so good to hear your on the road to re overy maybe a slow one but thats fine. which hospital are you in ?best wishes … annlynne

misterboy you are right ive always found the positive posts such a boost just like you i try to be glass half full not empty. !!! there are a lot of positives on this site so keep looking. Im. remmision one year now. good experience in newcastle freeman. so up to now all good. always try to. plan myself. little things to. look ahead to.…[Read more]

so lovely to here. the. good. bits glad hes doing well and your taking. back controll of your lives. we had a holiday a few months after transplant and i felt fine but each month felt bit stronger good. time to look at those travel books and plan the next one good luck to you. enjoy. making and fulfilling your dreams xxx. ann

hy rossanna I had my transplant in the freeman newcastle last august. my husband and daughter and son came in every day i was in seventeen days good days. and a few awfull days . you dont say how old mam is ? my daughter brought me pretty turbans for as soon as my hair came out . lovely shower gells from molton brown. with excotic. names to…[Read more]

nat.. the one thing about the. journal is when i look back now i know if need be i could do it again luckily ive got stem cells stored for the future if required. probabley because i know the rough days do get better. I remember on night having infection that they coudnt locate i had a chest x ray in my bed two oclock in. morning also a ecg…[Read more]

so gladd hes doing ok. have been really. concerned about. the. silence from him hope hes on the mend and will post soon to update us all. im. not on facebook. so if anyone hears of his proggress please let us know

hy. nat. im in agreement with. chris it is a tough journey but the way your mum is feeling is pretty much the norm. the next few days hopefully. shell turn a corner and feel a little better each. day .I was discharged on day seventeen after my sct last august im in remmision. and apart from the. tiredness t 🙂 at overtakes sometimes. im.…[Read more]

so. sad for you this morning reading yoour news nothing prepares us for the end even though we know the disease is a dreadfull one. my prayers are with you. ann

hy vanessa. ive been in remmision for a year after sct laust august i am constanntly anemic consultant. says lots of people just are im on a three month course of iron but other than that everything. fine. try not to worry so much easy words i know but as eve one of our long term myeloma carers used to say. dont waste time worrying about…[Read more]

get well soon andy we need your positivity on this forum best wishes to you and steph Ann xx

hy ian i had my transplant august 2014 not in southhampton. but in. newcastle freeman i agree with most of what liz. has just said its certainly not as bad as. i thought it. was going. to be i was in seventeen. days first bit all smooth. a few temperature spikes in themiddle bags og
f stuff going. in. for a few nights. then again as liz. said.…[Read more]

well done. you !!!! its a lovely feeling. when. something feels its going right for a change. you enjoy. the golf and keep well best wishes Ann ..

Richard. just read to post to eve wich is. very true about us all needing. inspirational people on the forum. we all need the encouragement . Have you hear how tom is. always read his posts but he doesnt come on. the forum. im. not. on. facebook. Ann x

Good luck for today and the days that follow everyone will be rooting. for kev scarey time but like you say you no what to expect like having your second child !!! not. quite good luck. xxxAnn x

hello . everything. your experiencing is the norm with these drugs one minute your in the debths ofv despair cant. sleep walking the floors i used to sitt writing notes about everything. even my funeral plans. then the next day i wanted to m a ke large family meals and buy them all gifts if treatment had lasted more than the six months id…[Read more]

its so lovely that youve popped in to the forum to update us. Eve i always read your posts and really loved your. very comman sense approach to mm i always thought how very lucky sllim was to have you by his side . I came out of the freeman hospital after my sct the same time you lost your belovedd slim. i alw as ys remember thinking iif i can…[Read more]

ha ha peter. fun time might be pushing. it. a bit !!!! if my husband hospital visiting. while. i. throw up or holding. my. hand. sitting. on. the. loo sounds like. fun. then well ???? it takes all sorts. but what i will say. like rebbecca always says. it is dooable I wrotea diary every day and when. i. look back there. was some. scary days but…[Read more]

hy peter. In response to your questions i had my harvest 30th and 31st july last year addmited to freeman hostital 12 august chemo same day late ish at night my husband stayed till it was all in ha ha s
i was sucking ice pops like a goodun !!!! stemcells back in 24 hours later in hospital 17 days in total. hang on in. its worth every minute…[Read more]

mrs goose .. i have like yourself had RA since i was 31 got mm 2014 had my sct in august 2014 i wasnt aware methotrexate had any conection with mm i was taken of it as well but why were we never informed of this !!!!!! nice to hear youve managed a second sct given me hope xxx

so sorry to hear this sad news colin put up a brave fight . but so did you vicky my thoughts are with you and your family xx