Hi Deborah
it does sound strange that your mums consultant did not offer an opinion,but I suppose if the trials are on offer at this hospital,it could be seen to either not supporting the trials,against his own believe.So I think your mum has to be very careful here.
If you go to the home page there is MUKS three trials,plus if you type trials…[Read more]

Hi Richie
Welcome to the site, hope you get some normality back soon, it's a very frustrating situation to be in. No doubt you will be. Kept under observation quite closely from now.
You should look on the under 50 site for some contemporary views of the situation, not that we don't want you looking in here too.
Love Helen

Hi Ali
Seems she's on the up now, Don't let the side effects worry you, she just has to tell them when she goes to clinic that they are still there, ( or have gone) I was nauseous with the dreadeful Diarrhoea for months. It's still not gone away completely but is more associated with the revlimid cycle now. Your mum appears to be the same age as…[Read more]

Hi Only me

I have been wondering how things were,take what ever is on offer to get you through your mums death,it is a sad thing to say,but you have a year ahead,of birthdays and lots of things knowing your mum is not there,everyone of us tread this path,and I hope knowing your mum is free from pain makes it a bit easier,it,s your Dad who now…[Read more]

Hi Ali
I came home on day 16 after the chemo, 14 after the cell return, And yes you do feel suddenly better once the new cells begin to get a grip. It is better to be at home too, my lovely husband kept the house clean by damp dusting with furniture wipes and disinfectant wipes every day, especially door handles and taps, clean towels and bedding…[Read more]

Hi Ali

To me this is were the hard work begins,your mum is going to feel great about coming out,and if she is not careful will over do it.This is were she needs looking after,I found it easy to do a bit of a chart,she will be coming out with lots of tablets to take at different times,plus she needs food and drink put in front of her,does not…[Read more]

Hi Rach
Welcome to the site, if you private message me I can put you in touch with my 26 yr old daughter. She went through all of this with me nearly a year ago, it's a tough journey for all of you, just let your mum get on with it in her own way.
Love Helen

It's good to know you are back on the road again, many more miles I hope, just shows what they can do sometimes.
Love Helen

Hi Paul
Glad to see you got this hurdle passed, take it easy for a bit, just eat lots.
Love Helen

Hello Teresa
I'm sitting in the garden on one of the few summer days we have had here this year. I'm looking at the flowers and thinking of you.
Love Helen

Hi Wendy
Well let us know the result when you get it. I'm planning Peru next year for the same reasons as you, if there is a biting creature around, it will always tackle me first. So I always smell decidedly unattractively of insect repellant whenever I go away:-(
Jean I'm really looking forward to Venice, we will be cruising on a boat for a…[Read more]

Hi Vicki
I finished induction treatment early June last year and had sct in mid august, ( nearly 1st anniversary, hurrah) my first posts on this site were when I was recovering from gcsf and induction and I was just beyond myself with fatigue. I only had 10 days, just before sct when I felt well. Those few days were really good and I'm probably…[Read more]

Hi Lynne

I am so sorry for your loss,this Myeloma is a hard road to take,and John,s seems to be harder than most,the last few weeks must have been some of the saddest days tinged with lots of love and memories,my thoughts are with you,and I hope,that as time passes all the good memories will makes you smile.Love Eve

Hi Pennie and Andy
It is nice to hear you are sounding a bit more positive.Do not forget any problems with AA appeal,I hate to say it but things are going to get worse before they get better,sometimes the chemo takes so much out of you.
I had to replace white carpets with laminated flooring,I will let you guess why.:-|

The more chemo and…[Read more]

Everything crossed Wendy for Thursday. You are one Gutsy lady. Whatever you decide – enjoy.
Helen I have been to Venice twice I just love it – a beautiful place and would love to go back – enjoy

Love Jean x

Dear Lynne

I am so sorry for the loss of John to this awful disease. And reading your posts of John's journey, you are so right to be proud of him. Lynne I really don't know what to say but just to let you know that I will be thinking of you in the weeks to come. Tom is right – you had years of good times to remember. My sincerest condolences…[Read more]

Hi Alan what a lovely post. I am so glad that you are in remission, your journey with this awful disease is inspiring. My hubby is on 6 cycles of CDT – he is coming to the end of the third – halfway there. If everything goes ok they will start STC.

You sound as if all your support networks are in place. Good luck and long long long may…[Read more]

Hi Gill

So glad for you both,hope Stephens sight comes back,Very tough place to have lesions,they can do wonders these days,and I can say they would not have done it,if there was chance of more damage,
As for the jag well what can one say,I have looked at those cars and my own personal thoughts are so rude an extension of a personal part8-)…[Read more]