tom replied to the topic About to begin treatment – but which one ? in the forum Newcomers 11 years, 10 months ago
Hi Lesley and Jill
Sorry I cant help on this one, Just wanted to wish you Luck.
Love Tom "Onwards and Upwards" xx
tom replied to the topic Remission in the forum Treatment 11 years, 10 months ago
Hi Tina
And a well done young lady,am sure you will get a Long Remission out of your treatment, good luck Tina.
Love Tom Onwards and Upwards xxxx
tom replied to the topic Update on kev in the forum Treatment 11 years, 10 months ago
Hi Liz and Kev
Yes Elaine and I are doing great Thanks 😀
Kev will have same as Elaine the "Tattoos" for his R/T Elaine had 25 sessions of R/T in 2008 and did pretty good with it 😎
Its like your rink here in Sunny Scuuny am afraid, I just hope the dog dunt pull me over when i take him for a walk Lol.
Good Luck and am sure the RT will…[Read more]
tom replied to the topic Second anniversary visit to haematology in the forum General 11 years, 10 months ago
Hi All
Well who has put a Great Photo on 😀 you both Look great and yep you scrub up real well (not that either of you need to )
Love iccle ole me xxx
tom replied to the topic Update on kev in the forum Treatment 11 years, 10 months ago
Hi You two
Well I hope he can get infection kicked out and get on with treatment,its bad this time of year no matter wher you are some one is infected with somthing and are only to keen to pass it on 🙁
It looka like the revlimid Is working 😎 so it is good if infectios is sorted.
Get well Kev and keep away from those with germs…[Read more]
tom replied to the topic First time diagnosed in the forum Newcomers 11 years, 10 months ago
Hi Paul
A warm welcome to the group, it's not an easy task Paul but you can do it, I did it in 2009 bit rough at times but trust me well worth it.
Good Luck in your road to remission.
Tom Onwards and Upwards
tom replied to the topic Yes it has bombed in the forum Treatment 11 years, 10 months ago
Hey Keith
You know am sorry it never worked 🙁 you have been through the mill with it.
I hope the CDT works for you, just to let you know it was my first attack on mm was that and it put me into remission, I hope it works the same for you.
Good Luck with it.
Tom Onwards and Upwards
tom replied to the topic I feel so frightened in the forum Newcomers 11 years, 10 months ago
Hi Lesley
Your more than welcome, now don't forget any question you feel you need to as then fire it in here ????nothing is too much to ask you now you are here will always have an ????to bend.
Love Tom Onwards and Upwards xxx
tom replied to the topic Finished CDT in the forum Treatment 11 years, 10 months ago
Hi Lisa and Mick
We have a few on here doing great and not having a SCT and I think the Dr's are nw thinking that its best if we don't have one ? .
I was a bit washed out during my CTD but it came back,not same as I used to be but doing good.
Stay well .
Love Tom Onwards and Upwards xxx
tom replied to the topic I feel so frightened in the forum Newcomers 11 years, 10 months ago
Hi Lesley
Its not a walk in the park to be honest BUT it is doable as we say I have had mine since 2008 (ish) CTD then SCT in 2009 and am now Drug free and doing well8-)
Stay fit and take it one day at a time.
Love Tom Onwards and Upwards xx
tom replied to the topic Phil's SCT Journey in the forum Treatment 11 years, 10 months ago
Hi Megad and of Course Phil
Well Done you two, sat at home as proud as punch and so you should be 😀 .
Now I need to say this first, Now you are home Phil its not all done Please take your time and keep your temp checks regular as it will take you a few more months before you feel the difference, if like me I woke up one morning and knew Just…[Read more]
tom replied to the topic Raise your hand if you hate dex lol in the forum General 11 years, 10 months ago
Hi Stevo
Its been a long time since I took them and used to take 10 Tabs @ 8 am and another 10 Tabs @ 11 am, was I bad with them ?? Lol I once asked the young bride (elaine) if i was bad on dex? and she just tapped my arm and said "Its over now your better! and walked away ? am sure that means I was Bad lol.
as the Ladies say its like having…[Read more]
tom replied to the topic Harvesting for SCT in the forum Treatment 11 years, 10 months ago
Hi Peter
Well av seen a manky Butchers dog more than once to be fair Ha ha, well you will lose a bit but trust me it will come back with a vengance lol
I hope your Young Bride has a great Birthday and am sure you should be doing something on the 17th that will keep you out of bother.
Catcha Later and Take care
Tom Onwards and Upwards
tom replied to the topic Finished CDT in the forum Treatment 11 years, 10 months ago
Not a Problem Lisa hope Hubby (dont know his name? ) is soon better and bear in Mind the treatment and side effects differ from each of us.
Where is Hubby (name) being treated?
Love Tom "Onwards and Upwards xxx
tom replied to the topic I look like Smeegle…gulp(Gollum) in the forum General 11 years, 10 months ago
Hi Peggy
Am gonna Google "Smeegle" he he ?
Hope ur home now and all settled in? sorry you had a bad time but am sure you will get better soon, stick with it, it works.
Love Tom Onwards and Upwards xxx
tom replied to the topic Bendamustine Bombed? in the forum Treatment 11 years, 10 months ago
Hi Keith
Well you like to have a bit of a rough time dont you ? am sure i told you Nice and "Smooth" with a bit of Vodka and a few nuts keeps my Blips (thats what yours is am sure) at bay 😀
Am sure you aint gonna let it beat you Keith am sure you have more fight in you its getting near spring and am sure that helps us all M8.
If you do…[Read more]
tom replied to the topic Just got a diagnosis in the forum Newcomers 11 years, 10 months ago
Hi Deb
A warm welcome to the "Scary" place ?? well its not that scary its a great place for advice/help and a place to near cuss with all the problems that are thrown at us due to the MM.
I wont ask you not to worry because you will, I will tell you we have loads of Members here that have gone through what you are now going through and…[Read more]
tom replied to the topic Finished CDT in the forum Treatment 11 years, 10 months ago
Hi Lisa and Hubby
Am sorry Hubby is having too many infections? (what kind of infection?)
As for the CDT I was on that in 2009 it made me tired that tired that I went on sick during my 4th cycle 🙁
Lisa always keep an eye on his temp and stuff as the Dex can hide an infection, am sure you have been told to ring the ward that he was being…[Read more]
tom replied to the topic Information/Experience on relapse and velcade in the forum General 11 years, 10 months ago
Hi Daniel and Dad
Am sorry your Dad is having trouble with his back 🙁 How long are you looking?? well truth is no one can say apart from the Dr who will have a good Idea, But my thinking is that it could be a long time as they are getting your dad ready for a SCT 😀
Stay strong Daniel am sure your Dad will be well looked after during…[Read more]
tom replied to the topic Relapsing in the forum General 11 years, 10 months ago
Hi Wendy
Hey I hope its just a Blip young Lady 😀 and your KL drop to normal, its a worry everytime we go to have bloods checked I worry about it everytime the date comes round :-S
Lets Hope all is soon back ro normal when you go Feb 😎
Love Tom "Onwards and Upwards xxxx