Hi Andy
Hope it all goes well, I'm still up for coffee if you want to meet up.
Love Helen

Hi Ali
I think day 1 is the day after stem cell return though it feels as though you should go from the melphalan day as that is the serious chemo. I was ok but nauseous and sick for the first 3 days but deteriorated after that. I didn't want anyone to see me so ill so banned all but a few visitors, no one with any colds or coughs or children was…[Read more]

Hi Andy
If good thoughts good get you through this,there are plenty on here for you,as to being excited or worried,could you have been any more worried than you were with not much progress!!!!
Make it Excited you are going to see one of the people who know all about this dreadful disease,who works in a hospital were trials are being held.

So…[Read more]

Dear Teresa
I am so sorry to hear about Peter, how unbearably sad for you all. How have you all been coping over the last few days? Your life must feel quite empty after such a concentrated few months of intensive care. I wish I could help, I send you a big cyber hug )(
Love Helen

Hi Teresa

I am so sorry Teresa,I hoped for your sake that Peter might live long enough to see the new grandchild,but it was not to be.
I hope Peter had a peaceful end with his daughter and son and yourself,It is sad that people are taken from us when they have every thing to live for,and my thoughts and good wishers are with you.

Try not to…[Read more]

Dear Teresa and Judy

I am so very very sorry that your beloved husbands have lost their battle with this horrible disease. My thoughts and prayers are with you both at this terrible time

Love Jean x

Hi Chris
Congratulations,that is good news plus brings a lot of hope to people who are just starting there journey.

We could do with people like you posting more often,but i suppose once you are out of the myeloma bubble,you do not want to keep looking back

Thanks for you news Chris. Eve

Hi Alex

First may I say welcome ,its the old saying no one wants to be here,but this site is very informative,:-S
Second know very little about padimac trials except its not in SE Kent and if my husband wanted to go on a trial like this it would be constant visits to London.saying that if needed we would.:-(

My husband is over 18 months…[Read more]

Hi Alex,

In brief (writing late again!) yes I'm happy, for the two reasons you mention: velcade is supposedly more active treatment and this was a way to get it as front-line not just after relapse, and you get more monitoring. After my first cycle, tests showed I had zero in both blood and urine (I have bence-jones version so just have light…[Read more]

Chris I am delighted to read your post. It is always uplifting hearing about real positive journeys. Long may it continue.

Love jean

Hi Gina
Lovely to hear from you,I hope you are enjoying life,know you must be missing mum,first year the hardest.

As for Slim feeling lucky that we have got this far,has had to up his pain killers but better to have some quality of life,than be constantly feeling bones aches and pains.the damage plus other complaints coming to the fore.

End…[Read more]

Hi Dai

This is a roller coaster ride for you,feeling better on Myeloma Drugs,yet having problems with pesky bugs.I think you feel it more when you have been having a better quality of life,and something like this starts.
I know no one wants to take more tablets,but maybe antibiotics long term might be the answer:-(
I hope they sought you out…[Read more]

Hi Dai

Hope this pesky bug takes the hint and does a runner – should know by now it's not welcome!! Hope you feel better soon and can enjoy rest of summer

Take care
Love Jean x

Hello Dia

sorry you are still not feeling to well when i had the bad stomach bug last year it turned out to be compilabacter my consultant got me to take a stool sample to the lab so they identify which bug it was as some bugs only respond to certain anti b's this may be the case with you
Hope you feel better soon
Love Jo x

Hi Judy,

I'm in the same boat! I am also on the PADIMAC trial, and I start my 3rd cycle tomorrow. I learnt today from blood and urine tests that even after 1 cycle it had great results for me… I know it's an individual disease but I hope that gives you some encouragement. I haven't had too many side effects – the dexamethasone (steroids) have…[Read more]

Hi Eve

Great news about Slim and long may it continue. Go on go book your holiday – enjoy yourselves. Might even get that game of scrabble in.

Love Jean x

Hello Eve

good news that slim is now feeling much better i am sure the news will be good and at last you can both get away what a relief light at the end of the tunnel at last:-) Regards to Slim
Love Jo x

Thank you all for your good wishes. Other grand children born Kent, Southampton and one here (but only involved when she was born) so to be involved is brilliant.

Congratulations Dai to you and Janet and of course your son and daughter in law. Our baby is due 10 th February, when is yours due? I just can't wait- anyone would think its my…[Read more]

Hi Charlie
Three months ago we lost a grandchild Matty he was sixteen,his sister who is 10 years old put every thing into perspective,she said to her mum everything will be normal but different.

I honestly believe this sums up your position,what seems awful at the moment will seem normal after a while just different.

You will make friends…[Read more]