Dear Gill

You know we are all thinking of you in this bad time,so have a go all you like we do understand,you are in a position were no one wants to be in,and we all just feel for you Gill.

I hope the radotherapist can easy Stephens pain,I cannot imagin how you are coping with that,they can do wonders these days,they have machines that can…[Read more]

Dear Gill

You have nothing to apologise for, that's what the forum is for. I know if I didn't rant I would go mad. I hope the 'wizard' can work some magic and help ease Stephen's pain. I know it's hard to watch someone you love in pain but I hope Gill that things get easier for Stephen and that you can take things a bit easier. My thoughts are…[Read more]

Dear Gill
This must be so hard for you to bear, but as already said, use this precious time as much as you can, we are thinking of you.
Love Helen

Dear Gill

I can only say again what the others have said (but not as well). I just wanted you to know that you and Stephen are in my thoughts and prayers. I send you love and hugs as well and please know that you have lots of friends here that have you in their hearts

Love Jean x

Dear Gill

What can I say???

Reading between the lines I have been waiting for you to post,as you say in denial,but it keeps you going,if it did not everyone would give up at the beginning,and at the end of the day Stephen and you are fighters,but some times enough is enough,it's being able to see it and accept it.

What matters now is…[Read more]

Hi Judy
I am sorry about you husband,you do not say much in your posting and have seemed to carry this burden with your family,but your husband was one of the Myeloma victims as well,so my thoughts on what you have endured go out to you.

I replied on Teresa,s thread because,you did not put your own,thread on,and I can only guess that you are…[Read more]

Hi Chris

Its sad we do not have something like the Myeloma Beacon Survive,s Site,
then we would know how many people are doing well after so many years the longest I heard about before you was 18 years,lots of 10 to 12 years and still going strong.

When I am feeling a bit down,and I am only the carer,I go to the American site,and it makes…[Read more]

Hi Teresa

How are things going,I should imagine the last few days have been very busy,I do hope you have had time to look in here and realise how many people have you in there thoughts.

Take that walk down the garden,I hope it will bring you some comfort,look forward to the grandchild Peter would want you to find that strength,Love Eve

Hi Ali

Your mum knows her own body best,but I would impress on her about taking anti sickness pill 15 min before she eats,mainly because once you have been sick with a certain food,it puts you off it for a long time,so a food you enjoyed becomes a food that made you sick:-( Love Eve

Hi John
I had revlimid last year with dex and cyclophos as induction and now rev alone as maintenance, I worked all through the first lot but it got more difficult as time went on as it has a cumulative effect, and I was so tired i was really glad to stop for the sct! Latterly it has caused great trouble with my guts so I had a 3 week break and…[Read more]

Hi Everyone

Well Slims getting there,as he improves I worry less,will be happy once he has BMB and results as we have been told this is now the only way to tell how the myeloma is in the bones:-P so it will always be a bit of a worry.

He has his line out on Monday and Wednesday it,s up to London never ending'

We thought once the 2 days…[Read more]

Hi Dai
You sound like my grand daughter,her exercise is keeping her eyes open to watch the Olympics.:-)Eve

Hi All

Penny watch out for the Dex as it can hide infections,its no fun if it gets serious.As for AA there has been a big discussion in the new comers section,might be worth a read.

John I am amazed you are working at all,with that combination of drugs,but if need must you always find away,when you are self employed you cannot afford to be…[Read more]

Hi Ali
Well this is it,no going back now,your mum went into this being very strong,so you keep your chin up and keep her spirits up.

If your mum keeps being sick,and cannot keep tablets down they will use a driver,her throat is the first thing to get sore and as Tom said mouth washers as much as possible,saying that Slim could not do even…[Read more]

Hi Wendy
Bit of a Bummer after such a nice holiday and to come home and have your kappa light chains going up.

As to having to wait a couple of months to find out what is going on,to me is all wrong,but saying that Slim is in the same boat,for a long time now the bloods and kappa light chain test have yielded results that have nothing to do…[Read more]

Hi All

Wish I had known about that med for hiccups ,had Slim doing it in his sleep,drove me mad,now it is just every now and then usually when we are out,and things are very quiet,and out of the blue one loud hiccup and the whole world turns round.:-P Eve

Hi Charlie

Frank has just started 3rd cycle of CDT. First month drove him nuts with hiccoughs, they went on for hours. The consultant put him on Nexium. It helped a bit, second month she increased it and so far he has only hic coughed a little. When it starts he takes natural yoghurt and it stops them. Hope all goes well with you.
Take care
Love Jean

Hi Dai
Glad to hear you are improving, now …. Which event was it that you were taking part in……..
Love Helen

Hi Wendy
I can't help here other than to say that they look for an upward trend over a period of time and that some fluctuation is not uncommon, however if I was you I'd be wondering if I should be an ostrich and carry on, or should I plead with my consultant for earlier testing, even if the tests are expensive, what price is knowing where you…[Read more]

Hi Eve
It's good to hear you so chirpy and that Slim is now travelling in the right direction, have to get those holiday brochures out now.
Love Helen