Hi Amanda
Welcome to the site,this site can help in lots of ways,at the moment both of you must be in shock and information coming out of your ears.
As your husband starts this journey,my husband has just finished the first part after having a SCT and is in full remission.which we hope to enjoy for as long as possible.8-)

My husband is on…[Read more]

Hi Andy

keep up the good fight I am sure you will get there in the end I hope you enjoy your holiday in the lakes i hope you can relax for a time it will do you good
Love Jo x

Hi Eve and Slim

what wonderful news its just what we all want to hear so there is light at the end of the tunnel Have a wonderful holiday where are you criuseing
to somewhere warm I hope we have booked a holiday in Majorca going for 10 days. I hope you will keep in touch and not be a stranger to us
Keep well both of you
love Jo x

Hi Mari
I have not been on for a while and you soon loose touch with present day situations,so I did not know how things were going.its a pitty it was not done during the school term as this would have been far better for you,but who gives a s–t about the patients not the men in the grey suits,they do not even give a s–t about there staff,It…[Read more]

Dear Gill

My thoughts and prayers are with you and Stephen at this time. Gill, Dai, Eve and Tom have said it eloquently, I am not good at words, but I just wanted you to know that I am thinking about you. I have followed your and Stephns journey with this awful disease and you have been there for me and many others and we are here for you. You…[Read more]

Hi Andy
I would love you to come on here and say my pp are down I can look forward to SCT,and I can understand your frustration,Slim has taken a long time to get were he is now.We have the added problem,that month by month we could not tell if it was working,only the BMB were giving us a true reading,with the experts telling us this is very…[Read more]

Dear Gill
What can I say,drinking champagne last night,with are good news,that no Myeloma cells have been found in Slims bone marrow,and reading your news on Stephen,we are not so many worlds apart,I know you are my future,which I intend to leave behind as long as possible,and Min is your future,a year down the line.So this is are Myeloma World…[Read more]

Thank you everyone for your good wishers,we are so looking forward to going to NZ and going off in are motor home,and of course the cruise which will be a first.

When this Myeloma struck it took so much away from us,but I still felt lucky that we had done so much with are lives before Myeloma Land.
I always feel that some good must come out…[Read more]

Hi Mari

Hope all goes well with Sreve's SCT. I didn't know 2nd STC has to be funded. Keep well
Love Jean

Hi David
What a bummer,I have thought for a long time,you were preparing yourself for something,but I did not think this!!!!,do you think there might be someone sitting up there looking down,saying well you are having things to easy,I,ll give you some thing to think about?????

Well you show them David,if you can get through the Myeloma,the…[Read more]

Hi Cathy
I'm a year post transplant and what the others say is exactly right, once you have the drugs and transplant, it is a process which you just have to endure. Most of us get through it in one piece. It's horrible, I was taking anti sickness, anti diarrhoea, antibiotics, antacid and painkillers for many months, I'm good enough now, about a…[Read more]

Really good news Eve, get away on those holidays and enjoy them
Love Helen

Dear Eve

What fantastic news 🙂 . I'm so pleased. I admit to having tears in mye eyes reading it as Slim has had such a tough journey and to have this outcome is really brilliant. We seem to have been getting a lot of new members recently and I'm sure reading yourr post will be the best tonic for them. Eve have a brilliant time and a good…[Read more]

Hi Cathy

7 days into SCT,sickness is what you can expect,have they not given you books to read about the procedure????.
It is not very nice to watch,but your husband will come out of this ok.
The reason the nurses have little contact is they try to keep him and other patients germ free,going from one isolation room to another,brings its own…[Read more]

Hi Ali
I think the jelly beans will sit on the side for a while, but she will share them I'd say:-) And they are small so you can keep trying them until they taste right. I drove from the 3 rd week, but I didn't have a line in, even now though I don't like driving more than about 30 miles as I can't concentrate well enough, I'm still struggling…[Read more]

Dear Dai
It's good to know someone is keeping a good eye on you at the hospital, I hope you get some answers soon. I've been back on the Revlimid for 2 months now, no pain so far but it is already playing havoc with my guts again.
Love Helen

Dear Dia

sorry you are still feeling under the weather I had hoped you would be clear now I was speaking to a lady at my support group about revlimid she has been on it for four years the side effect she used to get an upset tummy she was always on the Loo her consultant gave he a drug similiar to immodium and this has solved the problem hope…[Read more]

Hi Keith
this sounds like good news as soon as you are off DEX the sugars will level out how are you getting on with the insulin did you know once the sugar levels are down and stay down you can come off insulin the diabetic team are always keen for you to stay on it but you will find one or two tablets will do i came off for ages until they…[Read more]

Dear Teresa
I do not have the words to help, it must be such a difficult time. I love the idea that Peter is a visitor wandering through your mind. It is a comforting thought. Take care of yourself on your journey into your altered life.
Love Helen