and I drove to and from Hull 😀 , even after my BMB at 100 days I took a Friend with me to drive home…[Read more]
tom replied to the topic I was at Hospital Today and consultant said in the forum Treatment 11 years, 6 months ago
Hi Sarah
Gosh you have your hands full I can see, and am sure its stressful for you all.
I hope you take some time out for yourself?? as you will need it.
Congrats on the New baby they always bring an extra sparkle to people don't they.
Keep well and say Hi to your mom for me.
Love Tom Onwards and upwards xx
Kazzam2 replied to the topic Hello, I am new to this. 10 months since diagnosis in the forum Newcomers 11 years, 6 months ago
Hi Mavis,Tom and Eve,
Thank you all for lovely welcome. I am still finding my way around, but I kep popping back on, which is a good sign!:-)
The sun is out today, which always make one feel better.
hope all is well will you all today.
Karen xx
tom replied to the topic CTD and depression in the forum General 11 years, 6 months ago
Hi Georgie
Welcome to you and your Dad.
Its not an easy task this MM lark and if Dad needs to pop a few more pills and sit and have a chat with a Councillor am up for that I have done Both during my CTD and SCT and am now spot on.
Good Luck with your Dad and his on going treatment.
Tom Onwards and Upwards x
tom replied to the topic Being Thankful! in the forum General 11 years, 6 months ago
Hey Mavis sorry I must have missed this post :-S you must be nearly 9 months now 😀
Yes am sure glad of those that make the drugs and those that do the trials.
Keep well Mavis
Love Tom Onwards and Upwards xxx
tom replied to the topic Hello, I am new to this. 10 months since diagnosis in the forum Newcomers 11 years, 6 months ago
Hi Karen
A warm welcome from me also 😀 .
I see you have put the kettle on that's good to see you have got comfy already well done you 😀
As for me ?? long cut short 😎
Diagnosed in Jan 2009 had CTD leading onto SCT December 2009 am now age 57 and sit here well and drug free 😉 , the road to remission was a bit bumpy at times…[Read more]
tom replied to the topic SCT not worked -help in the forum Treatment 11 years, 6 months ago
Hi Christine and Chris
Am sorry to hear that Chris is having it rough. but as has been said the SCT is not the best its said that MM can be controlled with drugs alone its jut finding which ones will work on Chris.
Stay strong you two
Tom Onwards and Upwards xx
Kazzam2 replied to the topic Hello, I am new to this. 10 months since diagnosis in the forum Newcomers 11 years, 6 months ago
Hi Tony,
Just spotted this!
have to quickly reply and agree the staff are great!:-)
take care
Karen
x
Kazzam2 replied to the topic Hello, I am new to this. 10 months since diagnosis in the forum Newcomers 11 years, 6 months ago
Hi Michele,
Thanks for taking the time to reply. I am finding this a lovely friendly site. It is good to hear from people who know how it is. I had coffee last week with a girl from work, who said I look really well, which is nice to hear, but because you can walk etc, people think I'm cured (touch wood my kidneys have been ok this far). I am…[Read more]