hy again. sarah. one more thing i meant to say. dont look to far down the treatment line do it in segments hopefully. your consultants will get you on a course of treatment to reduce your paraprotien levels make that your first mission then look to whats next most people on this forum have been were you are now !!!!i had six month treatment.…[Read more]

hello sarah. wellcome to the website none of us really want to be on but are my name is Ann diagnosed jan 2014 symptoms masked a bit by my ruemotoid arthritis back ache which was broken vertebras l treatment started after bone marrow byopsie and mri scan six months of chemo which was three diffrent types of drugs taken at home in thre weekly…[Read more]

good luck peter with new treatment hope it sorts you out for the new year happy new year to one and all thinking. of all who are newly diagnosed those who are approaching sct and those of us enjoying a break from it all best wishes. xxx ann lynne

agree
with. rebecca as always. i used to wish after my sct that she lived down the road to me she helped me just little things but we must rememmber. were human and we will have tough down days then these qoutes come into there own natural images was my wig shop they were great. you do get a voucher from your chemo nurse for your first one…[Read more]

just a quick note on the hair thing first course of treatment. kept my hair. not as good condition as, normakl. but ok only lost hair during stem cell trancplant. xxx then. wore lots of nice wigs. blonde one day. brown. the. next. xxx

ps. that diet is strict mind does it include food. haha xxx

hya katy i started my mm journey on the 4th january 2014 with the CDT treatment six months of that followed by a stem cell transplant in august 2014. im now in what seems to be called partial remmision feeling fine the treatment is gruelling but with a good close family behind you youl be fine i was 59 on diagnoses and. have lived very much…[Read more]

Say yBenidorm here i come starting new treatment if that is the consultant s plan. wont hurt if it starts three days later !!!! and the fun you have will be a lovely memory on the rough days that might follow ,. Enjoy xmas. and. a girly weekend deal. with the rest afterwards then give it your all. good. luck. annlynn xxx

thats what makes us lucky !!!!i always felt so lucky to have aloving family there for me on bad days and good days and the next few weeks you will depend on them when your weak and tired but youl hopefully recover slowly but stedally. i hope so im. sixteen month remission so. goog. luck enjoy. xmas. make the most of every day xxx

Morning val. dont know much about the puppy thing i have heard reservations from. some hospital staff on transplant. ward. mayvbe there extra warry because of infection. best to speak to peters .doctors but like you say its eight weeks away hell be picking up considerably by then. xxx. annlynne

well welcome to the site no one really wants to be part of but unfortunately we are . Not much i can say otger than you will come in to contact here with people who. can relate to you all our situations are diffrent. but the same if you see what i mean. we often have diffrent beginning but with the same outcome. MM. i was diagnosed through very…[Read more]

eve.. your a insperation. traveling on your own must take guts . your daughters must be proud of

you. and slim. certainly would be .. helen. yes please keep posting when you get the time its nice to follow progres keep well and have a lovely xmas x x ann quinn

cant really read what your posting sorry. ann

ha ha. you lady have just brightened up a dull north east morning but. can we find the man they fit !!!! pleased to hear your doing ok and enjoying the sun were of to tenerife on sunday chasing some of that vitamin D. professor jackson. tells us we need . I totally agree with what you said all the people like helen posting and andy keep me…[Read more]

laura .. my heart goes out to you yes i was told there is a risk to every sct but to hear it told in detail to a real person that is a shock. no words can explain how sad i feel for you xxx ann

hy. yes my back pain was very bad but on close inspection i had two broken vertabra so that hadnt helped i was initionally told i had kidney infection then when that didnt clear up with antibiotics further investigation showed my myeloma . i have been to a info r mation day today at ramside hall very good but lots of people there were diagnosed…[Read more]

hy there . difficult one to answer. my situation was chronic back pain protien present in urine and bloods after tests for other things kidney infections ect i was sent to hemotologist x rays mri scan and bone marrow biopsy which. unfortunately showed myeloma .. all very scarey i cant lie the unknown is difficult i was dealt with quickly and…[Read more]

hy nickym intresting to read your post always think carers have a rough ride with this disease we fight the best we can but our loved ones bear the brunt of that fight. My husband plays golf when he can which relives the pressure of the everyday stuff iam a new MM sufferer only one year since sct and nearly two year since diagnoses your husband…[Read more]

Thank. you for letting us know it is always very sad to hear of a myeloma patient loosing the fight . I didnt know this lady as ive only been. on. the site a short while after sct last August but i do recognize you from the myeloma beacone and have followed your blog . sincere sympathy to this ladies family. at this sad time xxx ann quinn

hy jules so sorry you need to be on this forum. this disease is not selective of age or circumstances is it. . Im sorry you rushed to purchase a wheelchair social services whould have sorrted you out . Do. you not have anyone who could claim carers allowance someone close who doest work r
the 20 hours it can still go in your bank if they could…[Read more]