Gill absolutely delighted with your news. 🙂 Was feeling a bit down but when I read your post – cheered me up no end. I'm glad the wizard is working magic And Stephens pain eases considerably and quivkly and he can enjoy driving his Jag

My best wishes to you both

Love Jean xx

Thanks Eve. In fact I went in for my knee check-up on my 33rd birthday… But well, c'est la vie!
I'll stick a photo up soon, just doesn't work from my iPad and need to get laptop out … Maybe tomorrow!
Helen

Hi Helen
Who has not introduced her self,my name is Eve and I am a carer,have to say MY GOD,33 and pneumonia in itu leg op,and you thought you had a bad knee,you could laugh if it was not so serious.

One good thing being based in London gives you lots of scope for trials plus the best treatment that is available,
I have just come on to say…[Read more]

Hi Keith

I wish I could help you but I cannot,I know Dex does not help sugar levels,plus I know since Slim has been on chemo his cravings for sugar are unbelievable, never touched sugar before,do I put him on a fad food diet,!!!,my attitude is what ever he will eat,cannot afford to loose any more weight:-S

I know all about green tea,green…[Read more]

Hi Keith,

My treatment includes Dex (on it now in fact!) I was told not to eat sugary stuff (easier said than done) as it can cause _temporary_ diabetes like effects. So hang on in there. Not permanent, I think.

No wonder you are feeling crap, but it will pass I'm sure. When I've been physically low (e.g. Last wek neutropenic) my positive…[Read more]

Pat,try and relax and have a brilliant weekend. Enjoy!
Love Jean xx

Hi Dai
You do sound a bit more cheerful.
I'm glad to see there is a possible reason/cure in process, how has this latest development affected the armchair Olympics? Will you be disqualified now for taking life enhancing drugs?
Love Helen

Hi Pat
Welcome to the club no-one wants to join. Sorry you find yourself here but you are in the right place for support and to rant and rave if you want. You are not a wuss and dont apologise, it is a worying time for you. Although my husband has had Myeloma for 6 years he has been smoulding and has just started treatment. I'm still a novice…[Read more]

Hi Ali
This is the hard bit,you mum will sleep a lot,take a book to read,if the clothes are soiled just get the nurses to throw them away,this is were your mum will feel if she is loosing control,very emotional for her,the nurses understand,but expect a few tears,you keep your chin up,tell your mum she is through the worst,the nurses should be…[Read more]

Hi Wendy
Ostrich behaviour is a good holding strategy until you make your mind up about things I find! I'm going to use it when I need to! I'll keep my fingers crossed that it's just a blip in the sflc's, and everything settles down.
Your holiday in Asia sounds exciting, where abouts are you going? I've just booked to go to Venice in September.…[Read more]

Hi Andy
How kind. It was really nice to meet up, keep in touch
Love Helen

Hi Ali
I wondered how you were getting on. I've just consulted the diary I kept and I dropped my bloods to 0 on day 8 from the chemo, they started to come back on day 13 from the chemo and they let me out at day 16 from chemo. My mouth was like leather from day 4 and stayed like that for about 6 weeks, very dry but not really sore. My main…[Read more]

Hi Dai
I would agree with you about the infection,hope you are taking a sample when you see doctor,you have to find out which one it is.:-P

When Slim was discharged from Kings he was given 200 paracetamol,bit of a shock to be given so many,as you cannot buy more than 30 over the counter,get depressed enough,they might help.:-(, I do not take…[Read more]

Hi Wendy

Good for you that's the way to go;-) Eve

Ok then, how did you get on?
Love Helen

Hi Keith
Oh dear, you are going from situation to situation, but good news with the pps being down again.
Sadly high dose dex can cause diabetes and it is just another thing to add to the list of its awful side effects, but it's working on the pps so it's a balance of risks. You will have to ask if it's permanent, and what can they do to stop…[Read more]

Hi Andy
I will loiter on the sofas by the research pharmacy at 1.30pm ish, it's next to the coffee shop!
Love Helen

Hi Mari

Glad you had a lovely holiday,and Steve,s feeling a lot better,just what was needed,when we asked about going away it was a complete no no,but are own personal circumstances would have taken over any way.

So on Wednesday I will look out for a tall man who looks if he has moth eaten hair lol,you tell Steve to look out for Slim the…[Read more]

Hi Dai

How are things going!!!!

At least you have had some good sport to watch,why you are feeling off colour,I just hope it was in your own home and not in hospital with a high temperature.:-(

Slims in today in the day unit,they are taking his line out at last!!!although his platelets are only 50 I think it is a good thing. Eve

Hi Andy

Slim says that why worry about it if you cannot change it,and he sleeps like a baby,it's me up in the middle of the night:-/

It,s the unknown that is worrying,I am sure once you go,you will feel more assured,have you far to travel!!!
Although Slim is on trials ,it was worrying to see no progress and very worrying,watching other…[Read more]