[andygParticipant]

Hi All.

Well we survived the trip to the lake district. Got home last Friday picked the dogs up had a cup of tea and something to eat then got in the car and set off to Nottingham for the beer festival. Had a few beers Saturday and came home again Sunday. It was a hectic few days and I think I’m just about recovered. Going to put my feet up for a while now lol.

Every day is a gift.

Andy x

[andygParticipant]

Thanks all.

Peter we used to think we were very lucky with our haematology department it’s excellently ran with 24/7 access. The staff are brilliant nothing is too much trouble. We have an active support group raising funds for the unit as do other haematological  disease groups. The ward had all single rooms most with toilet and showers, free tv and telephones. Visiting times were very relaxed. Now we’re losing it all.

Andy

[andygParticipant]

Hi all.

Many thanks for all the replies.

Today marks another anniversary – Three years ago today Steph and I were married.

It’s been a roller coaster these past 3 years and I don’t know how I would coped without Steph. We’ve managed to get by and fit a few trips in, we’re at the lakes now, sometimes for pleasure and sometimes for health ie the hospital.

Things are okay at the moment fingers crossed the grim reaper on my shoulder can sleep a lot longer.

Every day is a gift.

Andy xx

[andygParticipant]

Thanks everyone.

Every day is a gift

Andy xx

[andygParticipant]

Hi smoulderers. I think that is right.

Although there are a lot of treatments out there. Not all work for everyone and to date all seem to fail eventually even if they do work initially. So the longer you can put off starting the treatment journey the better in my opinion.  Bisphophanates are used to strengthen your bones due to Myeloma being good at weakening them and causing breaks and damage to your spine.

The good news is you can smoulder for years before you have to embark on treatment.

Every day is a gift.

Andy

[andygParticipant]

Thanks everyone for all your help.

Every day is a gift.

Andy xx

[andygParticipant]

Hi Helen.

Good to hear from you. I hope everything is as well as it can be.

We had a great time doing nothing much. We got invited to a Greek Orthodox wedding in October by the family who run the hotel where we stay. So will be searching around for flights to Athens this weekend.

Really glad you were able to get insured at a reasonable price by nowicantravel we’ve used them the last 4 times after World First let us down.

If memory serves me right  your going to Italy. Have a great time and let us know how it went with a couple if photos.

Every day is a gift.

Andy xx

[andygParticipant]

Oh ok that’s 3 not a couple! but it seems to of  worked 😉

[andygParticipant]

That’s good news David. As Tom would say “onwards and upwards” which funnily enough is what we were saying whilst stuck on the Tarmac at Kefalonia’s airport. 😉

Every new pub sounds good to me Tony.

Going try and add a couple of photos one is us enjoying a drink whilst a storm rages outside hmm or was it just after the storm? I think it was the later.

Every day is a gift.

Andy

[andygParticipant]

Hi David.

Sorry your in hospital having your water works seen to. I hope it does the trick for you.

Good news that your still in full remission and that your skin cancer is very mild? Didn’t know you could have mild skin cancer just shows your never too old to learn. Now if only they could get your prostate sorted.

Hi Tony.

Fiscardo is a lovely place. We haven’t been to Ithaca but heard it’s nice there too. Talking about the lakes we’re going there early next month hmmm it’ll be a fortnight Tuesday we go. Then later in the month we are popping back to Greece, Athens this time, for a wedding. We’ve been invited by the family who own the place we stay in Kefalonia.

oh David we had a thunder storm one night whilst in Greece got stuck in the bar/restaurant till it blew over 😉

Every day is a gift.

Andy

[andygParticipant]

Hi Tom.

There seems to be a lot of people reporting bone pain post SCT at the moment on Facebook. From what I’ve read in replies on Facebook people are more sensitive to their bodies post SCT and obviously every little set back the thought of relapse springs to mind. It seems it could be the old site is just being a bit tender at the moment and hopefully just being a pain. From my mind I would find it strange for lesion to comeback in the same place as an old one – but I’m no expert.

Like I said I’ve picked this info up via different social media because I haven’t been through SCT though I can relate to thinking every ache and pain is down to MM. I was told that if the pain is still there when at rest it needs investigating but still doesn’t  necessary mean it’s MM.

Get it checked out even if it’s just to put your mind at rest.

Every day is a gift.

Andy

[andygParticipant]

Hi Tony.

Funnily enough we were in Kefalonia too. Love the island we go there twice a year if my health permits. Where about on the island are you staying? We stay right near the airport at Svoronata.

Enjoy the rest of your holiday Tony.

Every day is a gift.

Andy

[andygParticipant]

Hi Jan.

Sking wow! I agree we all gotta live. When I see people sky diving for MyelomaUK it crosses my mind that would of been something I would of given ago unfortunately I’ve no chance now. My wife and I go on holidays as often as possible whilst we still can.

Myeloma certainly concentrates the mind.

Every day is a gift.

Andy x

[andygParticipant]

Hi Robert and Jan.

I would be very wary of excluding Myeloma from any travel insurance. Due it’s nature Myeloma COULD be linked to lots of illnesses and ANY broken bones. If you get an infection, maybe not so serious for smoulders, and need hospital treatment the insurance company could and probably say the Myeloma compromised you immune system and may refuse a payout. Likewise any broken bone would likely to be blamed on Myeloma I could go on but I think that gives you an idea. For me saving a few pounds isn’t worth the risk but everyone ones different.

Just a little story – a friend of mine was waiting to come at the airport in Tenerife and felt unwell they wouldn’t let him travel and he was taken to hospital. He thought the insurance was too expensive and ended up with a £40000 bill!!!

You pays ya money and takes ya choice.

 

Every day is a gift.

Andy.

[andygParticipant]

Hi Robert.

We’ve just returned from a week in Greece and paid £67 to cover my wife and I, she has diabetes, and that was with nowicantravel too. We’ve used them successfully for our last  four or five trips.

Every day is a gift

Andy

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