just read your post david i will definitely be watching that. thanks. ann

ah bless you this is a difficult one i think you really should speak to one of the great nurses on this site they will be able to answer your questions and maybe help with your fears i am told that quite often it is the inability to fight of infection that is how people often loose their fight. but speak to the trained nurses for proper sound…[Read more]

morning jan …My experience was similar to David s. i didnt have a hickman line if your veins are fairly good tgey dont always use one . A district nurse poped in for five days with injections to boost stem cells day five was the worste but when my husband rang to tell consultant how bad my pain was she replied with t h ats good tel ann to hang…[Read more]

sorry. ;;;Strong Brave Women ;;; beter get it right .x ann

hello chrissie. .welcome to the group none of us want to be part of. but in lots of ways this group can restore your sanity when no one else understands your fears and worrys .so alwYs glad of it . Iwas lucky even though i had been back and forth with bad back pain for months when the penny started to drop i was dealt with in the two week rule.…[Read more]

well. i went to see consultant with. ;; i am a strong brave woman ;; ringing in my ears thank you Rebecca’s daughter ha ha. it really helped i realised again that what ever gets thrown at me i will cope and for as long as i can to quote the wonderfull gloria. I WILL SURVIVE. anyway the upshot was the xrays id had done werent back so much for…[Read more]

you have a brilliant time enjoy the sun and the odd cheeky beverage and deal with proteins rising or not as the case may be . silly though it sounds your my inspiration and im sure im not the only one who thinks that so enjoy best wishes. annlynne x

sorry to join your thread here but im not sure if you realize that Myeloma is difficult to diagnose we are nearly all in a position were nback pain was a major problem before we were officialy diagnosed . it is no ones fault and tgere iz no point talking about sueing anyone. you will find during this journey you will be very gratefull to the NHS…[Read more]

hy to the new members of the group no one really wants to be in . i was diagnosed in jan 2014. swiftly put on to cdt for six treatments followed by stem cell transplant in the Freeman hospital newcastle. quite a scary time but got through it like so many others on this forum. im in remmision almost two year and doing ok you ask if life…[Read more]

Keep of this site x. JUst been for three monthly check myeloma bein good still in remmision eighteen month. happy days but theres always a but iron levels low so got to have colonoscopy think thats it vagely remember helen from this sight having to have one any body else in same boat. feeling bit deflated after such good news. x ann

hello colin welcome !! absolutely no way can anyone advice you on this decision i was diagnosed jan 2014 followed by six months of CDT wich is chemo dex and thelidamide sorry thats the wrong spelling followed by sct in the freeman hospital august 2014 i have been in remmision since then which is eighteen months and doing quite well medicaly…[Read more]

you willl have to make a application for moterbiliity if you meat criteria then b lue badge you must not b ed able to walk 250 yard as without problems xx

hya andy. nice to see a post from you glad your doing well and getting those holidays in . i remember you had to cancell when you were poorly hope all goes well with these two. im considering booking a week in cyprus for next month if all bloods are ok on the next appointment we did have ten days in lanzarote in march but the weather wasnt to…[Read more]

hya everybody. has anyone else had reacurring low blood count haemoglobin this is the second time in last six weeks breathlessness and week as a kitten transfussion again tommoro. . on the plus side myeloma still doing great non detection of protiens looks like the camera up will be next step not relishing that xx

sorry your feeling so rotten val but you need to relax and stop getting so wound up about it all it is a awfull frustrating illness but we cant change it we have to learn to live well with it . We all have lotts going on in our lives but we learn to put things in order of importants i like yourself have my house up for sale and its a double edged…[Read more]

well you were right rebecca. i had two bags given over five hours but feel great it has given me a much needed boost it should be given to everyone haha xx annlynn

when put like that rebecca im looking forward to it i might end up having a busy productive weekend. havent had one of them in a while haha bring it on. xx thanks so much

hy all..just whant to pick some brains. my blood count has usually been on the low side as is iron but came vback from holiday last night still got tge remnants of a cold but hospital bloods even lower today. so transfusion tommorow ive never had one and sure itll be fine feel breathless and totally rubish ha ha though. im sure the transfusion…[Read more]