Hi Kieth

sorry you have been so ill the steriods had the reverse effect on me i put on 2 stone I was on 120 mgs a week I am glad sugers are back to normal i hoped they would do
in america they use prednisolone steriod if people cannot take dex its much gentler not as agressive as DEX I have it for my kidneys at the moment and dont get many…[Read more]

Hello Les

I understand your shock same thing happened to me my creatinine was 597
i was being prepared for dialisys but my kidney consultant gave me a chance put me on a high dose of sodium bicarb and along with the high dose of steriod my kidneys improved a bit he waited to see what would happen so i have just avoided for the time being the…[Read more]

Hi David
You must be over the moon with the news,it should give you some peace of mind to know there is no hidden pockets of Myeloma lurking in your skeleton,

So I hope that coffin is locked away for lots of years,i had a feeling you might be rushing to finish it,LOL.David did you know you can get lovely pictures embossed on them now,you can…[Read more]

Hi Cathy
Did Ivan have an problems with Kidneys before SCT???How much chemo did they give him,they try to get it in and out of the body very fast with lots of fluids before during and after to minimize damage to the kidneys.
It does sound if he is one of the people,that some times have kidney problems,with the treatment,and it looks if this is…[Read more]

Hi Chris
Just coming on to wish you good luck,hope they manage a good harvest,so they have lots to put back in.
To answer you question Ali Slim is a good 3 months post SCT,his hair showed no signs of coming back until 3 weeks ago,it,s come back very dark and is a bit like a babies first born hair very soft.Eve

Hi Everyone,

This is what I have never understood,people come on here desperate for some knowledge,then b—er me,they do not even bother to reply,is it that they have only concern for them!!!!!! or are they some sick person who gets a kick from knowing these people are fighting for there lives.

Its a sad day when people need to troll this…[Read more]

Hi Keith
Thanks for that info:-)

I cannot get any protein in Slim,gone off all meats fish,only thing is eggs,so egg and bacon,ham egg and chips lives off them given up trying good food,My weight has gone up because I cannot keep eating different food,if I eat Slim eats.:'-(

At the moment very p—-d off,thought the cruise might help,he gets…[Read more]

Hi Keith
You have been through the wars,while Slim and I have been enjoying ourselves,correct that I enjoyed myself.

I am interested why some people like you and Slim loose so much weight with the Dex but other people put on weight,has anybody come up with a good answer.Slim now weighs 63 k,skin and bones no bum left,try as much as I can but…[Read more]

Dai
That was lovely,I find a great inner peace in poems,not very good at lyrics,but do enjoy reading them.Love Eve

Hi Les
Nice to hear from you and you have come to the right place,this lot on here will soon cheer you up.

My advice is take one day at a time,what seems awful at this moment,will not seem so bad in the future,but you are going to feel worse before you feel better.

First have you applied for a blue badge,or any money like attendance…[Read more]

Dear Gill
I like everyone else is devastated for what you and Stephen are going through. My thoughts are with you bothe. God bless

Love jean xx

Gill
There never will be enough time,life and death goes on,but when you are in your situation,you just want the world to stop you will cope with Stephens death,Be brave save those tears for after.
I thought you might like this.

If there is a tomorrow when we are not together
There is something you must always remember
You are braver than…[Read more]

Hi Jacqui
I would like to make a comment about sugar in general concerning MM.
I know Slim has never taken sweeteners but enjoys white sugar in his tea,which I consider is bad.
During his treatment he developed a taste for puddings after dinner,normally he would not dream of eating anything sweet,he would drink wine with all its sugar.Now he…[Read more]

Hello David
What a relief to get results like that, hope the RT goes smoothly. Keep us posted.
Love Helen

Dear Gill
How desperately sad, I have no idea nor have any words to make it better or easier for you. Just know we are thinking of you and Stephen.
Love Helen

Hi,
My name is Eve I am a carer.Welcome to the site.
You ask questions,and expect answers with very little information for anyone to give an answer.

From what you are saying the person concerned had severe bone damage which in it,s self brings it,s own problems,as you have an aunt who had Myeloma and is still alive,she should be your first…[Read more]

Hi Chris
Glad the wedding was a happy time, And that the commissioners have been leant on enough to come up with plerixafor for you, I do hope it does the trick and you get to ASCT. I am at last feeling the benefit of mine and my quality of life is pretty good.
Love Helen

Hi both
For what it's worth, I've never consumed much aspartame, and our diet has always been a very healthy, organic where possible, low fat etc diet as my husbands family all seemed to die in their 40's of heart disease. My family all live to 100! So here am I with MM!. I think it is just one of those things, probably a tiny cell malfunction…[Read more]

Hey Tom there were two lots of spam this morning – oh boy I'm on the ball!! When I read it I had no idea what to do about it.
Love Jean x

hi Chris

fingers crossed for you for the second attempt i really hope this drug works for you so you can get your SCT so glad the wedding was a success
keep us in touch with how you get on
GOOD LUCK:-P
LOVE Jo x