AndyG

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Viewing 14 posts - 556 through 569 (of 569 total)
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  • #98976

    andyg
    Participant

    Hi all
    It is great to be home though as Tom says its a bit scary not having the safety net of nurses and doctors around. But as Tom also says there's less risk of picking an infection up at home than in hospital. I'll do my best to report any changes Dai – it has been drilled into me how important it is – but I am a bloke :-/ I've just had some home cooked food Paul – just done myself some toast 😉 Got to say I'm feeling good at the moment – long may it continue – I really appreciate the support and advice I've received on here.

    Many thanks
    Andy

    #98972

    andyg
    Participant

    Hi everyone.
    I woke up in my own bed this morning 🙂 No nurse waking me at 4am for obs. I was let home yesterday evening with a carrier bag full of drugs. I'm still feeling ok – thankfully. I know I need to be vigilant for the next few days but I'm glad to be home.

    Andy

    #99015

    andyg
    Participant

    Hi Dai

    It's good to hear your pain is easing. Hopefully it'll soon be gone completely. There's nothing worse than constant nagging pain. We've all got our personal battles going on but if we stay strong and positive we will improve.

    Wishing you pain free

    Andy

    #98969

    andyg
    Participant

    Hi all
    Well I'm only 10 hours away from the end of the first round of DT PACE and I'm feeling ok. I'm not counting my chickens though after all the warnings about the days after being bad.
    Thanks for the link to the blog Lorna it was interesting.
    I've just had my obs and everything is fine. Hopefully the pesky PP's are having a hard time and are disappearing fast.

    Many thanks for all the messages of support and encouragement it really does help.

    Andy

    #98964

    andyg
    Participant

    Hi all
    Well I'm nearly at the halfway mark and I'm feeling ok. Like Bridget said and all the nurses keep telling me my bad time could come after discharge and I have to be very vigilant and monitor my temp regularly. Hopefully it'll be ok because I'm having at least 2 cycles.

    Hoping everyone is ok
    Andy xx

    #99003

    andyg
    Participant

    Hi Dai
    Good to hear your test results are good. Long may they stay that way and your painful shoulder disappears. Well the pain disappears not your shoulder 😉 there's nothing worse than a constant nagging pain.
    Here's to a pain free future
    All the best
    Andy

    #98948

    andyg
    Participant

    Thanks for all the good wishes.
    I'm now in hospital and have just been connected up to all my infusions. So the battle has started. Only 3 days 23 hours and 50 mins to go – not that I'm counting 🙂

    Thanks once again for all your messages of support.
    Andy xx

    #98950

    andyg
    Participant

    Many thanks for all the supportive comments.
    I've just been looking at the list of drugs I'll be on during my stay in hospital. It's a very long list! Cisplatin, cyclophosphamide, etoposide and doxorubicin all by IV and continuous for 4 days. Thalidomide and of course dexamethasone orally and 5 or 6 anti side effects drugs.
    I think I may be in for a hard time.
    I'll let you know how I'm getting on after I start my treatment on Tuesday.

    We will fight you MM
    Andyg

    #98779

    andyg
    Participant

    Hi Bridget
    Just read your post – dex is keeping me awake – I'm very sorry to hear your news. As I'm new to the MM battle I haven't much knowledge of treatments or advice. I can only hope that you receive something that works for you.

    Best Wishes
    Andyg XX

    #85593

    andyg
    Participant

    Hi Kay and Eve
    Thanks for the welcome. It good to know that there's people who care enough to support and share with others their experiences whilst in the middle of the MM journey. I'm on the first rung of the SCT ladder as I'm being referred to the transplant centre at the Newcastle freeman. I'm not sure how long the process will take from here till the transplant takes place. Obviously that'll depend on how my treatment progresses but I'm both excited and apprehensive about the SCT. I'm sure once I'm out the other side and hopefully in remission I will start to get back to a "normal" life.

    Best wishes and health
    Andy

    #92253

    andyg
    Participant

    Hiya Keith my wife and I will be there Saturday.
    We were at the support group meeting last week – sat round the same table.

    See you there
    Andy – oh and Steph

    #85590

    andyg
    Participant

    Thanks for the welcomes Jo, Helen and Tom.
    I'm sure my road to remission will be bumpy at times but I will be sure to fasten my seat belt.

    I'm looking forward to sharing the good times and helping at the bad times.

    Best wishes to everyone
    Andy x

    #85586

    andyg
    Participant

    Thanks for the welcome David.
    My journey so far has been a bit bumpy – spent 10 days in hospital till Xmas eve after a fall caused my already damaged back severe pain. At this moment I'm feeling ok and up to the challenge of battling my MM.

    Andy

    #85584

    andyg
    Participant

    Hi Bridget

    Thanks for the prompt welcome.
    I hope your back has improved and not causing you much discomfort. I too have lost 3 inches in height. My back pain isn't too bad at the moment – as long as I don't walk or stand longer than 10 mins!
    I think my consultant wants my SCT to take place before they start playing around with my back.

    Many thanks for replying I'm looking forward to being part of the forums and hopefully many up lifting stories.

    All the best Andy

Viewing 14 posts - 556 through 569 (of 569 total)