Hi Megan
Just reading your threads brings the whole experience back and its strange how things are done differently over the country. When I had my sct in Jan 2011 at Univ Hospital Cardiff there is a transplant unit with 6 rooms and you spend the 3 weeks in isolation from the start. I found it lonely but realise you must have protection from…[Read more]

Hi Megan
Just reading your threads brings the whole experience back and its strange how things are done differently over the country. When I had my sct in Jan 2011 at Univ Hospital Cardiff there is a transplant unit with 6 rooms and you spend the 3 weeks in isolation from the start. I found it lonely but realise you must have protection from…[Read more]

Hiya Jean
I had my harvest early November 2010 but didn't have my transplant until 8th January 2011 so you might make that footie match after all.
With the sct I stayed in isolation until 29Th Jan and was then went home. I know that I had a clean diet for another month and Gayle banned all visitors until my blood recovered. Every morning she…[Read more]

Hiya Ange & Jenny
It was lovely to meet you both at the info day. We too found it very interesting and informative and was encouraged by the positivity. Keep in touch.
Paul & Gayle

Hi Jenny & Ange
I've been to the GP today about the back and he thinks its muscular.I'm waiting for another MRI scan so hopefully by Sat things will calm down. Hope to meet you both there.
Paul & Gayle

Hiya Ange
We have booked to attend the 24th at the Village Cardiff. I had my sct at the Heath Hospital January 2011 and Dr Keith Wilson is speaking there. I hope we can still go because at the minute I am not feeling too good with backache. Keep a lookout for us we would be pleased to meet you.
Paul & Gayle

Hi guys – Thank you so much for your messages. It really is overwhelming receiving encouraging messages from you all. Thank you – I am so glad I have joined this site.

I hope this finds you all well – lots of love and best wishes.

Take care Love Kerry xxx

Hiya Wink… Thank you for your message.

You are right, it is the damage that MM causes that is the really problem! I always say that if Melv just had Cancer to accept without the disabilities that it has caused, he approach it with determination and fight with everything he had. However, as he is slowly losing 'who he is' due to no longer…[Read more]

Hi Megan – Thank you for your message.

It sounds like you have both have it tough too. I'm sorry.

I understand what you are saying about the beg of the MM journey and we are so happy and positive regarding the PP levels, it's fantastic and a step in the right direction regarding the Myeloma. However, the damage that the Myeloma has caused…[Read more]

Thank you so much for all your replies, all interesting to read. I know everyone is different but it helps to know how people cope with everything.
I am now on day 14 of my first cycle. I have never taken so many pills :0

Chemo tablets OK, taken with anti-sickness.
Revlimid – dizzy/foggy head, night sweats, awake at 4pm – not helped by all…[Read more]

Oh Sue… :-(. I know that I haven't spoken to you before, I'm quite new. It's also my partner who has MM.

I often wonder *how* you do cope and accept that news??!! If I can be honest, I don't have any advise to give – other than love each other and make this time more special than you have any other.

I am so very sorry Sue…

Thinking…[Read more]

Thank you Mavis – I tend to agree I think. If you have MM..you have it regardless!

I hope this finds you well – take care xxx

Hi Eve

Thank you for getting back to me with that. I have read lots of literature and have sort of worked it out myself ( i think). I understand the process of MM and what it all entails – I'm a bit of a researcher and send myself crazy looking up this and that! I also ask for copies of the information and always take my note book and pen and…[Read more]

Hi Peter…

You explained just how Melvin is. He said if it wasn't for the inability to work or resume normal activities due to the spinal cord compression, he would be able to live quite a 'normal' life while on the Dex. However – he suffers such a come down when he stops…like you, he feels so tired, almost lifeless. Only waking to eat most…[Read more]

Hi Mike

I'm sorry that you are going through a tough time at the moment. It's my partner who is 39 who has Myeloma, and is also on the MXI trial, RCD. He is at the end of the 2nd cycle at the moment. I noticed that you go to the QE hospital in Birmingham. We live in Birmingham and Melvin will be having his SCT at the QE. What a fantastic…[Read more]

Hi Tom

I have another person helping me with it all so I'm not totally on my own. Although I complain for being stressed at the moment, I feel like I need to inject all of my frustrations and emotions into something productive…if you understand what I'm saying. I may regret it, it may exhaust me but I feel I need something to focus on other…[Read more]