Dear Teresa

I can only imagine what you are going through and my heart goes out to you. The love of your life has gone but you have been left with lovely memories. My love and thoughts are with you and thank you for your post.

Love Jean x

Hi Megan and and welcome from me. Michele is right "a trouble shared is a trouble halved". This forum has been a God send to me. I have had help, support and above all friendship. My best wishes go to you Nd Phil – good luck

Love Jean x

Hi Ali
The down feeling is very normal, after everything and all the hype, suddenly you have to pick up the bits and try to put life back together, it's not easy. Keep reminding her that she's been through so much she's allowed to feel 'off it ' a bit. Just not too much though….! they will offer counselling if needed, and it might be!…[Read more]

Hi Andrea
Sorry you had to join us but you are in the best place. My husband was diaganosed 6 years ago with smouldering myeloma, he was being checked for something else. He just started CDT in June and has 3 more cycles to go before STC. Andrea I know its difficult not to worry (I'm the best at that) but we had a great 6 years, doing things that…[Read more]

hello Jacquie

S0 Sorry you have had to join this forum the diagnosis must have been such a shock for you which I dont think anyone truly gets over
the tingling in his hands can happen to a lot of people when having the chemo is he on Dex if so that is what cause the sleeplessness its a very common side effect if it gets too bad he must tell…[Read more]

(with heavy irony tone) Phew Dai it's good to know that they can sort out the minor stuff so efficiently………..

hope you are mending now, what will they do about the Hb level do you know yet?
Love Helen

Hi ?.
revlimid makes me Very tired, I'm afraid that all I do is give in to the tiredness,
Love Helen

Hi Jacqui
I too have IgA lambda light chain myeloma and am oligo secretory, I was told a similar story to Tracey, though I'm without the Amyloid, I have not asked what my chromosomal risks are, I'm not sure I want to know that just yet, when I relapse I'll ask. I had my SCT a year ago. At the minute I'm in comple remission, but I'm on Revlimid…[Read more]

Hi Tina
Hope you have a lovely break. And good luck for your next step. Kep well
Love Jean

Happy Birthday Ali, I'm guessing you will have to take the cake round to your mums today to celebrate with the family, make the most of it, it's time to start the rest of life with happy things. Have a lovely day.
Love Helen

Hi Angela
I'm glad Mavis was able to tell you about hip replacement first hand, as I've only looked after people with them. Once the SCT is over and you have recovered, the hip replacement should be straightforward, the damaged section is removed and you should have a pain free joint without loss of height. Many of the patients I looked after…[Read more]

Oh David
What a blow for you, what does this mean for the anniversary plans? Is the new treatment as long as the mm one?
Love Helen

Dear David

I'm so sorry to hear your news but if anyone can kick it into touch, you can. Hope treatment does the trick. VASBYTE

Much love
jean xx

Dear David
so sorry to hear your news you sound a strong person so i am sure you will come out the other side
love jo x

HI Scott
so sorry to hear you have relapsed already that a bit of a blow I have been reading about bendamustine i think you are lucky to be on a trial they have had really good results in America so it all sounds hopeful fingers crossed for you dont let it interupt your golf try and keep well
love jo x

Hi Ali
welcome to the site sorry you have had to join it must have been a terrible blow to you both this site is wonderful for help and advice and as for the DEX we have invented a new word here for it DEXITUDE I think most people find this drug hard to deal with but at least it usually has the desired effect on the beast called Myeloma good…[Read more]

Dear Gill

I am so sorry to read your post. You both have been in my thoughts and prayers. Stephen is having a terrible time and it must be so difficult for to watch him in so much pain. I hope that the Wizards magic kicks in soon and Stephen gets relieved of his pain soon. I am not good with words Gill, but please know that you both are in my…[Read more]

Hi Dai
Does the silence mean that they kept you in again? Hope it's getting better
Love Helen

Are you and Slim getting on ok now Eve? You're a bit quiet at the minute. Hope you are all right.
Love Helen

Hi Vicki and Craig
Onto the home straight now, just a few more weeks of horribleness then recovery.
Yes take the anti sickness stuff every time it is offered was my motto, I slept through one med round and forgot to ask and lived to regret it. The process is horrid enough without being extra sick, it doesn't always stop it or the nausea too, so…[Read more]