tom replied to the topic Here We Go Again in the forum Treatment 11 years, 10 months ago
Hey Keith
I feel for you M8, it must be hard, it wont be long before you think all the hospital visits are Normal, Stick with it Keith am sure they will soon have you sorted out, then you can have that long awaited Break.
Good Luck Keith am crossing everything for you
Tom "Onwards and upwards"
tom replied to the topic Update on kev in the forum Treatment 11 years, 10 months ago
Hi Liz and Kev
Pleased the infection is sorted and that the R/T is helping the ribs, I have my fingers crossed for a good three weeks.
Vicky did you two get to the BMB through the snow? I hope it was pan free as the are a bugger to be fair.
Love all round
Tom Onwards and Upwards xxx
tom replied to the topic new to this in the forum Newcomers 11 years, 10 months ago
Hi John
A warm welcome to the site.
And WoW back at work so soon?? am surprised the Dr let you go back???
But hey Ho we all do it in differant ways, Just stay well and stay strong
Tom Onwards and upwards
tom replied to the topic Starting PAD in the forum Treatment 11 years, 10 months ago
Hi Tom
Well Good Luck with this lot M8 and am sure you can and will crack it.
lets hope side effects are kind to you.
Tom Onwards and upwards
tom replied to the topic Relapsing in the forum General 11 years, 10 months ago
Hi all
Well I am sorry you two have relapsed 🙁
I do hope the next move gives you both remision and little side effects.
Stay strong and well.
Love to you Both
Tom Onwards and Upwards x
tom replied to the topic LUMBAR KYPHOPLASTY in the forum General 11 years, 10 months ago
23-01-2013 at 11:35 AM
Iam not sure if I am posting this message in the right place, but just wanted to finalise Glenn's postings. I know that he has not been on here for some time to post messages but has certainly kept up to date with information and blogs. Sadly Glenns fight ended on Monday 21/1 at 5.15 p.m. We had been told that he had an…[Read more]
tom replied to the topic light chain myeloma in the forum Newcomers 11 years, 10 months ago
Hi Jenny
Yes its a lonely road this MM lark,do you have a support group near you?? as am sure that will get you out and about and chat to other MM'ers ? failing that start up your own 😀
I used to go and pick mine (meds) up at the hospital and its correct you dont have time to Chat to folk, was a lot better when I went for my 4 weekly…[Read more]
tom replied to the topic Croaky/husky voice on Dex in the forum Side-effects 11 years, 10 months ago
Yep I was same Ozzy, and am told it wasn't Sexy lol.
Regards Tom
tom replied to the topic High temp and infection after CTD in the forum General 11 years, 10 months ago
Hi Lisa and Mick
Sorry you had to join, but pull up that comfy chair and ask away, I had CDT in 2009 leading up to SCT Dec 09 and am now Drug Free, dont worry too much about not getting a SCT as we have people on here that cant do a SCT and are doing great without it 😎
Am afraid the chest thing is something we have all had to get used to,…[Read more]
tom replied to the topic Remission in the forum Treatment 11 years, 10 months ago
Hi Tina
Sorry you have A rash, I had a rash during my CDT but I have had a skin problem for years it just kicked in worse during treatment.
Good luck and hope the rash soon calms down.
Love Tom Onwards and Upwards xxx
tom replied to the topic Just been diagnosed with Myeloma in the forum Newcomers 11 years, 10 months ago
Hi Susan
Yes I was on Thal, I got through it pretty well to be honest, yes I went on sick for a year had all it done in 09 and am now Pleased to say drug free and still in remission, my ext visit will be 14 Feb,
Keep well and hope it all works well with little or no side effects
Love Tom Onwards and Upwards xxxx
tom replied to the topic light chain myeloma in the forum Newcomers 11 years, 10 months ago
Hi Jenny
Well I was on CDT and was pretty much the same, I went on sick in the May (that would have put me nearly finished. My third cycle, so am sure it's same as mine.
Good luck with it and hope it puts you in remission.
Love Tom Onwards and Upwards xxx
tom replied to the topic First Week of CDT Completed in the forum Treatment 11 years, 10 months ago
Hi Keith
Good first week, keep your eye out for constipation that was a devil for me if I got lax (no pun intended) and never took the mess to keep me regular.
And don't forget the water, I would say a little more than 3 Ltr a day as I suffered urinery infections and was told to drink more.
Keep well Keith I did 5 cycles then SCT.…[Read more]
tom replied to the topic medical alert in the forum General 11 years, 10 months ago
Hi Megan
I was given "The Card" but I don't carry a wallet and the bracelet works for me.
And it's important that we have the information about our bloods and our MM
Tom xx
tom replied to the topic Just been diagnosed with Myeloma in the forum Newcomers 11 years, 10 months ago
Hi Susan
A warm welcome to the site.
Am sure I can't advice you what to do, but I can tell you I was on CDT then onto a Successful SCT all in 2009, I am now in remission and drug free and still doing well , it has had it's moments over the year and a bit to be fair but it is a doable .
Where are you being treated ? As some on here might be at…[Read more]
tom replied to the topic just been diagnosed in the forum Newcomers 11 years, 10 months ago
Hi Tebebe
Your more than welcome, am please you found a site that is specifice to you, but pop in every now and then and let us know how you are getting on.
Love Tom Onwards and Upwards xx
tom replied to the topic medical alert in the forum General 11 years, 10 months ago
Hi Phil
I have an SOS Talisman Bracelet Like one here ::::http://www.medical-bracelets.co.uk/SOSBracelets_Men.shtml
Got mine Localy and it has a "Fold up sheet" inside that gives you space to put Contact details, allergys and things that need to be told to medics before treatment starts, hope you never have to use it 🙂 but it puts my mind…[Read more]
tom replied to the topic just been diagnosed in the forum Newcomers 11 years, 10 months ago
Hi Tebebe
Sorry you had to join 🙁 us but a warm welcome anyways now you are here.
Seven Children wow I have three Sons all grown up and yes I/we found it pretty easy to tell the kids as we had been through it before with my Young bride (breast cancer) but I know its hard, it depends on how old the Children are as to how much I would tell…[Read more]
tom replied to the topic Round 11 RCD in the forum Treatment 11 years, 10 months ago
Hi Andy and all
Pleased your doing Good Andy and I as a MM'er super glued my fingers crossed lol (only joking lol) your doing well Andy and am sure its a blessing for those that have had to start new treatment to know people like you do well with it 😀
Keep going strong My Friend and stay strong.
Tom Onwards and Upwards x
tom replied to the topic Harvesting for SCT in the forum Treatment 11 years, 10 months ago
Hi Peter
And I got this in my Email :::::
PeterJames has posted to a discussion you're monitoring:
Subject:
RE: Harvesting for SCT
Message:
Hi to one & all out there
Came into the Christie yesterday , set upon straight away , Hickman , line installed & drugs into me in quick order
Late pm had my dose of killer chemo , but…[Read more]