Hi dusk

Thanks for your response, I do know what you mean as until recently I was cared fOR under NHS. I did keep with the same consultant at my district hospital in Basingstoke, Dr Roy and Dr Sargant.

However, 3 years ago I went for 2nd opinion at the Marsden and went private (policy through my work) as this guaranteed seeing prof Gareth…[Read more]

Hi Julie

Please don’t misunderstand me my expectations of good quality of life have adapted over the years.. Such as adaptions to manage a weakened immune system and managing different treatment protocols..

Good luck

Dawn

Great news long may it continue!! Where are you being treated

Dawn xx

Great news long may it continue!!

Thank you Julie

I’ve been on a lot of different types of treatments. So it’s difficult to say how I got on with each one. The positive thing is that since diagnosis I have been able to live a good quality life. Over the years I have had to make many adaptions to my life. The biggest roller coaster for me is the emotional insecurity living with…[Read more]

Hi Cupcake70,

Firstly hello and welcome, I do not get on here as much as I would like but it is great and a friendly and very helpful site, quite unique to us!
when I read your post and concerns it took me right back, I am post sct approx 22 month, not all plain sailing but well worth it. Like Wallace I found the Melphalan awful. but since early…[Read more]

Hi all, I too take the Adcal and Zometta, not sure if my blood is checked though. At my zometta seesion this week I was told my sessions are to be changed to every 3 months instead of every 6 weeks. Usher (nurse) said this is good news, I will ask at my next clinic though.

Regards to all

Karen

Hi Tom, sorry to hear this, I hope this next round of treatment achieves a longer remission and few side effects.

Good luck and very best wishes.

Take care

Karen
xx

Aye, it is a tricky bugger and no 2 cases are the same, which makes it even more difficult.
Wishing you well.

Karen

Done! Good luck! x

Hi Tom, just read this, I get pains in the same part of my spine, ribs and sternum, I am still on Zomorph, I was told I will always have some pain as there was a lot of bone damage (late diagnosis), so I just have to control it. I had my sct in January 2013, so if my appetite goes or I am more tired, or pain is worse, I worry that it’s coming…[Read more]

Dear Eve,
So sorry to hear that Slim has passed away.
Thoughts are with you at this very sad time.
Karen x

Hi all land thanks for best wishes, and thanks too Peter for chin up 😉

I have still not had my protien results, I have had my copy off the doctors letter from the consultant, has my blood results, but says progressing paraproteins (sorry if spelling wrong), I am sure they would contact me if a problem.

Update on sore on my back, I seen a…[Read more]

Hi TontF, I have just seen Dr Barton ( for the first time), I said hello from you, she said hello back to you! 🙂 She mentioned there may be a myeloma group starting back up.
My blood count is all within range, kidney function okay, calcium back up( it was borderline), just waiting for my paraprotien. I am in day ward waiting for zometta (45…[Read more]

Many thanks David

Regards

karen
xx