Tina I wish you all the luck in the world. Hope it all goes well. 🙂

Live jean xx

Brilliant brilliant news David. Well done. Keep,up the good news

Love Jean x

Hi Andy
I'm there on the 11th too, let me know when you get there?
Love Helen

Hi Jimmy, Phil, Colin, Dilini
I thought it was just me being tired and unable to sleep, interesting too that there is no pattern, I'm not finding one either. Still it's working so I'll take it!
Love Helen

Hi Vickie
Sorry to hear that things are no better. I know it can be difficult with some consultants, they seem to be "the all powerful" but they are human. So as you say be assertive Vickie, have a written list of questions so there is nothing left out. When we visit consultant I take a little recorder to record the consult, as I have the worse…[Read more]

Hi Vicki
This is a terrible blow for you both, i can't imagine how i'd have felt if that had been me. It is to be hoped that Plerixafor is now going to be allowed for Colin. Keep us posted about plan C.
Love Helen

Congratulations Wendy, from one to another. Its a funny feeling to be here, one year on and in pretty good shape, all things considered. Did you have cake? I wasn't sure how to behave, I think I secretly wanted the family to put balloons on the door and send cards! I did have a good day though. Well done.
Love Helen

Wendy I understand where you are coming from, there has been some bad news from our friends. But I agree it is very uplifting for people like me to read stories like yours and Eve's, it makes me feel like there is light at the end of the tunnel and not another blo*dy train coming. Thanks for sharing
Love Jean x

Hi Vicki

Are they trying again tomorrow? Oh I really hope that it works this time. It really makes me sick with this post code lottery. If someone needs medication it should not make a difference where the h*ll they live. I am like you Vickie I worry if I'm not worried. I questioned the SCT co ordinator if the Belfast trust funded prelixfor.…[Read more]

Thanks Lynn will follow your posts with interest. Will have everything crossed for Pete in October. Best wishes to you both
Love Jean x

Welldone wendy

Keep the good news coming we are all in need of it from time to time long may it last:-)
Love Jo

Happy anniversary Wendy and thanks for the link. Frank hopes to start STC in new year. So will read with enthusiasm.
Love Jean x

Hi Vicki

I have not replied to your posts as we are not at your and Colin's stage yet and dont know that much about STC but I have been following posts very closely. I was devastated to hear that it failed. Vickie can Colin's consultant be able to tell you what plan c can be. you must be so worried and hopefully someone else will be able to…[Read more]

Hi Gill

6 years ago my husband had Zometa every month for 2 years. He has just started treatment and is back on Zometa. Hope you get it sorted out.

Jean x

Hi Jennifer

Welcome to the club no one wants to join. My husband has SMM for 6 years. MM diaganosed while looking for something else. Frank was monitored every 3 months and his PP rose to 34 ( I think). Lesions were found in his ribs but radio therapist decided radiotherapy not necessary but consultant decided that treatment was necessary so in…[Read more]

Hi All

Frank is due (all things going well) for SCTin the new year. I went to a meeting last week on SCT and to be truthful at the time I was sorry that I went. I felt i got more info from the forum and in a more encouraging way. The one thing I did get out of it was, there was a man who had a SCT 3 years ago and told us what it was like – it…[Read more]

Hello Amanda and Bob
welcome sorry you have had to join must be a big shock for you both you will get all the help and information you need on this site with many friends to support you keep in touch
Love Jo x

Hi Bill

Just been catching up on site and noticed your posting.

I do not know about infections with Revlamid but I do in general once you start chemo,you do have more chance of infection as your body is at low ebb so more prone to infections.

My husband contacted Septic Pneumonia,that put him in hospital for 22 days 9 in ITU ans left him…[Read more]

Hi Amanda and Bob

I am sure you don't want to be here but your are both very welcome. Feel free to rant (it's great to get things off your chest) but you will get great support, help and advice. They are a great bunch of people here who you will meet over time. Take care and best wishes to you both
Jean

Hi Jo
I was so fed up with not having a break,and waiting on the results,I thought good or bad we will do something.So we went to France in the Motor Home only down to Le Treport,came home Thursday,saw consultant Friday,had booked a last minute cruise last week to the Fjords in Norway,leaves Dover Sunday just 7 days,So happy days.:-D 8-)…[Read more]