hi Ann
thanks for the reply they gave me a demo and it all looked straight forward it seems it can only be delivered to the house i dont know if it is expensive or not i hope it works better for me than keep having transfusions
love jo

Hi Jill

Thanks for posting this I love reading positive posts like this. I'm glad your mum came through treatment with such good results. My hubby is on CDT and the Dex is as you say "hard work". My best wishes to your mum and long may it continue.
Take care
Love Jean

Hurrah

Great news Wendy and Helen party, party
Love Jean x

How did you get on Tom? Was sunny Newcastle all you expected it to be? Where did you stay? Did they put you up or did you have to do that for yourselves?
Love Helen

Hello Wendy , don't think that was an over reaction, I'd have been the same. Its good to know they have trucked back down again. Lets hope they stay there, where they belong. I'm totally paranoid about every ache and pain now as well. I'm sitting here aching all over since the zometa on Tuesday, it still knocks me out for a few days, even after…[Read more]

Hi Sue

Nice to hear from you,glad you have settled down and are coping with your diagnoses,many people on here are still at this stage for many many years,so lets hope as time goes by,your check ups will seem a bit easier.Although i know you must worry when the time comes round to be checked.

I do not think this worry leaves any one even…[Read more]

Have a wee vodka or maybe 2. Think I'm on 3rd glass of wine. Sons were up and thats my excuse. The main thing is that you an Elaine have a ball and enjoy every minute. Will be thinking oh you tomorrow. Go get them Tom !!
Love Jean x

Tom looking forward to hearing how you got on or is it "if I tell you I will have to kill you" :-S
Love Jean x

Helen

Ellen replied and said Chemo tablets can be taken whenever suits the person . She just reiterated that Thalidomide to be taken at night and Dex in morning. Thank goodness, hope next month will be as good as this one. Just have to get the Dex sorted now.:-P
Love Jean x

Good luck Tom

we know you are a star any way even if you dont get on it
Big hugs Jo x

Hello Elfriede
I have travelled a bit since being diagnosed in Jan 2009 I do not have bone damage but my kidneys are only about 15% We have been to Jersey Ibiza
grand Caneria and Skiathos I always get doctors permission to travel and full health insurance from MIA travel and take some anti B's with me I am always careful while on holiday we have…[Read more]

Hi Tom

Thought you were kidding when you said you needed character references,lol:-) fancy that if I had known you were serious I would have given you a glowing reference.

Any way good luck Tom although you do not need it,I hope you have ordered your mm tea shirts,if I am correct the show is based in Bristol lots of mm members around there…[Read more]

Thanks Helen I hope you are right as it has made a real difference to Frank – hope it is not a one off. He actually went out down to Marks and Spencer's. I will let you know what Ellen says.

Ta
Jean x

Hi Ali
It's nice to know contemporaries are out there, thank you 🙂 Do you have a homecoming imminent? Are the platelets up?
Love Helen

Hi Jean
I'm told it doesn't matter when you take them. Always at the same time means you are less likely to forget them. Dex keeps you buzzing sometimes so morning works for many, thalidomide and lenalidomide make you tired so evening is often better, cyclophos needs lots of fluid so you can be up all night peeing! >:-) but if Frank is able to…[Read more]

Thanks for that Tom. I have emailed Ellen to ask her. If I don't hear from her I will try our nurse. The only thing is Frank is so much better today than he's was by taking them early in the morning. Will see what they come backe with.

Thanks Michelle will phone tomorrow

Love jean x

Hello Dai
Are you cured now?
Love Helen