hydrogen there last post is right you need to speak to myeloma help line it is no curable so better to realise that from the beginning but TREATABLE !!!! if mum can come to the UK and is a British citizen I would imagined would be seen in a British hospital. good luck  and it’s probably a stem cell transplant she might need xxx ann lynne

Sorry love having a toxic relationship with your father must be very difficult  maybe just checking on him from time to time might have to be enough. it seems as if he brings you both down and th as not good for both of you  take care  my thoughts are with you and your sister xx

In response to your post I feel what also must be said the people who post don’t tend to think about how our lives will end or our loved ones  we are a group of people all in someway affected by this awfully disease but we focus very much on how we live and that is our priority . think positive for your dad .As the.last post  said  treatment  mak…[Read more]

love to check in to myeloma uk  now and then missing a few faces how is helen  how is andy how is tom I haven’t got a clue about Facebook so I’m struggling  is Rebecca doing ok hope so  and when I first joined I  enjoyed Scotty hawkers posts please if anyone knows how these people are doing let me know xxx

ah sorry stem cell transplant were your cells are taken then frozen  your given high dose chemo then your cells get put back in xxx annlynne

morning yes I had thinning of hair after treatment   came back quickly  but still coloured it sect haven’t got much now after my second SCT but think it’ll be back in fully by Feb.  xxx annlynne

hy  yes my second transplant  was June and I have lost my sense of smell also  don’t think it happened with my first one   most annoying got lovely gift of perfume  can’t smell a thing  but to be fair if that’s what it takes   to kill these troublesome cells then so be it x. annlynne

hello jet I followed your posts  while I followed Deborah  I wAs transplant same time I hold on to you silly I know but I need to hope and you give me that  take care hang on in ,,

what exactly is wrong with his treatment ? does dad have a myeloma specialist or just heamotology consultant ? and were are you based ?? I live the north east  so my care is divided between my local hospital and my stem cell transplants were in the fantastic Freeman hospital  and professor jackson . annlynne

denise  The harvest jabs are awful but worth the rotten feeling when you get a good harvest honestly . And as far as going to tenerife so soon  I had my transplant 6th June was in for 15long days newcastle freeman hospital  needed to get well quickly my daughter got married 1st September  and.  was determined to do her proud  !!! both her and m…[Read more]

that was meant to say love my wigs now ha xx

well I’ve had two transplants first time august  hair was back in by end April and looked strong and great  y the time I went  to ascot in June   2014 this time my transplant was June  2017and its starting to grow now  I’m expecting a hair style and dye by Feb. hopefully.  love musings now though just been to tenerife for two weeks wore a Rachel…[Read more]

sounds good love anything that helps keep strong hang on in both of you kick cancer back xxxannlynn

hy derbeyshirelass. i agree with your husband i feel like a hobbit too lol would love to be more uptight is the spinal brace removable ?? annlynn

sorry that was for rob annlynn

hy adrian hope all goes well i have to ring in morning to confirm bed but ive got a cough so blood test first fingers crossed. annlynn

good luck rob. im having second sct on 6th june no harvest needed because i got a lit the first time awfull pain though with the gfs but told the same as you the more pain the more stem cells we would get good luck annlynne

hy. Teresa’yes you will go through stages. of drug free times hopefully which is great . my thoughts on going through another SCT. were varied like childbirth i suppose you know whats coming but your also more prepared remission is diffrent for everyone as is response to treatment. this is a very individual disease. i tell myself everyday i…[Read more]

morning theresa. hope it helps to know most of us have been were your husband is now i was diagnosed jan2014 had 6cycles cdt then SCT in the august got over 2year remission have just finished 6cycles of vdc velcade. going to probley have another SCT soon there right to tell you how much better treatments are now theres always something coming…[Read more]

morning all. feeling nervous at minute after remission of two years myeloma returned six sesions of VDC and feeling great but now there saying have another SCT ive got stem cells stored but oh gosh the decision has to be made do i go for it !!!and what happens if i dont going on holiday tommoro so ill have to do some thinking .what do those…[Read more]