sorry that should have said eighteen month remission xx. annlynn

hy love. agree with all jan said s he covered all the inital points. i was diagnosed at 59 cemo then stem cell either month remmision feeling. quite well off on holiday sunday life does get to a sort of normal not like we knew it but ok. hang on in and be there for her my family were my rock and still are. best wishe. annlynn

ah. i see now health insurance !!!! well i am nhs and have had all my treatment on nhs and i am very gratefull but i am with bupa through my husbands work while i was in hospital for sev e nteen days for my stem cell transplant i was allowed to claim 200 pounds per night which i have to say was very helpfull. annlynn. so it does have a…[Read more]

hy. ive had mm since early 2014 stem cell transplant august 2014 i. have had a holiday after most treatment once ive felt able to travel. im insured withvthe bank. tsb. ive informed them ofcmy illness and that im currently in remmision. ive. never paid. any extra premiums and i have kept tgem up to date with everything xx annlynn

hy helen. dont think andy posts on here much now. i think hes on facebook . but im not !! this forum is about all i manage haha. just wondered from your last post do you think mm patients make up most of the holiday bookings in the country because most people who post book a holiday when they get breaks in treatment or a bit good news or. any…[Read more]

very little one can say about your post my heart breaks for you . A.long time ago a consultant told me to take my dad home and just love him i knew we had come to the end of a long road and there was nothing else. it broke my heart and still does to thinkof it. make the most of life your dad might suprise. you without treatment for a long while…[Read more]

hy jan. hope its ok to ask how do you feel approaching a second sct i only had my first one august 2014 i have got stem cells harvested for another one if thats the ro a d i have to go i just cant imagine doing all again its like having that first child and forgeting how hard it was then we hen. your pregnant again. you start to remember how…[Read more]

please dont say that peter !!im sure therel be something else th a t theyll pul out of the bag. youve done so well. twelve years is fantastic please keep your positive head. on best wishes annlynnxx

sorry cant give much in this post. this was discussed when i was diagnosed at 59. not sure if 60 is the. cutt off time ? i only had one btother that could have possibly been a donnor but i looked. at risks and stuck with stem cell transplant. ive been in re.mision eighteen month but as they say the dissision is entirely. yours good luck with…[Read more]

morning. helen and denise. it is heartwarming to hear five years and six years mentioned in your post it gives us hope !!!so thank yoh ladies i follow helens posts and a m inspired by her continued strengh. good luck with the ne t five years lets all keep positve. xxannlynne

yes Jean playa blanca flyi g from manchester coudnt get flights from newcastle for ten days so driving down to manchester on the sat for the nine o clock morning flight staying in the rubicon palace. xx really looking forward to. it. Ann

i agree with you jean i said exactly the same to Margaret looking forward is the only way to cope i think .. Were going to lanzarote on 6 march also were you staying ??? annlynne. im pleased to hear your husband is still in remmission

staysure. and insurandgo. are two that come to mind. x

hello. margaret. i have myeloma. diagnosed in january 2014 had six month cdt treatment. got pp down BOOKED A HOLIDAY had a sct august 2014 hospital for seventeen days worked hard at getting well felt canny. by november. BOOKED A HOLIDAY. your getting the drift here. yes we need something to look forward to. little goals. little treats…[Read more]

just to let you know sarah i have rheumatoid arthritis and had two knee replacements at aged 52. but while i was having my treatment and my sct my arthritis. was almost dormNt i had to stop all my arthritic pain relief i was on quite a bit !!! the consultant explained the chemo was so strong it suppressed the arthritis as well as what it was…[Read more]

oh. dear thats not great !! why arent you on treatment ? and how long were you in remission before its come back ? sorry that seems a lot of ????but i dont understand why your not receiving treatment. I would imagine the way your feeling is due to t he disapointment the heartache that this bloody disease has come back. your not alone. its…[Read more]

ah. millie. a story like so many of us take heart that lots of us have done the chemo and the sct. and lots of us are copping ok. obviously some better than others your positive attitude will get you a long long way take care and some comfort that treatments work very well for a lot of patient s. hope your one of them. good luck with it all. . ann

morning love. welcome … The rollercoaster is the best way to describe the journey. the best advice i can give you is go with it !!!on your tired days rest on your wide awake nights have something to do my son would come home on a sat night after being out with friends sometimes one in the morning and id be making a bannana loaf or a tea loaf.…[Read more]

yea sarah im. in a little villiage twelve mile out of newcastle a very snowy villiage today. still im watching rubbish telly in the warm so not all bad . trouble with days like this i get the urge to internet shop. ..HOPE your hospital appointment went ok. itll be a wait and see couple of weeks maybe you look afteryouself and keep us posted on…[Read more]

DO. I FEEL. NORMAL !!! now thats a question sarah. ifeel well i do most of tge things i did before my consultants say my cup half full rather than half empty helps. positive attitude goes a long way. got no intention. of. lying down and dying. for a while i hope. but you must all be aware infection is our enemy we need to take care of our selves…[Read more]